I thought I was lazy. Turns out I had a sleep disorder | Lindsay Scola

0:02You're listening to TED Talks Daily, where we bring you new ideas to spark your curiosity every day. I'm your host, Elise Hu. Is your tired different? It's a question sleep expert Lindsay Scola wishes someone had asked her years ago. For nearly two decades, she was so exhausted that she'd slip into a bathroom stall in the middle of the workday, lean her head against the wall and fall asleep just to make it through. She wasn't lazy. Something else was going on entirely, and every doctor she saw waved it off. Hundreds of millions of people worldwide are walking around exhausted, untreated, and thinking it's normal to feel this way.

0:41We've been taught to push through exhaustion instead of asking about it. This isn't an epidemic of laziness. It's a failure of diagnosis. Lindsay was eventually diagnosed with narcolepsy, a neurological condition, after 19 years of symptoms, shame, and self-doubt. In her talk, she explains why misdiagnosis is shockingly common and points to a startling gap in how doctors are trained. In medical schools worldwide, doctors receive on average less than three hours of education on sleep, total, across their entire medical training. She makes the case that sleep disorders are one of the most under-recognized health problems we have, affecting as many as one in five people.

1:27Because for Lindsay, and she believes millions more, getting the right diagnosis won't just change how you feel, it'll change who you can become. That's coming up right after a short break.

1:43Lindsay Scola: With no fees or minimums on checking accounts, it's no wonder the Capital One bank guy is so passionate about banking with Capital One. If he were here, he wouldn't just tell you about no fees or minimums. He'd also talk about how most Capital One cafes are open seven days a week to assist with your banking needs. Yep, even on weekends, it's pretty much all he talks about in a good way. What's in your wallet? Terms apply. See CapitalOne.com slash bank. Capital One N.A. Member FDIC.

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4:01And now, our TED Talk of the day. I was one of those overachiever kids. 12 things going at once, already dreaming of changing the world. And I was so excited to go to summer school at Yale when I was 16. I didn't say I was cool. The classes were tough and thought-provoking, but that's when something strange started happening to me. I'd be sitting in class, completely engaged, when suddenly a fog rolled in. My thoughts fuzzed, my senses dulled, the world blurred, like someone was slowly turning a dimmer switch on my brain. I'd pinch my thigh, tap my foot, anything to fight this overwhelming urge to sleep.

4:45Once I bit my tongue so hard it bled. And then the thought would hit me like a hammer. If I don't go to sleep right now, I'm going to die. So somehow quietly, I'd excuse myself, slip into a bathroom stall, lean my head against the wall, and fall asleep. When I told my family doctor, she said, you're busy, busy people are tired. It felt dismissive, but also like some secret initiation into adulthood. I had big dreams, a lot to accomplish, so I figured I just had to get better at being awake. When I started working in professional politics, exhaustion was a badge of honor. The later you stayed up, the more coffee you drank, the more worthy you felt.

5:28Society convinced us that if we were tired, we were doing it right. In 2008, I joined the Obama advance team. The people responsible for everything from logistics to aesthetics on the campaign. But the thing about advance, you're in a new city every four to six days, regularly pulling all-nighters, on behalf of the future president of the United States. The stakes were high, it was fast-paced, everyone was exhausted. I was surrounded by the best, the brightest, and the busiest. But I never saw them sneaking into the bathroom to nap like I did. I thought I must be lazy, that I lacked the willpower everyone else seemed to have.

6:13And underneath all that drive, I felt utterly alone in my inability to keep up. As the years passed, I kept bringing up my sleepiness to doctors who kept pushing the same glossy handouts on improving my sleep hygiene. My gut knew something else was going on. And then came the dreams. I'd wake up, frozen in bed, convinced something terrifying was in the room. I could see it, but I couldn't move or scream. One doctor said it was just me manifesting stress from my job. One night I woke to a child whispering, can I hold your hand? The next day I saged my entire bedroom, like never crossed my mind I might have a neurological disorder.

7:02At 35, I hit my wall. I could fall asleep, but I couldn't stay asleep. I was awake most of the night, falling back asleep just before my alarm went off. Most days, I felt like a lunatic zombie, barely holding it together. I would drop things suddenly in the middle of stressful meetings at work. At my wit's end, I begged my general practitioner for help. She ordered an at-home sleep test, which came back negative for sleep apnea, and I was told, you're fine. I marched back into her office with a full defense that something else was wrong. She stopped me mid-sentence and admitted, we're officially beyond both our knowledge of sleep.

7:37I was referred to a sleep specialist, which is a doctor trained to diagnose and treat sleep disorders. And two months later, after 19 years of symptoms, shame, and self-doubt, I was diagnosed with narcolepsy, a chronic neurological condition of the brain sleep-wake cycle. And before you say 19 years, that's extreme. It's not. The average diagnosis period for narcolepsy is 8 to 15 years. And that's because in medical schools worldwide, doctors receive on average less than 3 hours of education on sleep. Total. Across their entire medical training. No wonder no doctor thought my sleepiness was an issue or asked any follow-up questions.

8:28narcolepsy has five distinct symptoms that on their own seem completely unrelated excessive sleepiness that can feel like you've been awake for 48 hours even after a full night's rest nighttime hallucinations sleep paralysis disrupted sleep and sometimes cataplexy a loss of muscle tone with strong emotions which is why i don't have slides in this talk because i was afraid i would drop the remote i never walked into a doctor's office and listed them all together because there was no way for me to know they belonged to the same story. The same way there was no way for me to know my tired was different.

9:07But for one in five of us, our tired is different. While narcolepsy might be rare, it's estimated 20 % of the population has a sleep disorder. Everything from sleep apnea to chronic insomnia, restless leg syndrome, and other conditions that quietly steal rest. and hundreds of millions of people worldwide are walking around exhausted, untreated, and thinking it's normal to feel this way. We've been taught to push through exhaustion instead of asking about it. This isn't an epidemic of laziness. It's a failure of diagnosis. We dismiss people with sleep disorders all the time. We think sleep apnea only affects middle-aged men with thick necks and square jaws.

9:51but it can affect anyone at any age and any size. Now, thankfully, we've started to recognize that sleep is vital, one of the most important things you can do for your physical or mental health. When you get enough sleep, your body performs quiet miracles, repairing cells, balancing hormones, clearing toxins from your brain. Sleep is where creativity is born, memories are filed, and the subconscious gets to color outside the lines. Sleep is the engine of productivity. Now, good sleep hygiene matters, but for the one in five of us living with a sleep disorder, sleep hygiene alone isn't a cure. No perfect bedtime routine, no weighted blanket, no lavender spray on your pillow will keep your airway open at night.

10:35Because when the problem is neurological, structural, or biochemical? Without medical intervention, your body pays the price. Aside from brain fog, loss of productivity, and the dangers of drowsy driving, over time when sleep disorders go undiagnosed, they silently break the body down from the inside out, fueling inflammation, accelerating aging, driving insulin resistance, and raising the risk of heart attack, stroke, even Alzheimer's. This isn't just exhaustion. It's a slow erosion of health, focus, and longevity. But it's also an identity issue. I didn't become a whole person until I was diagnosed with narcolepsy.

11:19Before that, I was working or sleeping. There was nothing in between. But with treatment, the world came alive to me. Colors got brighter. I felt a full range of emotions. I started having hobbies. I found my voice. Before my narcolepsy diagnosis, I didn't think I was creative. In the last eight years of treatment, I've written two pilot scripts, wrote and published a whole book, became a keynote speaker, and had articles published in national outlets. Before my diagnosis, my world felt extraordinarily limited. Now, there's no limit to my capacity. So consider this, your activation, your permission slip, your reclamation, your literal wake-up call to question not just your sleep, but how you feel during the day.

12:15If something is off, ask for help, demand answers, see a sleep specialist. Not just for your health, but for the idea, the project, the relationship, the version of you that's waiting to wake up. Because I want you to live your biggest, most beautiful life, full of color, curiosity, and awe, wild and wide awake. So I'm asking you, is your tired different? Thank you.

13:18Martha Estefanos, Oliver Friedman, Lucy Little, Emma Taubner, and Tansika Sungmarnivong. Additional support from Daniela Ballarezzo, Christopher Faze-Bogan, Valentina Bohanini, Banban Chang, Brian Green, and Lainey Lott. Learn more at podcasts.ted.com. I am Elise Hu. I'll be back tomorrow with a fresh idea for your feed. Thanks for listening.

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15:15Lindsay Scola: in your wallet. Terms apply. See CapitalOne.com slash bank. Capital One N.A. Member FDIC.

15:45the stories worth talking about. Get AI tools for work. Upgrade to Google Workspace with Gemini at goo.gle slash workspace with Gemini. That's goo.gle slash workspace with Gemini.