In short
Paul Farmer, charity leader, discusses “belief making” through campaigning and connection—first in mental health, then ageing—arguing society is in denial about later life, with loneliness and ageism preventing older people from living well. He shares how Age UK tackles isolation via volunteer befriending and community activities, and how he wants to change the conversation about “later life” and healthy ageing.
Guest backgrounds
Paul Farmer (born 1966, Oxford; history degree at Oxford). Worked in heritage, then joined Samaritans as a press officer and listening volunteer; later campaigned at Rethink Mental Illness; became CEO of Mind (2006) and led the 15-year Time to Change anti-stigma campaign; took over Age UK in 2022. Personal life includes wife Claire’s bile duct cancer and death in 2019; he credits friends and grief support.
Key claims
Stigma blocks mental health and welfare access; loneliness in older age is like depression/anxiety in younger people; ageism is ignored in everyday “hurry”; healthy life expectancy has declined (Health Foundation: to 61).
Notable examples
Asda Halloween product “Mental Patient” costume withdrawn within two hours; work capability assessment moral dilemma; Stanley the Age UK befriendee rediscovering piano and singing; Claire’s “yellow eyes” leading to rapid diagnosis; Age UK connection via volunteer befrienders; ecotherapy/nature for mental health.
Written by AI. May contain mistakes. Listen to the episode to check what was said.
Chapters
Tap a time to open that second in VOIntroducing Paul Farmer
0:45 to 2:06
Discussion on Paul Farmer's career in the charity sector and his work with mental health.
“My cast away this week is the charity leader, Paul Farmer.”
The Importance of Belief Making
2:06 to 2:55
Paul Farmer discusses the phrase 'belief making' and its significance in his work.
“Paul Farmer, welcome to Desert Island Discs.”
The Challenge of Loneliness in Later Life
2:55 to 3:40
Exploration of loneliness among older people and societal perceptions of ageing.
“I'm not sure that we spend enough time thinking about how we want to spend that later life for our own well-being.”
Connecting Through Community
3:40 to 5:05
Paul shares a personal story of an older man who found community connection.
“It's a terrible indictment of how many older people feel and how our society thinks about the loneliness and isolation of older people.”
Music's Healing Power
5:05 to 6:19
Discussion on the role of music as a healing force in people's lives.
“I mean, it's just such a healing force, isn't it?”
Paul Farmer's Childhood
6:19 to 7:43
Paul reflects on his upbringing and family influences on his life and work.
“So let's go back to the beginning, shall we, Paul Farmer?”
Legacy of Paul's Father
7:43 to 9:11
Discussion about Paul's father, his life as a monk, and his impact on Paul.
“his main focus academically was on saints and he wrote a very well-known book now the Oxford Dictionary of Saints Still in print?”
The Impact of Paul's Mother
9:11 to 10:15
Exploration of Paul's mother's life and her influences on his values and beliefs.
“In many ways, what I saw in him, particularly in his later life, was somebody who both celebrated the opportunities that being older was.”
School Experiences and Sports
10:15 to 14:01
Paul shares his educational journey and the role of sports in his life.
“I grew up with a plain chant and polyphony on the record player.”
School Experiences and Early Sports
14:01 to 16:00
Paul discusses his early school experiences and the sports he engaged in.
“I arrived in the school, I was very young.”
Show all 31 chapters
University Life and Discovering History
16:01 to 17:49
Paul shares his experiences studying history at Oxford and finding his community.
“So my third disc is from the Communards.”
Traveling Adventures After Graduation
17:50 to 20:12
Paul reflects on his travels post-university and the personal growth he experienced.
“I hadn't found the kind of conversations, I suppose, that I really wanted to have.”
The Beautiful South and Loneliness
20:13 to 22:42
Discussion about a song that resonates with experiences of loneliness and isolation.
“We had scrapes and fun along the way to become an adventurer and turn up in Cairo with our first stop.”
Working with Samaritans
22:43 to 24:56
Paul talks about his time at Samaritans and the impact it had on his life and work.
“So, Paul Farmer, after university and after travelling, you found your way to working in a historic trust, your history degree coming in very useful, and you fell in love with the charity sector.”
Transition to Rethink Mental Illness
24:57 to 27:06
Paul discusses his move to Rethink and the challenges of campaigning for mental health.
“I've always felt like I can listen to people.”
Becoming CEO of Mind
27:07 to 28:00
Paul shares his motivations for becoming the CEO of Mind and tackling mental health stigma.
“I'm absolutely fully embracing the whole idea of later life.”
Paul Farmer's Journey into Mental Health Leadership
28:00 to 29:16
Learn about Paul Farmer's passion for mental health and his role at Mind.
“So, Paul Farmer, in 2006, you landed what you called the best job in mental health as the CEO of Mind.”
The Time to Change Campaign: Fighting Stigma
29:16 to 30:36
Explore the successes of the Time to Change campaign in addressing mental health stigma.
“What would you say were the key successes over that time?”
Moral Dilemmas in Charity Work
30:36 to 31:41
Paul Farmer discusses his moral dilemma around government welfare assessments.
“and we have to really hold that very strongly.”
Personal Loss and Grief: Paul Farmer's Story
31:41 to 33:19
Discover Paul Farmer's journey through grief after the loss of his wife Claire.
“Paul, it's time for some more music, your sixth choice today.”
Claire's Legacy as an Academic
33:19 to 35:35
Reflect on Claire Farmer's academic achievements and their emotional impact.
“Did you know straight away that her condition was very serious?”
Navigating Grief During a Pandemic
35:35 to 36:52
Paul Farmer describes the challenges of grieving during the COVID-19 pandemic.
“which is a kind of definition of bittersweet moments.”
The Ongoing Presence of Grief
36:52 to 38:18
Learn how Paul Farmer continues to carry the memory of his wife in his life.
“In hindsight, I mean, at the time, I just thought we've got a mental health crisis facing the country.”
Finding Healing Through Music
38:18 to 39:50
Explore how music and community helped Paul Farmer process his grief.
“We have two brilliant boys who remind me every day of her.”
Transitioning to Age UK: A New Challenge
39:50 to 41:21
Paul Farmer discusses his move to Age UK and its connection to mental health.
“as I was working my way through my grief.”
Addressing Aging and Health Challenges
41:21 to 42:07
Paul Farmer highlights the challenges of aging and health in society.
“And for you personally, you know, you mentioned that you are turning 60 later this year.”
Understanding Health Expectancy in Older Age
42:07 to 43:36
Explore the decline in healthy life expectancy and contributing factors.
“You've got people who are, despite the fact that people think that all older people are wealthy, there's so many people who face significant poverty.”
Beliefs About Aging: What to Keep and What to Drop
43:36 to 44:13
Discuss the societal beliefs about older people that should be changed.
“I mean we talked about belief makers at the beginning of the programme.”
Preparing for the Desert Island Experience
44:13 to 45:27
Paul Farmer shares his thoughts on solitude and strategies for coping.
“You are a collaborator by nature, I know.”
Choosing Music and Books for the Island
45:27 to 46:30
Paul discusses his final song choice and literary selections for the island.
“It was their songs in the car on holiday.”
Luxury Items and Final Thoughts
46:30 to 48:05
Paul Farmer reveals his desired luxury item and reflects on his experience.
“With sunshine on Leith Off I can Sunshine on Leith, The Proclaimers.”
Transcript
Automatic transcript. May contain errors.0:00Hello, I'm Lauren Laverne and this is the Desert Island Discs podcast from BBC Radio 4. Every week I ask my guests to choose the eight tracks, book and luxury, that they'd want to take with them if they were cast away to a desert island. For rights reasons, the music's shorter than on the original broadcast, but you can find a version with longer music tracks on BBC Sounds. Listeners will also get access to episodes 28 days earlier than everyone else. I hope you enjoy listening.
0:45My cast away this week is the charity leader, Paul Farmer. He spent his working life campaigning, fundraising and changing the national conversation around some of the most challenging issues in our society. He was a graduate with a history degree from Oxford when he found himself working for a heritage centre. He fell in love with the charity sector, moving to the Samaritans. His experiences taking calls from those struggling with their mental health made him a campaigner. Determined to do more than listen, he eventually moved to Mind, where he became CEO. As well as leading successful fundraising efforts that changed the scope of what the charity could do, he effectively lobbied the government, leading a 15-year campaign that helped to change legislation and the national conversation about mental health.
1:32His latest challenge is what used to be called old age, though we should probably use later life. He's taken the helm at Age UK and is determined to do the same with the conversation about ageing as he did for mental health, calling out ageism, campaigning for older people and encouraging all of us to prepare and plan for a happier, healthier, later life. He says, day after day, I see the belief and hope that many charities bring to the lives of hundreds of thousands of people in this country. The volunteers and the voluntary sector staff are the belief makers. Paul Farmer, welcome to Desert Island Discs.
2:08Thank you very much, Lauren. It's great to be here. So I think we should start with belief making, Paul. Tell me about that lovely phrase. I'm fortunate enough to work in a sector that brings hope and optimism to so many people's lives. It's creating that sense of belief that we can do things differently. We can make things better. And for me, it's changing big issues. It's changing causes that, you know, is the thing that I've really enjoyed doing so far. And the latest big issue, of course, is ageing. So you want to change the way that we talk about it, the way that we think about it and experience it.
2:42So you said that, you know, in many ways we're in denial about the realities of ageing. What are we not seeing? We've got this extraordinary situation now where people live for 20 or 30 years, even longer sometimes after retirement. I'm not sure that we spend enough time thinking about how we want to spend that later life for our own well-being. It was a tradition in this country that people just moved to the seaside. and increasingly we're hearing that people saying well what I'm not sure I want to do that because I don't know anybody there I don't have friends actually the things I really want to do are go to art galleries or spend time with my friends or with my family so we're not planning in that way it's a little bit like the work we did in mental health there's a sort of stigma about it so people don't talk about it as much yes and I know that loneliness is a really big focus for you Almost a million older people report that they are often lonely.
3:37That's a really sad statistic, isn't it? It's a terrible indictment of how many older people feel and how our society thinks about the loneliness and isolation of older people. In the world where I've come from, in mental health, it feels to me when I'm hearing older people talking about loneliness and isolation, it's the equivalent of younger people talking about depression and anxiety. Well, and we hear about it from younger people too, don't we, that sense of isolation. So what do we do about that, about those older people and the feeling disconnected, feeling isolated? Connection is a huge part of what we do at Age UK.
4:16We connect people. Many of them are volunteer befrienders who give their time to spend a little bit of time with an older person. A lovely man called Stanley, who sadly died just this year, who I met in Lincoln at our local Age UK. his wife had died and he had lost all connection with his community really a befriender found him they found each other and he started to rediscover the thing he loved doing the most which is to play the piano for people went along to a session and he was at the piano and there was a singing session with other older people singing they got me to sing very badly and you could see his sense of pride in what he was doing.
5:01He was connected back into his society. And music. I mean, it's just such a healing force, isn't it? In those circumstances. Speaking of which, Paul, you're going to share yours with us. So I think we should get started with your first choice today, disc number one. What is it and why is it going to the island with you? So my first disc is Aretha Franklin, Think. She's the Queen of Soul, of course. For me, this is music at its very best, her range, her voice, her experience. And it's a song kind of obviously about freedom. And so for me, it's a clarion cry for campaigners on all kinds of issues.
5:37It's a reflection of what so many of us do in the charity sector to empower people to have a voice, to be more free. And so this is such a powerful wake-up song for all of us to think about what we can do. You better think, think, think about what you're trying to do to me, yeah. Let your man go, let yourself be free Oh, freedom, freedom, freedom Oh, freedom, freedom
6:08Freedom, freedom, freedom Oh, freedom Aretha Franklin and Think. So let's go back to the beginning, shall we, Paul Farmer? You were born in 1966 in Oxford, the eldest of two boys, to David and Anne. How would you describe family life when you were a little boy? So we were quite a quiet family, quite private family in many ways. We had a lot of sports in our life. You know, we have very fond memories of the summer of 76, where we spent a lot of time running around, playing lots of cricket. Boiling hot. Boiling hot, exactly. Boiling hot summer. The other part of it was, I suppose, this kind of immersion in history, because my father was an academic, history academic, medieval historian.
6:54And so family holidays always involved castles, abbeys, priories. A cagoule in a ruin. Absolutely. Except in 1976 where it was always hot and sunny. But every other year it was nearly always pouring with rain somewhere. But that just gave me a sense of the heritage of this country. Oh, how wonderful. Well, I had one of those childhoods too, so I can relate to that. But your dad's story was very unusual, wasn't it? because before he became an academic and a historian, he'd been a monk, a Benedictine monk for, what, 20 years? Yes. So not many people have a monk as a father. He was a Benedictine in an abbey in the Isle of Wight called Quar Abbey.
7:31He was one of eight children, a large Catholic family, four of whom at some point or another were in religious orders of some description. Oh, my goodness. 50%. It was a healthy contribution. He joined the Benedictines and was there as a monk for 20 or so years. his main focus academically was on saints and he wrote a very well-known book now the Oxford Dictionary of Saints Still in print? Still in print It was one of the proudest things for me to do to help him produce the last edition and I was his sort of junior researcher going off into using the internet to source some content for some of the newly canonised saints And would he pull out examples?
8:11Was it like, you know, oh well, St Pancras wouldn't have approved of you doing, you know His all-time favourites were St Bede and St Cuthbert. Oh, that's the North East Catholic here, I've got to agree. So I remember being taken by my parents and three of his PhD students in a tiny car on what was described as a holiday to Jarrow, Monk Wehamath, to Durham, and having all the stories of Bede and Cuthbert instilled into me. And, you know, these incredible people whose connection to God was very powerful, but actually their ability also to communicate that to others. And as you said, you know, your dad, he lived a very long life.
8:52And you've described his experience as a guide star for the work that you're doing now. In what way? Well, he finally passed away only a couple of years ago, aged 98. Very sadly, my mother died when she was in her mid-60s. So he spent nearly 40 years of his life on his own. Because there were a bit of an age gap between them. Nearly 10 years between them. In many ways, what I saw in him, particularly in his later life, was somebody who both celebrated the opportunities that being older was. I remember one day he told me, I'm going on holiday. I said, where are you going? Zimbabwe. I thought, OK, interesting.
9:25So he did embrace that kind of sense of opportunity. Yeah, good for him. But I also remember I took him to Bruges for a weekend and we were standing on St Pancras Station. He was probably in his mid-80s at that point. who's a little bit shaky, I suppose. And the train was called and everybody just poured around him as though he was a bag. I've seen that. I've seen that before. Oh, gosh, you know, we're not really thinking, are we, about how older people are being treated. So that's a very strong image. And when I think we talk about ageism, that's a kind of an image for me about how do we make sure that, in all our hurry and our rush to get on with our lives that we don't just ignore people.
10:11So I think we should have some music, Paul. It's your second choice today. What have you gone for? I grew up with a plain chant and polyphony on the record player. So this is the Agnes Day from the Mass for Five Voices by William Byrd. William Byrd was writing this for recusant Catholics in the time of Elizabeth I. And if you can imagine small numbers of people in a tiny space worshipping in the face of real challenges. So these are people, what, in secret chapels? We're singing this together. Yes, they're hiding from the authorities who are chasing after them in many ways. And it's such a strong, powerful voice of what faith feels like, I think.
10:54And in this piece, it brings together these five voices and rises to a crescendo at the end in the Dona Nobis Pace, which is Give Us Your Peace.
11:40Amen.
12:04Part of the Agnes Day from William Byrd's Mass for Five Voices, performed by The Sixteen, with Harry Christopher's conducting. So, Paul Farmer, we've talked about your dad, who just sounds wonderful. Tell me about your mum, Anne. How had she met your dad in the first place? Her father had died when she was very young during the war. It was a very traumatic experience. She was an only child and her and her mother were left on their own. And she was really very affected by this. And so she actually joined a convent herself and became a nun. So she was in a convent for a while and re-emerged in the 1960s.
12:44My father re-emerged in the 1960s. Instant common ground. I think you could kind of join the dots fairly easily. They found each other in Oxford. My father was teaching and researching. My mother was teaching as well. So they connected. They obviously had quite a lot in common. and so it's one of the things that both my parents had maybe as a result of their experiences with whilst they had a really strong connection to their faith and and encouraged us to do the same they were also quite rebellious so they didn't necessarily see the institution of the church as something to just simply adhere to so they would encourage us to think in a quite a constructively critical way I suppose my mother was a teacher in a convent school for a while until the day that she decided that she should wear trousers.
13:28So this would have been in the early 70s, I suppose. And that point, that wasn't something that was approved of. She left the school because she wanted to make a stand about the ability of women to be able to wear whatever they wanted to. And I think it was quite a good example of how she and my father were prepared to say, yes, there are all these rules and so on and so forth, but don't just say they're the rules and you've got to follow them. Yeah, so encouraging that critical thinking in you and your brother. So you were obviously, Paul, a very enthusiastic student. How did you get on at school?
14:02School was... I arrived in the school, I was very young. I got a scholarship into the school. So they decided that what they called the third year, which was the equivalent of year nine, wasn't really worth bothering with. So I was propelled into the year ahead. They just skipped your head into, what is that, the beginning of GCSEs? Oh, no. I don't think that was very good for me, actually, because I was in a class with lots of people who were a lot older than I was. And I arrived, I was 12 and most of the other people in the class were 13 and a half. And that doesn't sound like a lot. You're physically small as well.
14:34Yes, I am physically small. And that also meant that you're, you know, I think you can become a target because you're different. You're standing out. But, you know, I think actually it was the learning and sport that probably carried me through. What was your sport? I would play anything. probably as an escape to be honest but i would play rugby football cricket as i stopped growing i would become further and further in the backs in rugby i was quite quick and you're still sporty now aren't you so important for my mental health didn't i hear that you've been doing walking cricket walking cricket well so lauren we need to talk about walking sport yeah can we just do that for a minute yeah so walking sport as a not naturally fast person i'm all in go well Well, so walking sport is something which is, as you can imagine, is a kind of slightly slower version of running sports.
15:21Walking football, walking rugby, walking tennis, walking cricket and walking golf or golf, as it's called. And we encourage this because it's a really great way for older people to stay physically active. But it's also something that, again, creates that sense of connection because you go and spend time with other people and you have an argument about the score or whatever it might be. And in fact, I was up in Newcastle with our local AGK doing walking football and my goodness me, it's competitive. You're taking it serious. Yeah, they're not going fast, but they mean it. Oh, I love the sound of that.
15:57Definitely going to be getting involved. All right, Paul, let's have some more music. It's your third choice today. What's next and why? So my third disc is from the Communards. We're in the 1980s. This was my kind of awakening decade when it comes to music. The voice of Jimmy Somerville is just extraordinary. Of course, it's the Reverend Richard Coles doing some of his finest work. And for me, it was a student disco classic. It's Don't Leave Me This Way. And it just reminds me of the common room in St Peter's, sound of the 80s, the student discos, the sort of smell of lager.
17:01The Communards and Don't Leave Me This Way taking you back, Paul Farmer, to your student days. So I think that's where we should go next. You studied history at Oxford. Were you following in your dad's footsteps? Definitely. I think it was almost meant to be that I would do history. It was definitely my favourite subject at school and it's the only thing I really seriously thought about applying for. I went to St Peter's, which is a very unpretentious, lovely space, and immediately I just found my home. I felt the combination of the people and being able to really immerse yourself in the subject was an utter joy.
17:37Yeah, you've called it your best possible liberation. So from what? Well, I think I was looking for something and I hadn't found that something at school. School did improve, but I definitely hadn't found my people. I hadn't found the kind of conversations, I suppose, that I really wanted to have. And so Oxford was that place where suddenly you're surrounded by people who are similarly really curious about the world, incredibly bright. They've also all got all, everybody had all the insecurities that you have when you're 18, not really being sure, not really knowing, but being curious to try and test things and being encouraged to do that was something that it just felt like a place, you know, where you could be yourself.
18:27So if we'd met you back then, who would we have been encountering? What would we have seen? Oh, terribly badly dressed, awful hair, large glasses. So big glasses. What was the hair doing? It was sort of long, not long, long, but just a bit messy, really, a bit floppy. 80s floppy curtains. Yes, exactly. I don't think it was nearly as fashionable as that, even. You would have seen somebody who was up a lot. I mean, both awake a lot, but also engaging with people. I met some fantastic people and I met a group of friends who are the most important friends I've had because they are still with me. There's a dozen of them and we're all still going strong.
19:09And that is such an important foundation. And you also met your future wife, Claire, while you were there. I did. How did it happen? My only friend from school who came to Oxford at the same time was at Lady Margaret Hall, Richard. And Claire was at Lady Margaret Hall. And I met Claire through that group. I think I fell in love with her immediately. I think it's fair to say it took a while for us to get together. So on her end, there was a bit of work to do. There was work to do. What was she studying? She was studying geography. She had come back from doing a year's work with Mother Teresa in Calcutta.
19:44She was in awe of that. And we were the closest of friends for a long time, in fact, until after university, when we finally got together and everybody breathed a sigh of relief. So you graduated in 1987 with your degree in history, but you didn't have a clear career path at that point. So what did you do? I did what everybody who has no idea what they want to do, go travelling. I went travelling with two of my Oxford friends, with Richard and Jo, for a year. We covered a lot of ground, 18 countries. It was a joy. We had scrapes and fun along the way to become an adventurer and turn up in Cairo with our first stop.
20:25It was an extraordinary city. It was just a sensory overload. And what did you learn about yourself? Because, you know, you painted a picture of yourself at the beginning of uni as being, you know, quite shy and a bit unsure of yourself, enthusiastic, but not quite knowing who you were yet. Did that help you find yourself? I think definitely. You just have to open up your eyes and look at the wonder of the world. And no internet in those days, just a rather kind of dogged, lonely planet guide to help you find your way. and so I think you learn the art of conversation and you learn the art of asking people for help and how do you again create that kind of sense of connection with other people who in the first instance you might not have anything in common with but actually then through that incredible hospitality you sit down, you have a cup of tea with people and you find a way to communicate It sounds like a fantastic trip and I'm sure you've learned a lot about yourself we'll find out where it took you next in a moment but first I think we should have some more music your fourth disc.
21:25What's next and why? The Beautiful South have been a part of my life for a long time. They're definitely the kind of songs that we'd play in the car journeys, going on holiday with the children. And they've certainly always been there. And I love the witty lyrics of Paul Heaton and that beautiful voice of Jackie Abbott. So this song is Rotterdam and they've actually chosen it because it talks about being alone in a city and loneliness and isolation is something that I personally experienced but I think I've also seen it so many times in my work in mental health and now with older people and so for me it's that kind of sense of really understanding what facing isolation can feel like.
22:11The whole place is pickled, the people are pickles for sure And no one knows that they've done more here than they ever would do in a jar This could be Rotterdam or anywhere, Liverpool or Rome Cos Rotterdam is anywhere, anywhere alone Anywhere alone The Beautiful South and Rotterdam So, Paul Farmer, after university and after travelling, you found your way to working in a historic trust, your history degree coming in very useful, and you fell in love with the charity sector. So after that, you joined the Samaritans, and I know that that was a formative experience for you. Tell me about it. Why?
23:01I arrived at the Samaritans as a press officer. I think I'd be honest and say I didn't really know very much about what that entailed. But as soon as I walked in the door of the organisation, I felt like I'd found a true home. it was clearly fulfilling a really important function in society and it was doing it very quietly actually it was just doing its job 25 000 volunteers millions of calls from people who were lonely isolated feeling suicidal i suppose my job was to try to tell that story to a wider audience to try to encourage people to call. That task of picking up the phone and ringing the Samaritans is not easy for somebody.
23:49So how could we make that easier for people and to give people that sense that there was somebody there, even in the middle of the night, even in your darkest moment. And for you, you were that person for people who called in sometimes. What was that like for you? I know that's the experience that you say made you a campaigner. Yes, I became a listening volunteer. I learned two things, actually. The first thing was the power of listening. I think as a leader, it's incredibly important to be a good listener and not just to listen to the words, but to listen to what's going on in between the words, to listen to the gaps and the silences.
24:25And the second thing I learned was the experiences of many people who were calling were that they had mental health problems. And Samaritans could do something to help, but we could only do a certain amount. So that connection to those callers was an absolute driver for campaigning work in mental health. And how easily did you adapt to having those conversations? I mean, you must have been still quite young to talk to people in crisis in their most difficult moments. That's no small thing. I've always felt like I can listen to people. Maybe it's living in a quiet house or maybe it was being at university.
25:05It was probably all of those things. But I kind of felt like I could listen. I can give people time in that sense. and being able to give people time as a Samaritan volunteer is precious. So, Paul, you then moved on to Rethink Mental Illness, which was formerly known as the National Schizophrenia Fellowship. Tell me a bit more about making that move from listening to actively campaigning. So I loved the Samaritans dearly. At the time, as an organisation, they didn't really see themselves as a campaigning organisation and I was getting very fired up about the need to do some campaigning. so I got a job at Rethink and was able to again learn the art of campaigning and influencing I turned up at Rethink in 1997 I went to my first party conference the Labour conference of 1997 we had a fringe meeting to talk about mental health and mental illness there were more people on the panel than there were in the audience oh my god so how many in the audience then what I mean three three and it was 1997 there was quite a lot of partying I think given the nature of where the Labour Party were at the time.
26:12They were all listening to D. Ream and all of that at that point. Conceivably. So it couldn't be more different now. What did that tell you about how far you had to go, where things were? So I think we knew that mental health was hugely stigmatised. I mean, would we even have used the phrase mental health at that point? I feel like it was mental illness you would hear about, but it wasn't even in common usage. We definitely didn't think about the idea that we all have mental health. Mental illness was something that other people had. And in kind of tabloid terms, it was schizo, knife, axe, murderer, that kind of language.
26:44So people were pushed to the margins. And despite the fact that one in, this is not a new number, but one in four people experienced mental health problems, the image in the public's eye, in the media eye, in the politician's eyes was of this group of people who were dangerous, basically. And therefore, people didn't want to talk about it. They were frightened. All right, Paul, it's time to go to the music. your fifth choice today. What are we going to hear? It is Nina. It is Nina Simone. It's feeling good. I'm going to be 60 this year. I'm absolutely fully embracing the whole idea of later life.
27:19And it's a tribute, actually, for me, to helping to age gracefully or maybe age disgracefully. And for me, it's also that reminder of that positive contribution that older people can make.
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27:37I feel, river running free, you know how I feel. Blossom on the tree, you know how I feel. It's a new dawn, it's a new day, it's a new life for me. And I'm feeling good. Nina Simone and Feeling Good. So, Paul Farmer, in 2006, you landed what you called the best job in mental health as the CEO of Mind. What attracted you to the job? I'd already fallen in love with mental health as a cause. The Mind job was just the job to do in the sector. And Mind has got this fantastic heritage of being a campaigning organisation that stood up against all kinds of injustices over many decades. and it was absolutely a dream job for me.
28:36But it was time to get going because the issue to tackle was stigma because everything went back to the stigma around mental health. This dark cloud that hung over the narrative, the conversations that we're having publicly, but much more importantly than that, the dark cloud that hung over individuals' lives on a day-to-day basis, trying to get a house, trying to get a job, trying to have a relationship. The stigma was blocking people from having a normal life. So, Paul, that was the Time to Change campaign and it lasted for an unbelievable 15 years from its launch in 2007. What would you say were the key successes over that time?
29:19So we were tracking public opinion and we could see that there was improvement happening. And in 2013, at Halloween, Asda put on their online store a costume for Halloween called Mental Patient. It was blood splattered and you could buy for an additional£2.99 a plastic cleaver. Our campaigners spotted it and this was in the early days of social media and celebrities like Alistair Campbell and others and Stephen Fry who was supporting us at the time came into the campaign. Two hours later, the product was withdrawn. And at that moment, we thought we're on to something here. The tide was changing.
30:04That costume in previous years, nobody would have batted his eyelid about. Now, it wasn't acceptable. So you were doing a lot of work at this point, and you were on a work and pensions panel that you actually resigned from in 2012. And that was over the work capability assessment. You said you had a moral dilemma. Why did you decide to walk away? What was that dilemma? So for lots of us as charities, we have to make sure that we retain our independence. Our independence is hugely important to the way in which the people who support us see us and we have to really hold that very strongly. But we also want to deliver change.
30:45And so when you deliver change, you engage with any government, whatever political party is running it. And in this case, we were engaging with a then-Conservative government on changes to welfare benefits. And I was invited to join a group to review the work capability assessment, which is basically the way in which people's applications for benefits are decided with a particular focus on mental health. and it's sometimes the case that some departments in some governments at some time set up working groups in order to validate an answer an answer which has probably already been predetermined and that's what it felt like it really wasn't an easy choice i think my my instincts are usually to try to collaborate and create change from the inside but in this case it just became really apparent that wasn't possible.
31:34And I think ultimately, probably better changes were made in the long term, but it took a long time. Paul, it's time for some more music, your sixth choice today. What's next? Well, we're going to Nick Cave, Into My Arms. Nick Cave is an extraordinary singer and songwriter. I know you've talked to him here on Desert Island Discs. This song is just one of the most extraordinary songs. He described it as a mutual embrace and a lifeline that connects people in their humanity, mortality and love. And I saw him a couple of years ago, I was lucky enough to see him, and this song was one of the most powerful experiences I think I've ever had in a concert venue.
32:17It makes me think about the people I love, Claire, my boys, my family, my friends, and how grateful I am for their love and support. the song is about the power of connection but it also describes how you feel when that love is absent Into my arms, oh Lord Into my arms, oh Lord Into my arms, oh Lord Into my arms
32:59And I don't believe in the existence of angels. Nick Cave and the Bad Seeds and Into My Arms. So, Paul Farmer, you married Claire in 1994 and the two of you had two sons, but in 2017 she was diagnosed with a rare form of cancer, which must have been a huge shock. Did you know straight away that her condition was very serious? Yes, it was the kind of best of times, worst of times as a year. I was doing a huge report on mental health in the workplace. Everything was going well. We got in the car. We were going to an event for one of our godchildren. And I remember just looked into her eyes and her eyes were yellow.
33:43And I said, darling, your eyes are yellow. You look like you've got jaundice. And that's what it looked like. Immediately, it was clear that something was very wrong. we got very quick help actually a quick diagnosis of a rare liver cancer called bile duct cancer which doesn't have a great survival rate and i suppose we were always on an uphill struggle yeah but you try don't you you try your best to try to find the right treatment to get the right help to get the right support our oldest ben was at university our youngest tom was doing his gcse when in 2019, the worst day, when she died. She went into treatment and she'd actually been made one of the first professors of human geography, hadn't she, while she was in hospital?
34:42You got the letter. Yes, Claire's academic work was extraordinary. She was in many ways an academic before her time. She had done a PhD as a geographer back in the 90s on the experiences of young Muslim women in Watford. She grew into a very respected and highly renowned geographer covering faith, and we used to have loads of conversations about faith, about gender. She was a very strong feminist, and we used to have lots of conversations about that, about migration and youth. And whilst all this treatment was going on, we were in Hammersmith Hospital one day. She was in the hospital receiving some treatment and wasn't coping that well.
35:23And an email comes in and she, typically Claire, she would have her phone and still kind of be working even though she really couldn't. And there was an email saying, you've been made a professor, which is a kind of definition of bittersweet moments. Hardly any women geographers as professors and here we were in this moment where she was being given this fabulous accolade at the same time she was not really far away from death. I mean she sounds absolutely extraordinary and it must have been devastating to lose her for you and your boys. I can't imagine. But also the pandemic must have followed pretty quickly so it must have been doubly traumatic and just surreal to go through that while grieving.
36:10Claire died in July 2019 and I think it's fair to say that the next six months were a total blur, propped up by the support of friends family our local community in hamwell and ealing but very much propped up i think and then the pandemic ben came back from university there were three of us in the house and that was really tough because it just felt wrong we were in this space built for four and there were three of us yeah but i think in some ways it was helpful because we were together as a three and we were able to talk. And I think we did quite a lot of our grieving in that space. And for you, I mean, obviously, CEO of a large charity on top of all that, how on earth did you keep going?
36:59I actually don't know. In hindsight, I mean, at the time, I just thought we've got a mental health crisis facing the country. and actually an organisational challenge because shops were sharp, where's the money going to come from? I don't think I've ever worked so hard. I just actually don't know how I coped. I got by because of the people around me, my friends, the friendship group, the family. What did they do to support you? I think the most important thing was that people were there and people would check in. I probably was just like, oh, that's really nice that they've got in touch And as you reflect on it, you think people were really looking out for us.
37:42And that gift of generosity and hospitality from people around you is so, so important when you're experiencing that very profound sense of grief. And I don't know how the timelines for these things work for me. You know, thinking about the losses in my life, it's one of those things where you can't believe it's all that time and yet it feels like five minutes. I mean, has the way that you carry your grief today for Claire changed over that time? In a very deep sense, no. She's always there. She's in my soul. She's in my heart. She's in my house. We have two brilliant boys who remind me every day of her.
38:24You're saying this with the biggest smile, which is lovely to see. Both of them are just the most incredible credit to her. She was a brilliant mother and a mother who cared deeply, deeply for both of them. And you just see the product of that in them. And that gives you a leap of joy in amongst a sea of grief. Paul, I think we'd better go to the music. It's your seventh choice today. What are you taking to the island next? So one of the things that has really helped after Claire died has been the support of friends. and in particular a group of men who got together and formed a music club. And for me, music and exploring new music has been really helpful for me personally as a place to go, something I probably didn't do that much of.
39:16And so this track is by a band that probably nobody's heard of called West Side Cowboy. I saw them at a festival and I've subsequently seen them at a gig. and they're a new and up-and-coming band. Who knows if they're going to be the next best thing or not? Well, if they're going on Desert Island Discs, it's a pretty good start, isn't it, Paul? Hopefully. They epitomise for me what happens when you go and listen to some new music and it opens your mind and it opens your heart. For me, also the support of the music club group was also a really important part of me as I was working my way through my grief.
39:52So this is West Side Cowboy, The Drunk Surfer. The way he can dance We'll pretend like he's good for us While he's just lying He's coming boys He's been doors for a gun For a good time He can one day What it's like I'm gonna be inside That's the one who's trying
40:24Westside Cowboy the drunk surfer. So Paul Farmer, you took over Age UK in 2022. Why was that the right time to move to your new role? I loved working at Mind. As I said, it was the best job in mental health. I'd been there for 16 years. I think that's a very long time for anybody to do a job. I think it was a moment for me to look for something different, but close. A lot of the work we do at age uk is in fact mental health work by another name but i could also see the connection with the issues around stigma and ageism as a form of stigma which prevents older people and society's perceptions of older people from getting to the kind of place that we really should get to so huge challenge and i really wanted to to walk into that challenge and see if I can make a difference.
41:21And for you personally, you know, you mentioned that you are turning 60 later this year. Has being in that job and working on those projects helped you to look forward? Because, you know, your plans for yourself personally must have been completely upended in, you know, the years preceding this and losing Claire. I think when I started to really think about this job and the cause of ageing, first of all, I immediately realised how little I really thought about it. I just made a sort of flat pack set of assumptions that you'd unpack at some point around me and Claire being together, doing all the kinds of things that you do in retirement, but never had a conversation about it.
41:58But of course, as soon as you start thinking about that, you think about all the other older people who are in all kinds of different spaces. You've got people who are, despite the fact that people think that all older people are wealthy, there's so many people who face significant poverty. And although we're living for longer, we're not living more healthily for longer. Yes, this is one of the really interesting statistics. So the Health Foundation published a study earlier this year and that talked about the healthy life expectancy of people in the UK. And that's declined by a couple of years to 61.
42:34So that's looking at this idea of health span rather than lifespan. I mean, why are we going backwards? I think there's a lot of reasons. There seems to be good recognition that diet, lack of exercise, the sort of pressures of modern life mean that we don't have the level of health that we did in a previous generation. As we age, there are some conditions which almost inevitably are more likely to come on. So you're more likely to have challenges with your eyesight or your hearing or dementia, which is one of the biggest challenges that we face in later life. and that impacts on the idea of healthy life expectancy.
43:16So we have to think about what we should do and all of us, I'm encouraging all of us to do this, to think about our own health. So there's things we can do but we have to tackle it because the consequences for the health service of a population that is increasingly unhealthy are huge. I mean we talked about belief makers at the beginning of the programme. What beliefs would you like listeners to change or take away from our conversation today about older age and older people? What can we drop and what should we keep from today? I think we should keep the idea of the contribution that older people make to society.
43:57We should drop the idea that when you reach a certain age, you should just sit in a corner and be quiet. And I think we should keep the idea of connection and we should drop the idea of loneliness and isolation being almost inevitable. Well, speaking of loneliness and isolation, unfortunately for you, we are about to cast you away to the desert island, which might be a pretty lonely experience. How will you be all by yourself there? You are a collaborator by nature, I know. I'm a collaborator. I'm a people person. I'm really not going to like this very much, I don't think. I've got a few strategies in place to try to make the most of it.
44:34I also try and make the most of it, but I don't think it'll be good. How are you approaching it? Well, first of all, I'm always struck on Desirelandists that people rarely talk about Shakespeare and the Bible, which, of course, are the first two books. I need to perform. I think I've decided I don't need an audience, so I will learn the entirety of Shakespeare's canon and perform them to the creatures that may or may not be interested. Fantastic. Your false staff will be unleashed. It will be incredible. So what about any other strategies? I mean, will anything that you've learned with your work at Mind, will that help you support your mental health?
45:11The things that I do to look after my mental health is physical activity and taking an interest in the world around you. So obviously I have this image of a kind of deep hinterland, lots of sort of jungle to explore and lots of nature. at mine we did a lot of work on thinking about how good nature is for your mental health i think we coined the term ecotherapy so for once it would give me a chance to slow down and take advantage of nature okay so that's the silver lining that you can look forward to on your island well we will also let you have one more track before we send you there your final choice today please what is it so this is the song for claire it's the proclaimers sunshine on leith we love the Proclaimers.
45:55It was their songs in the car on holiday. Clare's sisters both live in Scotland, so you've got this very Scottish connection. This song immediately reduced me to tears for quite a long time and still gets me very close. But it's my personal tribute to her.
46:30While the chief With sunshine on Leith Off I can Sunshine on Leith, The Proclaimers. So, Paul Farmer, it is time. You are off to the island. So you will get the Bible, the complete works of Shakespeare, which, as we've heard, is going to be incredibly useful. And you can take one other book. What's that going to be? So I'd love to read more poetry while I'm on the island. I'd like to take some poems by Simon Armitage. Another former castaway. Who I love. The only problem is that Simon Armitage only produces very small books of poetry. I'm a little bit worried about this. So we got in touch with his team and asked if he would contribute a boxed set of his collected works.
47:16A complete works. It'll have to be stitched together, mind you. I can't give you more than one book. Well, he said that it would be specifically designed both waterproof and termite resistant. So I'm hoping, Lauren, you'll give me that. Absolutely, I will. With pleasure. Thank you. You can also have a luxury item. What would you like? I love playing sport, cricket and tennis in particular. So I'd like a bowling machine, obviously solar powered, with about 100 balls, 50 tennis balls, 50 cricket balls. So you want them to be limited? You don't want unlimited balls? Yes, because when I hit them, I have to go and get them and put them back in the bowling machine.
47:50So that will keep me active, keep me moving. I think my skills will just about get to making some kind of bat or racket. So that's why I'd be happy with 100 or so. If you give me 200, that would be even better. Oh, fantastic. You can have as many as you like. And finally, which one track of the eight that you've shared with us today would you save from the waves first? It has to be Sunshine on Leith by The Proclaimers. Paul Farmer thank you very much for letting us hear your Desert Island Discs Thank you so much Lauren
48:32Hello it was lovely chatting to Paul Farmer I hope he's very happy on his island running I mean walking walk don't run after those cricket balls there are more than 2 ,000 programmes in our archive for you to listen to. We've cast away many other campaigners over the years, including Marjorie Wallace, Julia Cleverden and Sue Ryder, Baroness Ryder of Warsaw. You can hear their programmes if you search through BBC Sounds or on our own Desert Island Discs website. The studio manager for today's programme was Jackie Marjoram, the executive production coordinator was Susie Roilance, the assistant producer was Christine Pavlovsky, the content editor was Mugabe Turia and the producers were Sarah Taylor and Hannah Hufford.
49:12Join me next time when I'll be casting away the singer and songwriter Shania Twain.
49:39Gods and monsters, wandering heroes and barefooted philosophers. That's how we often think about ancient Greece. But it's much more varied and more curious than that. I'm Mary Beard, and in Being Greek, my new podcast from BBC Radio 4, I'll be telling the stories of the real people of ancient Greece. From a mobster with dangerous ambitions... If you're a would-be emperor, then emperors have power to do whatever the hell they like, really. To the unrepentant husband who's murdered his wife's lover. Those of us who go in first see him lying on the bed beside my wife. Those who came in in the second wave see him standing naked.
50:23Subscribe to Being Greek with Mary Beard on BBC Sounds.
From the publisher
Paul Farmer is a charity leader who has spent his life campaigning, fundraising and changing the national conversation around some of the most challenging issues in our society. Currently at the helm of Age UK, he previously spent 16 years as the CEO of Mind, the UK’s largest mental health charity.
Paul was born in Oxford, the son of a former Benedictine monk and a former nun. He read history at St Peter’s College, Oxford, where he met his future wife, Claire. After graduating, he found a role working for a heritage centre and fell in love with the charity sector, moving to the Samaritans. His experiences taking calls from those struggling with their mental health awakened a passion for working in the mental health sector.
In 2006 he moved Mind, where he became CEO. He led a fifteen-year campaign that helped to change legislation, and the national conversation around mental health. For the past few years, he has campaigned for older people as Chief Executive at Age UK, and encouraged the public to prepare and plan for a happier, healthier later life.
Paul lost his wife, Claire, to cancer in 2019. He lives in West London.
DISC ONE: Think - Aretha Franklin DISC TWO: Part of the Agnus Dei from the Mass for Five Voices, performed by The Sixteen with Harry Christophers conducting - William Byrd DISC THREE: Don’t Leave Me This Way - The Communards DISC FOUR: Rotterdam (Or Anywhere) - The Beautiful South DISC FIVE: Feeling Good - Nina Simone DISC SIX: Into My Arms - Nick Cave & The Bad Seeds DISC SEVEN: Drunk Surfer - Westside Cowboy DISC EIGHT: Sunshine on Leith - The Proclaimers
BOOK: A collection of Simon Armitage’s poetry LUXURY: A bowling machine with a combination of cricket and tennis balls CASTAWAY’S FAVOURITE: Sunshine on Leith - The Proclaimers
Presenter: Lauren Laverne Producer: Sarah Taylor and Hannah Hufford
Desert Island Discs has cast away many campaigners to the island over the years including Marjorie Wallace, Julia Cleverdon, and Sue Ryder, Baroness Ryder of Warsaw. You can hear their programmes if you search through BBC Sounds or our own Desert Island Discs website.




