In short
Six less-obvious signs psychiatrists look for in autism assessments, focused on decision-making overload, justice sensitivity, task initiation/termination difficulties, shutdowns, and loss of identity from long-term masking.
Guest background
Dr Amber Sadiq is a consultant psychiatrist who has seen thousands of neurodivergent individuals across the lifespan (including adults and children) and works with autism/ADHD-related profiles and family systems.
Key claims
Autistic people may experience “every decision feels enormous” (e.g., 20 minutes choosing socks; restaurant menu weighing uses lots of energy). They often prefer predictability and can be hypo- or hyper-reactive to sensory input. Justice sensitivity can be strong—unfairness can be impossible to ignore and may lead to workplace conflict or masking/suppressing what they notice. Some describe “can’t start” and “can’t stop” behaviors due to overwhelm, transitions, and interest-based engagement. Shutdown (including losing speech temporarily) can be overlooked and may look like “fine” externally while internally dysregulated. Late diagnosis can bring grief and relief, and people may say “I don’t know who I really am anymore.”
Notable examples
Choosing socks; ordering in a noisy restaurant; queue injustice in a coffee shop; needing 20–25 minutes in a car before entering a new place; going nonverbal in groups of 3+; losing speech during pressured social situations; masking to fit in school.
Written by AI. May contain mistakes. Listen to the episode to check what was said.
Chapters
Tap a time to open that second in VOUnderstanding Autism: Comfort in Predictability
0:29 to 1:37
Explore how autistic individuals find comfort in predictability and face sensory challenges.
“Autistic people, they like watching the same film over and over again, listening to the same song.”
Decision-Making Challenges in Autism
2:19 to 4:55
Learn how decision-making can be overwhelming for autistic individuals, impacting daily life.
“a little bit later, because I truly believe that that is going to shock people.”
The Role of Predictability in Comfort
4:55 to 7:31
Discuss the significance of predictability for autistic individuals and its impact on decision-making.
“but are they going to leave the house, you know, managing their day-to-day structure as well.”
Pressure and Decision-Making Overlap
7:31 to 9:24
Understand how pressure impacts decision-making and overlaps with shutdowns in autistic individuals.
“What happens when an autistic person is forced to make a decision?”
Justice Sensitivity in Autistic Individuals
9:24 to 11:47
Examine how fairness and justice sensitivity affect autistic individuals in social situations.
“There was another sign, Amber, that felt like somebody had had a camera hidden in my flat and was spying on me.”
Navigating Workplace Injustice
11:47 to 14:01
Explore how perceived injustices in the workplace impact autistic individuals' responses.
“how that could almost become an area of focus for somebody who's autistic.”
Understanding Justice Sensitivity in Autism
14:01 to 17:41
Explore the connection between autism and heightened sensitivity to injustice.
“makes sense it can really help them through and then if they've got some practical things that they can do to help improve their situation.”
The Challenge of Starting and Stopping Tasks
17:42 to 21:04
Learn about the paradox of starting and stopping tasks for autistic individuals.
“I always talk to my clients about looking after their energy because energy is such a powerful, important resource.”
The Importance of Transition Periods
21:05 to 25:26
Understand the significance of transition periods for autistic individuals.
“And I suppose what I would be really interested in is during that transition phase, what else could people do to help them regulate themselves?”
Restorative Practices for Autistic Individuals
25:27 to 27:56
Discuss the value of restorative practices in managing energy and stress.
“So if you notice that you're moving from one task to another and on that particular day, there's a heavy cognitive load and you're going to be making lots of decisions about things.”
Show all 23 chapters
Understanding Shutdowns vs. Meltdowns
28:00 to 33:31
Learn about the differences between meltdowns and shutdowns in autistic individuals.
“And that's the shutdown that nobody notices.”
Understanding Shutdowns vs. Meltdowns
33:33 to 34:46
Learn about the differences between meltdowns and shutdowns in autistic individuals.
“Timo wasn't named iPhone app of the year in 2025 by Apple for no reason.”
The Struggles of Social Interaction
34:46 to 40:08
Explore the challenges autistic individuals face in social situations and the impact of masking.
“If I'm with a group of people, I find that I can't even mask because I don't know who to copy.”
The Impact of Undiagnosed Autism
40:08 to 42:01
Understand the long-term effects of undiagnosed autism and the journey to self-acceptance.
“and all those different kind of aspects of off-masking, actually then it can be really liberating for them to learn a different way of being.”
Understanding the Impact of Masking
42:15 to 46:12
Exploration of how masking affects individuals with autism and ADHD.
“I think that's a really difficult question to answer and I won't have like a clear cut response for you.”
Reactions to Realizing Masking
46:13 to 48:32
Discussing common emotional responses to the realization of lifelong masking.
“But first, what usually happens when somebody finally realises that they've been masking for decades.”
Rediscovering Identity After Masking
48:33 to 51:19
The journey of rediscovering one's identity after years of masking.
“emotional, then that can make a huge difference.”
Key Indicators in Autism Assessments
51:20 to 55:14
Identifying significant phrases that indicate a person may have autism.
“At the beginning of this conversation, I mentioned there was one sentence that if you hear it in a autism assessment, you really do begin to think this person has autism.”
The Journey of Self-Discovery
55:15 to 56:03
The importance of understanding one's story and neurodevelopmental traits.
Understanding Autism Through Personal Stories
56:03 to 58:14
Learn how understanding autism can lead to self-discovery and emotional growth.
Audience Questions: Insights from Experience
58:14 to 1:00:32
Discover impactful insights from patient experiences shared during assessments.
“If you could magically remove just one part of autism for every autistic person in the world, but they would keep all the strengths, which symptom are you taking away?”
Words of Comfort for the Different
1:00:32 to 1:03:26
Hear a reassuring message for those who have always felt different.
“We're going to move on to the final woe from the machine.”
A Letter to the Younger Self
1:03:26 to 1:04:49
Experience a heartfelt letter written to a younger version of oneself.
“that appreciate you for all the different parts that you bring to the world and all the gifts that you have absolutely lovely lovely end thank you so much thank you I do have just before you go.”
Transcript
Automatic transcript. May contain errors.0:01Dr Fareeha Amber Sadiq:Comcast reaches more than 65 million homes and businesses with the nation's most intelligent network, powered by AI and designed to optimize every connection in real time. And that really matters when millions are tuning in for the biggest live events. With ultra-low latency and the capacity to handle massive demand, Comcast helps deliver every moment in stunning 4K, so viewers stay close to the action without missing a minute. Learn more at ComcastCorporation.com slash network. Autistic people, they like watching the same film over and over again, listening to the same song. Does that predictability give them comfort?
0:37There are sensory differences, being hypo or hyper reactive to sensory aspects. That's why a decision that feels so small, like picking socks out of a whole sock drawer, can feel extremely difficult. If they don't have that awareness, can that person just believe that they are too sensitive? Autism or not, you often believe what you're told. you are too sensitive, too much, too mouthy, too defensive. People start to believe those external voices and they internalise that. What's the autistic person scared of? Is it perfectionism or is it something deeper? There's so many aspects to this. So one is...
1:13Can I have just a second of your time? If this podcast has helped you understand your brain or made you feel less alone, can you do me one favour? Can you hit the follow button? And I'll repay the favour by continuing to book the best and most exclusive conversations on this topic. Please enjoy the episode and always remember, you're not broken, just different, and you have always been enough.
1:37Dr. Amber, most people probably think that they know what autism looks like, or at least the signs of it. Difficulty making eye contact, sensory sensitivities, wanting routine. but you as a consultant psychiatrist who've seen thousands of neurodivergent individuals. So today we're going to explore the six signs that a psychiatrist will look for in an assessment that might not be the obvious ones. But before you begin, you said something fascinating of camera to me, and that's that there's one sentence that people say during an assessment that makes you as a psychiatrist think this person has autism.
2:18But we're going to come back to that a little bit later, because I truly believe that that is going to shock people. So today, let's start with the first sign. And that's when every decision feels enormous. One thing someone with autism said to me was that they can spend 20 minutes deciding on what pair of socks to wear in the morning, for example. And it's not because they don't care. It's because to them, every single decision feels immensely important. That kind of thing, is that something you hear often in autism assessments? Autistic individuals often describe the decision-making process as being really difficult at times, often more than not.
3:01And it's because, like you said, Alex, that every decision has multiple variables, multiple inputs, and so many outcomes as well. and for people that are autistic they care so deeply they process deeply they're looking at you know that that question or that dilemma or that decision as as being a very important one and therefore because they process deeply it can also take them longer to process so whereas somebody who isn't autistic might be able to make that decision very very quickly someone who's autistic will take longer and they might find that process really laborious, really tricky, because they're looking at all the different possible questions around, let's say, picking something from a menu.
3:54That can be one of the most common things that I see in my clinic. It's people that say, you know what, when I go into a restaurant, first of all, I have to deal with the noise, the sensory input. I have to deal with the people. So I don't know what's going to happen next. people that are autistic, they prefer predictability. And therefore, maybe going to a restaurant where you know what to expect, what the menu is going to look like, maybe you've whittled down to a few options, feels a lot easier than having a whole menu where you're having to weigh up the pros and cons and what it might taste like.
4:29And is this going to be as good as the last macaroni cheese that I had? And that can be, you know, very, very difficult and very cognitively demanding. what I mean by that is that it uses up a lot of energy. So if you can imagine in an average day, an autistic person has to make so many decisions. They're kind of having to, you know, make an opinion on not just what they're going to eat, but are they going to leave the house, you know, managing their day-to-day structure as well. But that actually involves a lot of energy in the first place, but also then that additional part of transitions and moving from one thing to another.
5:11So often, you know, what I see in clinical practice as a psychiatrist is that decision making can feel very, very painful. And it looks different from what we might see with other neurodivergent conditions as well. So interesting, Dr. Amber. So if we focus in on the decision paralysis for a moment, and the lovely example you said, go to a new restaurant and oh my gosh, I have to choose what to eat. I mean, that's terrifying. What's the autistic person scared of? Is it perfectionism or is it something deeper? There's so many aspects to this. So one is not knowing what to expect because the autistic brain likes to know what's going to happen next.
5:51And if they've never ate in that restaurant before, they don't quite know what that dish is going to be like, how it's going to look, how it's going to be presented. The smell as well can be an additional factor. And then if you're thinking about making the wrong decision as well, because often autistic people are kind of weighing up the pros and cons, they're kind of, every decision feels like a new, a new dilemma, a new problem. And that's often what's described to me in the clinic. And that's why it feels so hard. And that's why, you know, I always use the analogy of being in a restaurant and how you can then put adaptations in place to make it a bit easier for them.
6:34So is it that autistic people, they get huge comfort from knowing the outcome, i.e. they like predictability, they like watching the same film over and over again, or they like listening to the same song over and over again because they know how it starts, they know how it makes them feel they know how it ends does that predictability give them comfort it's really important for autistic people of course i want to add just now alex that one autistic person has a very different experience from another autistic person but generally you know there are things like sensory differences which we know can impact so either being hypo or hyper reactive to sensory aspects in your environment and really appreciating and having a preference for that consistency and knowing what's going to happen next and being prepared for that.
7:31And that's why, you know, in my opinion, actually a decision that feels so small, like picking socks out of a whole sock drawer or picking something that you're going to eat when you're out in a restaurant with your loved ones can feel extremely difficult. What happens when an autistic person is forced to make a decision? They're put under pressure. Is that overlapping between sort of shutdown and overwhelm? So there are overlaps. There are overlaps between, you know, how autistic people make decisions and what that experience is like for them. And also autistic people generally need space and time to make decisions.
8:13They need time to process because if we think about what autism is, it's a difference in processing information and processing the world around you. So if you're somebody that just needs that little bit more time and maybe some scaffolding around that decision making, then if you put an additional stress or if you ask that person another question on top of that, that just can be so difficult for that person to manage. Because it's unpredictable. They've not expected it's kind of come from nowhere. B, they've possibly not prepared for it as well. So it's kind of something that's kind of, again, you know, come out of the blue.
8:56It's moving from one problem to then moving to another problem. And we know that for many autistic people that they struggle with transitions. So moving from one thing to another thing can feel really, really difficult. So actually, yes, when we talk about shutdowns and meltdowns, there is an overlap. because if someone who's autistic is faced with multiple things to have to make decisions about, that can impact on their energy and their cognition. There was another sign, Amber, that felt like somebody had had a camera hidden in my flat and was spying on me. And that's when unfairness feels impossible to ignore, when you feel like you should just be able to let something go, but you can't.
9:44and I think an example that happened to me recently I was in a coffee shop and queuing up to get my coffee and someone just walked in walked to the front of the queue ordered their coffee and the person behind the counter served them and they walked out and and off they went and no one said anything well I didn't say anything but it was it really stuck with me all day like how could that person not stick to the rules like why did no one say I didn't say anything but that justice sensitivity is that something that you see come up in assessments something that i ask about in all of my assessments when i'm looking at neurodivergence and in particular autism is that strong moral compass that strong sense of justice so it's really interesting what you describe alex because that feeling of that didn't feel right you know how did that happen you know it's it kind of jars you, doesn't it?
10:37It kind of that experience, it just doesn't feel ethical. And if you've got a preference for rules, which many autistic people have, which I think is, is wonderful in many ways, but you're also somebody who has to make sense of a situation. And if a situation has kind of gone in a way that you think is really unfair for yourself, for somebody else, for somebody in your workplace, then you might be more likely to call that out. And that is something that many of my autistic human beings that I see and families describe. They say, look, I've really felt this injustice and I can't let go of it. You know, it's just like sitting there and I just, it's just, I keep mulling over it because I think there's a sense of, unless you can find an explanation for it, unless you can kind of make it right, or unless you can get the other viewpoint of why did that happen?
11:34How did that happen? Often many autistic people describe themselves as being very good problem solvers. So if you're not able to solve that problem, and if someone has violated the rules, then you can really see how that could almost become an area of focus for somebody who's autistic. Could, following on from that, could that cause problems in the workplace? If an autistic person who has massive justice sensitivity, and perhaps they witness somebody get a promotion, for example, and in the autistic person's mind, they can tell that the reason that person got the promotion is because they might be just more chummy with the boss, not because they are necessarily there through merit.
12:16And therefore, if that justice sensitivity is so overwhelming and it bubbles up, it Could it cause problems where the autistic person feels like they have to say something, even though if that saying something is going to put them in a position that could cause the rest of the office to think that they're awkward or being difficult? Again, there's different ways that autistic people will respond to that situation. Some people will suppress what they notice and what they feel and that radar for noticing injustice or that something doesn't feel right or this doesn't feel fair. you know they may suppress it and they might mask and they might just say look um they might really feel it inside if that makes sense other people autistic people may call it out and I would hope that somebody in that situation has a supportive line manager or somebody that can explain why because often you know we will make some interpretations or we'll find you know in that kind of that person got a promotion and I didn't and this is why and these are all the reasons why often making that autistic person feel less than or worthless which often then fits into maybe negative experiences that they've had in the past as well it really fits into that low self-confidence that low self-esteem why that person why not me I'm really hoping that in that situation that person has you know someone supportive that they can go to and say very candidly how did this happen and that they can get an explanation for it as well because often what I find with my autistic clients is that when they have an explanation for something and it makes sense it can really help them through and then if they've got some practical things that they can do to help improve their situation.
14:09And if they feel heard and witnessed for what they experience internally and cognitively, then that can really help. So interesting. If the person is feeling intense justice sensitivity and they have that overwhelming bubbling up of emotional response when they witness something that they perceive as unfair, if they don't have that awareness of autism and justice sensitivity can that person just believe that they are too sensitive you often believe what you're told so if you're told as a human being autism or not that you are too sensitive that you're too much that you're too mouthy that you're too defensive that you always have a strong opinion about things, then I truly believe that people start to believe those external voices and they internalize that as well.
15:06And they might think, especially if they get further feedback from others, that they are too sensitive. And then that then fits into that negative construct that they might have about themselves. I just want to zoom in and get a bit geeky just for a moment on this particular point of justice sensitivity. Are autistic people naturally more wired to be sensitive to unfairness? Or is it the environment that has made them more sensitive to unfairness? In my view, and from my experience, and having worked with autistic individuals across the lifespan, so that's kind of from adults all the way, if you think, down to children and families, most of my autistic clients have got a natural brain wiring for justice, for integrity, for saying it how it is, reducing that need for ambiguity, you know, cutting out, I'm sorry about my language, the bullshit, which I think is actually really refreshing, you know, as you get kind of get to know people that are autistic and get to know how their brains are wired up.
16:14So I would say that from my opinion and from my clinical experience, It's very much there's a preference for having a strong moral compass, for having a strong sense of what feels right. I suppose the other side of the coin would be thinking about flexibility to other perspectives. so for many of my autistic younger people younger adults when they've not had any support or they've not been able to kind of think through their profile what can really help is to kind of have some space to think about what might other people think about this you know and to kind of do some coaching around that not to change their opinion but to get them to just generate new thinking and new ways of, I suppose, living in the world.
17:08Because actually living in the world where you notice and you've got that sensitivity for injustice can feel really hard. And I don't think there's any surprise that, you know, many people who feel strongly about things go into the kind of activist space. They'll go in to fight for their passions. They'll go in to, you know, they'll develop these kind of special interests around injustice and unfairness. And they can do really well through that. But I also feel that that can come at a cost as well. What would that cost be? I always talk to my clients about looking after their energy because energy is such a powerful, important resource.
17:54The energy when you're making a decision, the energy when you're moving from one task to another. the energy that you utilize when you're fighting passionately and giving so much and making sure that you don't empty your cup to the point of depletion. And that cost then would be looking at things like meltdowns, shutdowns, emotional dysregulation. Many people that I work with who are autistic often come into the clinical space, not necessarily because they're looking for an autism diagnosis but because they've experienced additional mental health difficulties like anxiety depression we might see substance misuse we might see adhd we might see ocd there's kind of like other routes or they might have a child that comes into the clinic for an assessment and then as that adult is listening and hearing the questions and and things that you know kind of pattern recognition skills are kind of being played out and they're kind of thinking, oh, that sounds like me as well.
19:04That I think can be really valuable because I think as people go through that process of learning about who they are, how their brain is wired up, how they manage their energy, they also recognize that there are times where they just find it really hard to function and sometimes that can get misinterpreted as depression or something else but actually it could be indeed part of the the autism i'm so pleased you mentioned adhd just briefly there because i think that leads us nicely onto the next sign and for me this one is the one i relate to the most and i think it's the one that can cause feelings of being misunderstood to the greatest extent.
19:48And that's almost having like an inability to start sometimes, but also having an inability to stop. And I hear some people with autism say they just can't start a task. And other times I hear the same person saying, I can't stop something. How can both be true at the same time? It's incredible, isn't it? It's almost like a bit of a contradiction when you think about it. So if we think about kind of the starting of a task, you know, we've talked about kind of that inertia that can happen or that sense of it's too complicated to make a decision to start a task. The environment needs to feel right.
20:25You know, there can be too much visual clutter. There can be a lot of sensory stimuli. Where to start first? You know, do you start with this bit of the problem? Do you start with that bit of the problem, that bit of the task? It can feel really overwhelming to the nervous system. And then what we find is that when some people, some autistic people start a task, then it's almost like they can't finish it, right? So they continue and to the point where someone has to tell them or they have to recognize in themselves that they've not eaten, they've not been to the toilet, they've not drank water, and that can be really challenging.
21:03So I would say that kind of with the starting a task, that can be linked to transition that can be linked to starting something that perhaps perhaps they're not interested in if you think about you know autism like ADHD it's linked to having an interest-based brain so you're more likely to be able to do something that feels manageable that's enjoyable that fits in with your life purpose so funny really does this explain why some people they might drive somewhere and then they have to sit in the car for say 20 minutes before they can walk into the place that they're going because this is something I struggle with I can start a particular task which might be get in the car get ready and go but then I almost have to have this like 20 minute 25 minute transitional period where I'm just sat in the car and I don't know if that's related to this inertia I I'm still in the mindset of finishing this task am I preparing my mask for starting the new task because that's going to be involving meeting new people is that experience common like just having to have this transitional period where you might just stop yourself from going into another environment i think it's really helpful that that you've got that insight and and really valuable that you're recognizing the important of importance of that time in between tasks i think often the challenge is when people don't build that in to their schedule so they're moving from one thing to another thing to another thing and actually that transitioning becomes way too much because it leads to anxiety and it leads to that sense of unpredictability and nervous system system dysregulation so actually that sense of kind of like needing time in the car just kind of quiet time you know I think many people will be able to to relate to that as well it's almost time for your nervous system to catch up on itself to allow you to prepare for the next stage, to get your mind and your body into the right space.
23:09And I suppose what I would be really interested in is during that transition phase, what else could people do to help them regulate themselves? I think actually it's really important that autistic people recognize the importance of having extra transitions and building in some self-regulation time I think that can be really valuable yeah so interesting Amber one of the biggest lies I used to tell myself was that I could book two appointments back to back and be okay afterwards and I tried to do that in the past like zoom meeting zoom meeting zoom meeting and I was drinking in the evening and I didn't understand why yeah yeah but that's so interesting so in the breaks that we create for ourselves what could an autistic person do to make the best use of that time?
23:57Being intentional about making sure, you know, have they drank? Have they drank water? Have they had something to eat? Have they peed? Have they been to the toilet? You know, just making sure that their basic bodily functions have been attended to because many autistic people, when they get into that flow or they, we call it monotropism, where you're kind of so into a task and you can't finish it, you know, it's that leading to that kind of can't stop scenario that often because autistic people can struggle with noticing their bodily cues sometimes they don't know when they're hungry they don't know when they're thirsty they can get so caught up in something that kind of hyper fixation that they don't have their needs met and that makes it even more likely that they can become more dysregulated so just kind of like having your basic needs met using breath work so kind of taking a pause taking you know inhalation, exhalation, stimming, you know, thinking about kind of using that opportunity to unmask as well, because often people are performing so much in today's world that they don't have opportunities to unmask and just to be and just to like listen to their favorite song on the radio or, you know, watch something that they enjoy, you know, because they kind of lose sense of who they are in day to day life.
25:18And I think just things like that can be really valuable. Obviously, each person is going to be very different in how they want to use that time. But I think it's so valuable to build in that time and almost like block it in your diary as well. So if you notice that you're moving from one task to another and on that particular day, there's a heavy cognitive load and you're going to be making lots of decisions about things. it's giving yourself some grace and some respite and all of that and also recognizing that perhaps in the days following that you might need to do a bit less as well i think autistic people struggle with what this behavior looks like from the perspective of other people like if you picture the scene i'm sat in the car for 25 minutes i'm doing the exercises you suggested or i'm at home and I'm lying on the sofa for 15 minutes between my Zoom meetings.
26:13Why do you think these transitional periods can look like laziness? Because they're not the dominant narrative about, you know, for most people who are not neurodivergent, moving from one task to another isn't as challenging. It doesn't come with the same level of anxiety. It doesn't come with the same level of decision making. You don't have to manage the sensory stimuli. you're not having to think about all the different combinations and algorithms and you know that chat gpt in your head you know you're not kind of going through every single possibility actually you can use as somebody who's not autistic you can use prior learned knowledge to be able to help you make a decision which is a different way of processing a problem but for someone that's autistic because you are a deeper processor actually it feels it can be more exhausting actually for them to be able to live a life where they're having to make these decisions.
27:12And so for the person on the outside, they'll be looking at Johnny or Amelia, just making up these names. They'll be looking at those people thinking, actually, why are they just lying down? What's going on? They should be doing more. Come on, work harder. Come on, let's go for a run. But actually, what I would say for somebody who's autistic and for their loved ones is, actually allow somebody to build in that restorative practice, ensure that it's almost like it's a habit, it's a non-negotiable, it's something that they build into their week, into their daily practice, because that's what's going to help them in the longer run as well.
27:56I want to move on to the sign of autism that I think probably causes the most damage if it's not spoken about. And that's the shutdown that nobody notices. We mentioned briefly earlier meltdowns, but I think nobody talks about shutdowns quite so much. What is the difference between a meltdown and a shutdown? Meltdowns and shutdowns, in my experience, often come from a similar root cause. They come from a sense of being overwhelmed. They come from an experience of your resources not quite meeting the demands that are being placed on you or the activities that you're having to engage with. Also managing sensory stimuli, which can be extremely difficult, managing social interactions, some which are predicted and some which are not.
28:49And a meltdown is more of like, if you think about someone who's meltdown, having a meltdown, it's more of a dysregulation on the outside so you know somebody who becomes very upset who becomes very distressed um you know there there might it's it's it seems like it's more of a problem but actually i see people who go inwards so they experience the same level of anxiety and nervous system dysregulation But actually, the way that they respond to that can look quite different, where, again, the autistic experience is so varied. You've got autistic people that are nonverbal. You've got autistic people that are verbal.
29:32Often in the clients who I see who are verbal, the majority of them, they describe losing their ability to speak. They just don't know where this comes from. And I always ask about it. they lose their ability to engage in everyday activities this could be things that they can actually do really well on a normal day but they just can't do it anymore you know even getting out of bed can be really challenging or they might almost kind of appear fine but they're not processing in the way that they normally do and in my opinion and from my experience that's coming from a real sense of overwhelm and a real sense of protection actually it's at that point it's like an acute episode that that person goes into in order to help them cope with a situation so interesting you said you could go non-verbal if you aren't otherwise non-verbal and I think I think of my own story a little bit here.
30:39I mean, if I have a conversation with one person, I enjoy that. I'm able to monitor their reactions. I'm able to listen to them. I'm able to have a good conversation. I think if there's more than one person, it's a significant struggle. If it's three or more people, for example, if I'm in a restaurant with a group of people that I don't know very well I go non-verbal to the point because I'm it's too much to pay attention to it's too many different people to observe their patterns and understand what everyone wants to talk about and I just go into what I would describe now as non-verbal though to the point where in the past people have said Alex why have you gone so quiet Alex why are you so awkward and for me internally it feels like everyone is looking at me judging me thinking I am weird because the Alex who turned up half an hour ago was like good posture, very confident, shaking hands.
31:32And now I'm at the table not saying a word because I don't know who to focus on, what to say, what's going to get the most praise from the group. There's too much going on. Absolutely. So much stimuli, isn't there? You're kind of talking about maybe the brain not being able to filter out all that information. So there's the words that people are using. There's their facial expressions. There's the noise of the restaurant. there's the unpredictable you know the friends that then come into the conversation and thinking oh how do I manage this and it's really interesting that you talk about kind of losing your speech I think it's one of those things that a lot of people don't understand and I think it's absolutely fascinating because it comes up in so many of my assessments where people say I literally don't know what to say you know I feel like and especially if you're put into a pressurized situation where there's so much visual clutter and there's so much sensory stimuli it's that sense of But I would know what to say in a different situation, in a different context.
32:31But I feel that that's a moment of dysregulation. So often for autistic people, being regulated and being able to thrive as a regulated human being, having your sensory differences appreciated, supported, being accepted, having your communication needs met as well, and having that predictability around a situation can really help someone to thrive. But if you're kind of thrown into a situation that for many people would be very manageable, it's not surprising that the body will communicate or not communicate, you know, lose its speech. Some people describe anxiety symptoms in that situation as well, where they will look like they're not reactive, so they're shut down.
33:23but inside there's a lot going on. The body is screaming. So sorry to interrupt your hyperfocus but I promise it's worth it. Our sponsor is Timo, the best organizational tool for neurodivergent people. Timo wasn't named iPhone app of the year in 2025 by Apple for no reason. It's the ultimate planning partner gently helping you turn the chaos in your head into a day that actually feels doable. A day you might even look forward to. Timo is designed by neurodivergent brains for neurodivergent brains. And you can tell, it supports the stuff ADHD brains can find hardest. Managing time, planning what needs doing, prioritizing tasks, staying focused, and actually finishing the thing.
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Read the full transcript
34:41Just a note though, the code only works in the web browser, not in the smartphone app. Back to the episode. This is interesting. If I'm with a group of people, I find that I can't even mask because I don't know who to copy. I'm on a dinner table with three or more people. I'm thinking, who do I mirror? Whose mannerisms am I copying? What persona am I putting on? Because there's too many people to please. So I don't know what to do. And I just completely shut down and do nothing. Is that experience common, do you think? it is in terms of the autistic experience of mimicking and adapting to their environment so if you're somebody who masks a lot and hides your autistic features then if you're in a room with more than one person and you're not sure if they're neurodivergent or not right because neurodivergent people often can bounce off each other yes and it's okay to not look each other in the eye and it's okay to sit in silence together and it's okay to be what other people might say is awkward together that would be absolutely fine but if you're in a group where you don't know what to expect and again there's that unpredictability and if you've got more than one person that just adds in even more variables then I can completely see how that would then lead to a feeling of overwhelm and shutdown but it could also lead to a meltdown as well or it could also lead to behaviors to then manage that situation such as drinking too much for example or using substances or having a smoke you know so I think there could be different ways that you might respond to a challenging situation like that.
36:26And that leads us actually nicely on to what I think is the the saddest consequence of living with undiagnosed autism and that's losing yourself And I think this one sentence breaks my heart. I don't know who I really am anymore. How common is that after a late autism diagnosis? I hear that so often. And I also hear the, I never ever knew who I really was. Right. So that comes up in the clinic space so much. And if you think about, you know, 20 years ago, we never had this language, we never had this understanding. It's fabulous that we're now talking about this here today, Alex. But, you know, in the kind of the older times, like when I was growing up, for example, when we didn't talk about autism or ADHD, there were lots of people who were learning to hide bits of themselves, parts of themselves that they actually felt ashamed of.
37:28They were observing, quietly observing and watching social situations, reading guides of how to interact with others, suppressing things like their stims, so like their hand flapping or their fidgeting or, you know, things that brought them comfort. And through that suppression, they actually, now when they come in as later diagnosed adults, you know, recounting their story, they recognize that there were parts of them that they never really acknowledged and that can be really difficult especially when people look at old photographs of themselves and they see a child that looks outwardly happy and smiling and conforming and and listening to people and following the rules because you know isn't that what you're meant to do you're meant to follow the rules yes and then you recognize that you've kind of not nurtured those bits of yourself which were actually equally as important and there can be you know a real sense of grief there can be a real sense of what would life have been like if I had known this earlier you know how would I feel about myself and also when you think about the kind of consequences of being autistic and and having a later diagnosis often it can link to additional mental health conditions such as depression, anxiety, obsessive compulsive disorder, self-harm, suicidal thoughts, sadly in some cases completed suicide as well, substance misuse and therefore you just wonder if life could have been different for that human being if they'd known sooner rather than having to mask and hide those beautiful bits of themselves although it can be hard to be autistic at times actually part of the work that we do once someone receive receives a diagnosis is to help them relearn who they are what their strengths are what they actually believe how they want to live their life that they don't have to do things just because people tell them to do those things.
39:47They don't have to socialize in big gatherings. They don't have to follow rules that don't fit the way that they want to live their future life as well. So when somebody gets a later diagnosis and they've gone through that process of recognizing that they've been masking, they recognize that they've been scripting and rehearsing and preparing and suppressing and hiding and camouflaging and all those different kind of aspects of off-masking, actually then it can be really liberating for them to learn a different way of being. That's a heartbreaking image. You mentioned perhaps looking back and seeing a picture of yourself when you were younger and not recognising the person in the image.
40:31I mean, that really hit me. I think, I imagine, you know those sort of flick books you get? It's like 100 pages and you flick through them and often it's like an animation and the pages are moving so fast it changes. You can imagine almost just flicking through like 100 different pictures of an individual over the years. And perhaps the first picture is them looking really happy and smiling and content and not anxious. And then as you flick through the pages, the image slowly transitions into somebody and the smile fades. Their posture changes. They look a bit more insecure. It's devastating. I think when I was younger, I used to go into school.
41:04I used to go to the library in the morning and look at the stock market, read the newspaper. And then someone one day said I was weird for doing that. and I remember peeping out of the window in the library and looking down to the playground and seeing all of the other kids playing football and they were playing with these football cards and when I got home that day I asked my mum if we could go to the shop and buy some football cards and I stayed up all night researching all of the players walked into school the next morning with these cards in my hand football cards walked up to this group and in my head I was saying to myself do not talk about the stock market do not talk about the stock market do not talk and I mentioned something about football and it got a smile.
41:40And from that moment on, I was like, okay, wow, I can be accepted by hiding who I am. How long does it take for masking to slowly rob someone of their identity? Push your limits, train with precision, see the results. At Equinox, that's high performance loving. Iconic spaces that inspire. Personal training backed by real data, unlimited group fitness classes from yoga and Pilates to strength and conditioning. Elevate your post-performance ritual with saunas, steam rooms, cold plunges and more. Everything you need to lock in and unlock your potential at Equinox. Start today at equinox.com.
42:19I think that's a really difficult question to answer and I won't have like a clear cut response for you. But ultimately, it's from when you're a child, really, because you're surrounded by these dominant narratives of what a child should look like. And then you hit puberty and there's all these big expectations of, you know, children starting secondary school and having to then fit into what can be quite a challenging environment. And that's why we see rates of autism increase during that period, because the capacity and demand can become quite, you know, there's a friction there. And then when people move into university or further education or further careers and relationships, really, you know, if you're always pretending to be someone else and not yourself, then in a way, you're not really being true to who you are.
43:14but perhaps society hasn't given you an opportunity to do that either and often there can be lots of regrets and and mixed feelings you know when people do realize gosh I've been masking all my life like who am I you know and where do I even start with this and I suppose that sense of meaning making with somebody who you trust somebody that can help you guide yourself through that process of learning to accept yourself for all those differences that you have. But being different is absolutely fine. It's not less than. And maybe bringing in some of those aspects that you've previously suppressed into your future life so that you can live what I would call a richer life as well.
44:05I mean, it's such an emotional realization, isn't it? That you have perhaps been playing a character your whole life for decades. When the topic of masking comes up, is that the most emotional part of an assessment? It's really hard because people, when they realize that they're doing it, and often, you know, when I work across families, it's because I work with systems, right? So that's kind of my kind of interest in working with neurodivergent human beings it's working with the family system as well so if you've got like a young adult um who's going through the process of recognizing that they're masking and then the adult next to them is also realizing that they've been masking all their lives that that can be very very powerful indeed and i think it's really important to have these conversations so that people learn what masking is they also learn about the fact that when you're masking so much and you lose that sense of self what you can then do to manage that as well and it is it's it's a very it's it's very hard and I suppose that's why I feel really passionately about early identification and actually recognizing autism, ADHD needs, you know, people's needs really early on so that it reduces that need or having to mask as well, that the system around that human being can allow that person to be, to look at the stock market in the morning and, you know, read newspapers or go to the library and spend time just decompressing and regulating themselves, you know, to have different options and different choices at their disposal so that that person feels that they've got the agency to be a bit more of who they are.
46:06We're nearly at the moment where you're going to reveal that one sentence that people say in assessments that make you think this person might have autism. But first, what usually happens when somebody finally realises that they've been masking for decades. Is there a common reaction that you see time and time again? Often it can feel like grief. It can really feel like that child that they once were, that there's been lost years, there's been lost time, that they've perhaps made decisions, made mistakes, made decisions for themselves that could have been different, could have had a different outcome.
46:47and there can be lots of regrets as well. But at the same time, what I'm seeing more and more is relief. That sense of, ah, okay, this now makes sense. And just thinking about the work that you've been doing around ADHD, that sense of sense-making, meaning-making can be hugely valuable. It's not just about a diagnosis at the end of the day. it's about being able to understand your story and your strengths your vulnerabilities the challenges that you've had and being being able to connect the dots a lot more easily what are the biggest regrets regrets of not knowing you know if you think about people that are autistic often they want to know they want to know they predict things they are pattern spotters you know they're very good at it as well you know tend to be very very good at it and they tend to pick up on things before other people do and that sense of then not knowing and often the way that I talk to my clients and within my clinic as well is that you know you don't know what you don't know right so back in the day we didn't have this language we weren't talking about autism and ADHD in the same way we didn't have the same level of lived experience research which I'm really pleased to say is increasing, that we recognise that we need more autistic voices as part of the research that we're doing.
48:12We want to know what's happening internally for people, not just what they're showing on the outside, what's happening on the inside. And now that we have the language, now we can actually honour that language and honour that expertise and find a way of helping people to make sense of who they are. Can people genuinely rediscover who they are? When people realise that they're not what society has told them, so they're not weird, they're not strange, they're not just awkward, you know, not just all these things are too intense or, you know, highly emotional, then that can make a huge difference.
48:51I have worked with people and in particular a client many years ago who had actually lost their voice and their ability to articulate their viewpoint. A verbal, this was a verbal autistic young adult. And it took a lot of trust and a lot of relationship building to help them see all the different parts of them. and to make sense of why they had ended up in that position. And in their situation, it was around social exclusion, being bullied. Also some cultural differences as well, which made it even more difficult because in that particular culture, they were expected to engage in lots of social activities and dress up in a certain way.
49:45And actually that lifestyle wasn't something that they necessarily connected with and they found it really difficult. And those demands became very, very heavy for them. And they developed other mental health difficulties, an eating disorder and depression. and when we worked through their profile and work through their neurotype and made sense of those autistic aspects to their presentation it just made so much more sense and it's really lovely because I received a gift which said thank you so much for helping me find my voice and it was such a privilege to be part of that journey and I see that in older adults as well you know I see that in people who are diagnosed in their 30s their 40s their 50s as well that when people lose that sense of who they are but then they start to rebuild themselves and they start to develop that sense of agency yes and autonomy like they get a sense of actually you know what I want to do things my way and what I've often said to clients to to my human beings more recently is that you're going to walk a path that no one has trodden before this is going to be your path and along the way there's going to be lots of challenges and there's going to be difficulties and there's going to be decisions that you make that you may wish that you hadn't made but actually there's going to be lots of strengths and courage and it's to help people see that positive self identity as well that they can be more than one thing and it's very hard for autistic people to see that sometimes because either you're this or you're that but actually helping them to see that they're more than what they even believe themselves.
51:42Such a powerful story and I think it really shines a light on the importance of the work that you're doing and I think it can be life-changing and in many instances, life-saving when you get that awareness and you get that understanding of how you operate in the world. At the beginning of this conversation, I mentioned there was one sentence that if you hear it in a autism assessment, you really do begin to think this person has autism. Let's finally talk about that. What is that sentence? I've always felt different ever since I've been a child and I've never understood why. Why does everyone have a script as to how to cope with everyday things, but everything is so much of an effort for me.
52:25Now that's a very, very long sentence and it's very kind of, there's a lot of nuance with that, but that sense of feeling different, that's something that comes up again and again and again. And when I hear that, I really do, my ears do prick up. And it's not because I jumped to the conclusion of that person must be autistic. But I suppose it does make me really curious. And it does make me wonder, what is it about this person's lived experience that has made them feel different? What have they experienced? You know, why? Not that they can't do things, because actually, often, a lot of the human beings that I work with can do amazing things.
53:09They're doing phenomenal things, right? They've got this huge capacity to change the world, actually. I truly believe that. But actually, there's certain things that they can't do as well, which other people might take for granted. So it could be things like getting ready in the morning and having breakfast and leaving the house. you know that's just way too many decisions it's too many things to manage but then there can also be that sense of I need to get somewhere on time and if that doesn't happen that can feel very overwhelming as well and that sense of being different often goes all the way back to childhood so when I see somebody who's in their 30s and 40s in my team and we go back to when did you first noticed that something felt different, they often will go back to their childhood.
54:06They'll go back to when they were five, six, seven or eight and feeling different from their peers, feeling very self-conscious, feeling socially anxious, struggling to know how they could start a conversation, really struggling in groups, maybe preferring their own space and their own time, but not being able not being given the permission to do that so much in a school setting and and that was really hard and then kind of hearing those negative messages which then emphasize even more that they're different so kind of you're weird you're awkward you're intense you know all those things hearing that and then adapting themselves to mask and camouflage and so for me it's that sense of curiosity and also thinking about the other intersectional aspects that could be coming up for that person for things like you know gender and race and culture and after a lifetime of feeling different and you hearing that sentence and then you perhaps do diagnose them with autism what are some general reactions that you see behaviors what do they do what do they say now I feel seen you know lots of people that I work with they've they've been on this long road of self-discovery they've some of them have self-identified as being autistic they've done lots of reading they've um there can also be a sense of for some imposter syndrome because we can't deny that there's still a lot of stigma about autism which is something that I believe we need to really fight against and so people will come in and they'll they'll go through this process and and the way that we assess is using a multidisciplinary framework so we'll have different clinicians working with that person to kind of help make sense of their story and often by the time they get to the end because we've done that kind of support alongside there is a sense of ah this all makes sense now i get this i get my story and it's weaving in those other neurodevelopmental traits that might exist alongside right so it might be that they had a diagnosis of adhd 10 years ago and they didn't recognize that autistic bit or they might be dyslexic or they might have had an eating disorder and then recognizing that autism was there all along and it's part of their story can be hugely enlightening and often leads to a real path of self-discovery where then they start to they want to know everything about that and they want to research that and I'm really pleased to support people along that journey as well and to work through those emotions that might come up that can be very mixed because we expect that don't we we expect that there'll be maybe some disappointment some regret there can be anger as well that no one else noticed this that I was struggling yes all my life and my parents didn't even pick up on it but again the way that I often you know talk to to people now is that you know our parents didn't have this language our parents didn't have an understanding of autism and ADHD and neurodivergence even we're catching up right so even we're now having these conversations and recognizing the overlaps between you know not just looking at things in silos looking at dimensions looking at context looking at you know an autistic person in this context can be very different in this context and and really recognizing the role of dysregulation emotions language sensory differences and so I feel like we're actually at such an exciting point where we can really help guide people in a much more positive way so interesting and I feel like you're going to be helping a lot of people feel more understood just in this conversation alone I want to move on to the most emotionally unpredictable part of the show which is the washing machine of ways okay which is essentially audience questions oh okay three tumbling around in there um and it also double up doubles up as a public service announcement for people to empty their washing machine because i always forget my load in the machine um i can relate to that do you do do that i often then have to rerun it again because the smell of damp yes you're making me feel less alone already.
58:47The first question, the first load. If you could magically remove just one part of autism for every autistic person in the world, but they would keep all the strengths, which symptom are you taking away? I would not change anything about autism. I do not believe that that's the problem. Instead, what I'd want to ensure is that we identify autistic needs earlier. We identify neurodivergent needs earlier. So rather than having the 45-year-old in the room with me, recognising that they might be autistic, I'd love to get to a place where we have a 10-year-old or a 15-year-old recognising that they're autistic and recognising what they can put in place to help support them so that they don't end up in fight or flight and they don't end up living a life that goes on to develop mental health issues that's what I would want to stop and then alongside that thinking about the system and really educating the system because I feel that if we were to change something about autism, then we lose a lot of the strengths because being autistic comes with, it's a profile, right?
1:00:12It's a dimensional profile that comes with strengths, it comes with differences, it comes with vulnerabilities. But actually what I really would love is for the system to see that, to have the language, to have the understanding so that we create a much more inclusive world for everyone. Yes, a lovely answer. The washing machine of woes never disappoints. fantastic the second load out of the machine what's one sentence a patient has said during an autism assessment that you've never forgotten it definitely comes back to and i've said this already but now it all makes sense and it is coming back to i know alex you know this is this is actually you know something that you've that you talk about a lot with regards to to adhd but that now it all makes sense that huge sense of relief that huge sense of actually now especially for autistic people who like to connect the dots and actually being able to connect the dots and have the language to be able to put into words and to feel witnessed and to feel validated and to feel seen and to feel seen for all the different parts of who they are that none of this is wrong that none of this is weird it's just different is something that comes up again and again and it often comes up in the families that I work with where one member of the family is assessed so a young adult is assessed for autism and then the adult sitting next to them is listening on and thinking wow this all makes sense but they're not talking about their child they're actually talking about themselves.
1:01:54Yes. It's really powerful. Gosh, yeah, I can imagine. Lovely answer. We're going to move on to the final woe from the machine. Somebody has written in and they've asked, imagine there's someone listening right now who spent their whole life feeling different, but has no idea why. What's the one thing you'd want to say directly to them? I'd like you to, if you're listening and you feel that this is resonating for you and you've always felt different, I'd like you to know that we believe you and that your experience, what you've experienced, what you've lived through has happened and is valid. But also I'd like you to know that you're not alone and that speaking as a clinician who's worked with thousands of people over at least 20 years I'm showing my age now that in the clinic room I meet many people who feel different it's something that we've talked about today and I want you to know that you're not alone I think this is really really important that that feeling of loneliness that feeling of you're in this by yourself I want you to know that that's not the case because I work with many neurodivergent people who describe that and I really hope that you will find your people over time and you find the right people that appreciate you for all the different parts that you bring to the world and all the gifts that you have absolutely lovely lovely end thank you so much thank you I do have just before you go.
1:03:47A surprise for you. Okay. I'm going to deliver to you a letter that was written by the previous guest and they wrote a letter to their younger self. What I do is I take the previous guest's letter to their younger self and deliver it to the guest in front of me today, which is yourself. Hey little one, I know you think you're broken. You spend every day wondering why everything seems so much easier for everyone else. You try harder, mask better, smile bigger, and still feel different. One day, you'll discover it's called autism. Not because you changed, but because someone finally found the words for what you've been carrying your whole life.
1:04:28You'll grieve the years you spent blaming yourself, but you'll also meet yourself for the very first time. You were never too much. Never not enough. You didn't need fixing. You just needed understanding. Love your future self. Wow. I mean, what a lovely tone to finish on. As I said before, I think a lot of these letters, it really is a letter to the younger selves of many of the viewers and listeners as well. And I'm sure many of your patients. Yeah, definitely. It's beautiful. Dr. Amber, on behalf of everyone grappling to understand their brains, their brilliant brains, Thank you so much. Thank you for having me.
1:05:38Start today at equinox.com.
From the publisher
What if the things you've criticised yourself for your entire life... weren't flaws at all?
What if struggling to make simple decisions, feeling overwhelmed by change, or caring so deeply about fairness weren't personality quirks, but signs your brain has been working differently all along?
Today I'm joined by Dr Fareeha Amber Sadiq (known as Dr Amber), Consultant Psychiatrist and Clinical Director at Eleos Clinic. She has assessed hundreds of autistic individuals and has helped countless people finally understand why they've always felt different.
Chapters:
00:00 Trailer
01:54 Why Every Decision Feels So Overwhelming
06:24 Why Autistic People Need Predictability
09:04 Why Injustice Feels Physically Painful
19:19 When You Can't Start... But Can't Stop Either
23:17 The Secret to Switching Between Tasks
25:43 The Autism Trait Everyone Calls Laziness
27:33 The Shutdown Nobody Sees
32:57 Tiimo Advert
34:17 The Hidden Reason Some People Can Mask for Decades
36:08 Why So Many People Don't Realise They're Autistic
41:14 How Masking Slowly Erases Your Identity
43:13 The Most Emotional Part of an Autism Assessment
45:15 The Moment People Realise They've Been Masking Their Entire Life
50:56 The One Sentence That Makes Psychiatrists Think "Autism"
54:15 The Autism Assessment Reactions I'll Never Forget
57:22 Washing Machine of Woes (Audience Questions)
01:03:02 A Letter to My Younger Self
Download Dr. Sadiq’s free guide, Could This Be Me?, which explains why so many autistic adults were missed for decades, and what clarity could look like for you 👉 https://www.eleosclinic.com/wondering
Find Dr Sadiq on Instagram 👉 https://www.instagram.com/eleos_clinic/
Get 30% off an annual Tiimo subscription 👉 https://www.tiimoapp.com/offers/adhdchatter
Buy Alex's book entitled 'Now It All Makes Sense' 👉 https://www.amazon.co.uk/Now-All-Makes-Sense-Diagnosis/dp/1399817817
Order Alex’s book about Rejection Sensitive Dysphoria 👉 https://linktr.ee/adhdchatter?utm_source=linktree_profile_share<sid=9ffd8709-06df-444c-9936-c136fbd14d6e
Producer: Timon Woodward
Recorded by: Hamlin Studios
Trailer editor: Ryan Faber
DISCLAIMER: The content in the podcast and on this webpage is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your doctor or qualified healthcare provider. Never disregard professional medical advice or delay in seeking it because of something you have heard on the podcast or on my website.
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