#157 How a Blind Man Sees the World - Tommy Edison

8 Jun 2026 · 1 h 4 min · 21 chapters

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In short

Tommy Edison (blind since birth) discusses how he learned he was blind, what school and radio work were like before accessibility existed, how technology (Mac screen reader, Apple VoiceOver, iPhone) changed his life, how blind people experience movies, and why “color” can’t be fully explained (Mary’s room analogy). He also answers quirky audience questions about blindness.

Guests

Tommy Edison, a YouTube creator known for explaining blind life and serving as a “blind film critic.” Background: grew up with three sisters, attended public school, used Braille and a daily Braille teacher; began cane travel around ages 11–13; worked in radio starting in 1987 (nearly 20 years) as a rock/pop traffic reporter in Connecticut; hid his blindness from most of his radio audience until a newspaper story revealed it; later became a speaker/educator and film critic.

Key claims

accessibility “didn’t exist” early on; iPhone VoiceOver was a “game changer”; AI can be helpful but can be wrong, so he prefers trusted tools; blind movie enjoyment relies on story, acting, sound, and music; color knowledge is culturally described but experiential “what it is” remains out of reach.

Notable examples

Braille geometry books with raised line drawings; counting CD racks by 64 to run radio music; learning iPhone by making calls/texting one step at a time; using iPhone for mobility in California; Goodfellas as a film he recommends listening to without visuals; “how do you know when to stop wiping” as an internet question he answered.

Written by AI. May contain mistakes. Listen to the episode to check what was said.

Chapters

Tap a time to open that second in VO

Understanding Blindness from Birth

2:45 to 4:39

Tommy shares his experience of realizing his blindness.

“So tell me how a person who is blind from birth finds out that they're blind and how that can be explained to somebody at a young age.”

School Experiences and Accessibility

4:44 to 7:40

Tommy discusses his school life and the challenges of accessibility.

“Um, and so there was, you know, so I, and I, every day I had a braille teacher.”

Career Aspirations and Radio Experiences

7:42 to 11:08

Tommy talks about his early career aspirations and experiences in radio.

“I think I forgot a lot of my childhood because it was sort of unpleasant, but, you know, it was a struggle, but look, it worked out okay.”

Navigating Blindness in the Media

11:12 to 14:00

Tommy reveals how he managed his blindness while working in media.

“The NBA Finals continue on ABC and the ESPN app.”

The Evolution of Accessibility Technology

14:00 to 21:04

Learn about the advancements in technology that have improved accessibility for the blind.

“What kind of time period are we talking about?”

Perception and Language in Blindness

21:15 to 28:00

Explore how language reflects visual experiences and the unique perspective of a blind person.

“Yeah, I noticed that, like, I was thinking when I knew I was going to be speaking to you, I started to notice the extent to which our language is just embedded with terms about sight.”

Understanding Colors as a Blind Person

28:00 to 30:09

Tommy Edison discusses his perceptions of colors and their textures.

“The bottle or the can of Coca-Cola is red.”

Philosophy of Color and Consciousness

30:43 to 34:26

Discussion on the philosophical implications of color perception and consciousness.

“And typically, when people are asked to define consciousness, they find it really difficult.”

The Challenge of Explaining Color

34:26 to 38:20

Tommy shares his experiences with people trying to explain color to him.

Addressing Unique Questions About Blindness

38:20 to 42:05

Tommy discusses the curious questions about his blindness he often receives.

“And it was just big squares on the board.”
Show all 21 chapters

Questions About Blindness in Daily Life

42:05 to 43:34

Tommy discusses the curiosity people have about blindness and how he interacts with it.

“There's a lot of people that are losing their sight due to things like retinitis pigmentosa and other degenerative diseases.”

Perceptions of Beauty and Personality

43:34 to 46:06

Exploration of how Tommy perceives beauty, emphasizing personality over physical appearance.

“So, you know, my neighbors have probably seen me naked and it's like, oh, that would be really embarrassing if they saw me.”

Perceptions of Beauty and Personality

46:59 to 47:26

Exploration of how Tommy perceives beauty, emphasizing personality over physical appearance.

“It's weeknight dinners, sitting around the table, everyone talking all at once.”

Accessibility Challenges in Travel

47:26 to 50:12

Tommy shares his struggles with online ticket purchasing and general accessibility issues.

“We're somewhere in the Gulf of Highland.”

Experiences with Technology and Navigation

50:12 to 54:24

Discussion on how technology and urban design have evolved to assist blind individuals.

“Like, I think it's easy enough to understand how, you know, a phone or a computer might be better or worse, depending on whether buttons are labeled and stuff.”

Navigating Help and Patronization

54:24 to 56:00

Tommy talks about the fine line between receiving help and feeling patronized, particularly in airports.

“Maybe I'm a little nuts, but I just want that human, I get human error and all the things that could happen, but I still feel more comfortable with a human that's able to react to things.”

Navigating Help and Independence as a Blind Person

56:00 to 1:00:00

Learn how blind individuals perceive and respond to offers of assistance in public spaces.

“And I would much rather walk around inside a guy and just hold on to your elbow and, you know, be like I step behind you so I could feel you turn and go up and down stairs and everything.”

Acceptance and Identity in Blindness

1:00:00 to 1:03:00

Discover Tommy Edison's journey towards accepting his identity as a blind person and the joy it brings him.

“People don't like to call me a blind person.”

Choosing Joy in Everyday Life

1:03:00 to 1:03:30

Tommy shares his philosophy on finding joy and its impact on happiness.

“And not just on the level of like you report that you're content and you say like, yeah, I'm happy with my life.”

Acceptance and Identity in Blindness

1:03:30 to 1:04:38

Discover Tommy Edison's journey towards accepting his identity as a blind person and the joy it brings him.

“It prevents on average eight to nine headache days a month versus six to seven for placebo.”

Impact of Content Creation on the Blind Community

1:05:13 to 1:09:50

Tommy discusses the positive feedback he receives from families of blind children and his role as an educator.

“Well, I guess I'm an exceptionally happy person.”
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Transcript

Automatic transcript. May contain errors.

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0:39That's why you rack. Perfect. Perfect. All right. Just making it look nice. Thank you, sir. Yeah. This is the great Ben Churchill, everybody. Yes. That's the great Ben Churchill. He makes it all.

0:57Tommy Edison:he's the best man if you love him yeah i must say it's a it's quite an interesting career path that you have being a youtuber which is quite a quite a visual platform but you've you've managed to develop quite the audience uh on that platform is it quite a difficult thing to do it i mean it was it was sort of intimidating in the beginning because i didn't know when i was a kid i was afraid of the camera as a young, as a young person, even into my teenage years and into my twenties and stuff. Um, I was never really a fan of the camera and, um, I, you know, working with my friend, Ben Churchill, he sort of got me over my fear of the camera.

1:36He was doing a project a long time ago and he wanted to interview me about some things. And so I was like, that was the first time I was really on camera. I mean, I'd been on television a couple of times before and it was intimidating and scary, but Ben sort of got me through it, you know, and just to be sitting here and having a conversation. And then I concentrate more on the conversation and not on the camera. And so that's how I kind of get comfortable because a sighted person would see it, right? And I don't see the camera. So I can simply forget it. And I don't see the lights. I don't see any of this stuff.

2:06So I concentrate on the conversation and all of a sudden camera's gone.

2:10Tommy Edison:Yeah, well, Tommy Edison, welcome to the show. It's an absolute privilege to have you here. I have been just such a fan of the videos that you put out for many, many years. I just told you before we started. And I see you as a bit of a sort of YouTube legend and your content is dedicated to helping people understand what it's like to live as a blind person, like all of the sort of intricacies and strange things that nobody ever would have thought of that you sort of dive into. So thank you so much for being here. Thanks so much for having me. It's a thrill to be on your show. It really is. So tell me how a person who is blind from birth finds out that they're blind and how that can be explained to somebody at a young age.

2:59I, it's something that it's, it's almost sort of vague to me because it just, it kind of happened naturally, but there were things that would happen. Like my sisters could do things that I could not. Um, I, I learned how to ride a bike. My, my mom and dad wanted me to do all the things that, that my sisters did. I have three sisters. And so they wanted me to be out in the neighborhood playing as well. Um, and so I did, I learned how to ride a bike at a very early age. I was riding around the neighborhood and it was kind of fun. Um, you know, and I, I just did a lot of the things that they did.

3:30I went to public school. Um, but just, you know, to find out that I was a blind person, I just know, I noticed there were things that people could do and that I couldn't and that I had to understand that, well, they can see and you can't. Um, and you know that, but that's the only difference. Otherwise, you know, my cognitive skills, everything else is just fine, but I just can't see. And that's kind of the way it was treated.

3:51Tommy Edison:yeah yeah and so i mean when you started to notice these these differences given that presumably it was a little difficult to understand exactly why or what those differences were was it something you like cared about were you upset were you annoyed or was it just kind of a bit of a sort of a strange thing that that didn't sort of bother you too much no i think it bugged me a bit I think because I couldn't do things that other kids did. And I always felt like a victim. You know, why me? Why, why, why? This is awful. And it really came to a head when in the States here at 16, you get your driver's license.

4:31So to see all my friends get their driver's license wasn't so bad. But to see people younger than me get it, you know, after a couple of years sort of broke my heart. I was like, wow, this thing is really, you know, this is it, kid. This is how your life is now. and yeah you know it it took a lot of getting used to it took a lot of um a lot of time to accept it to really fully accept it um for a lot of my life all i ever wanted to do was see because i figured that would solve all of my problems but vision would just give me new problems that i never had before

5:05Tommy Edison:yeah that's that's true i suppose um i'm intrigued as to how things were back then i mean you have spoken about how your parents sent you to a school that wasn't it wasn't like a school for blind people it wasn't a school for it wasn't any kind of um special school in that way uh but maybe this was at a time when blindness was less understood certainly things were less accessible uh like compared to how the world is today there's still going to be challenges but you know what what was it like i mean what was it difficult being at school and this kind of stuff like accessibility wise did other people kind of understand and make accommodations or like just tell me what that was like yeah so i had to get books in braille and so it was tough for the teachers because they had to plan their curriculum very early so that they could get a book made so that i could be able to follow along with the class um sure and so like for example a geography or geometry book had like raised line drawings in it and things that i could you know feel a triangle or a right angle or an isosceles or, you know, parallelogram or rhombus or any of those things.

6:12Um, and so there was, you know, so I, and I, every day I had a braille teacher. So what she would do is go over my homework that I had done for class and right over top of it in print. So a teacher could read it and then grade it. So I spent time with her every day. I think it was like four or five days a week. Um, and so that was one of the things that I did that was different than all the other kids. But the kids were really nice. And, you know, everybody learned how to do sighted guide. And, you know, it was, I got around pretty well. I didn't really start using a cane until I was maybe a bit older.

6:47I think in sort of middle school, you know, around 11, 12, 13, somewhere in there. I began some cane travel, you know, in school. But kids were really, kids were very accommodating. I mean, there were creeps, you know, there were people who were going to just cause trouble just because they can. Um, but for the most part, I think school was a pretty good experience. It was, you know, as I say, it was, it was tricky and it was lonely sometimes, but I, I did have friends and there were people that, you know, I could hang around with and goof off with and, you know, just be a kid with. Yeah. So it was very nice.

7:25And, you know, and I, I really they did do all the other stuff that the other kids did. You know, I learned how to swim. You know, we went to the beach, you know, all that kind of stuff. Yeah. So, you know, it was pretty good. I don't, you know, I, you know, I think I forgot a lot of my childhood because it was sort of unpleasant, but, you know, it was a struggle, but look, it worked out okay.

7:52Tommy Edison:Yeah, for sure. I mean, I came out pretty, I came out all right. Yes. Yeah, I think so. That's certainly true. I wonder if you, I mean, you've got quite a unique sort of job at the moment. I mean, being the blind film critic and making sort of educational videos and giving talks and that kind of stuff. Did you have any idea that that was something you might want to do when you were younger? Or did you have other sort of career aspirations? Was it always to do with, I know you worked in radio for a time. Like what did you want to do back then? I wanted to do two things. I wanted to be in a rock and roll group or be on the radio playing rock and roll records.

8:30Tommy Edison:Nice. But I love pop music. From the first moment I heard it, I just fell in love. I was just enamored. I said, I want to do this. And I heard the radio too, and people just sounded like they were having such a good time and playing all this great music. And that seemed like the job for me. And people discourage me from it all the time. You can't do this. How are you going to be able to do it? But the craziest part is that I did the traffic. I was like a travel reporter. So yeah, I did all the highways and stuff all around Connecticut where I grew up. And I held that job for 19 years, nearly 20 years.

9:04And that always blows people's mind because they go, you've never even seen the traffic, but I know what it is. And I know my way around Connecticut like the back of my hand. I could tell you how to get pretty much to any town or city in Connecticut.

9:19Tommy Edison:Yeah, that's cool. That's cool. I remember hearing you talk about, was it your first job at some kind of radio station? And the reason I'm interested is because I heard you give a talk about this once. And it was in the context of accessibility. And you talked about how you kind of took this thing which would seem like a really difficult thing for a blind person to do, which is find the right records and play them at the right time and put in the right ads at the right time. and you're sort of in this room surrounded by, I don't know if it would have been like records or CDs or some kind of physical media and developing a method for like navigating that.

10:00It was incredible. So there was a giant rack of compact discs on the back wall of the radio studio I worked at. It was a jazz station. And they were in rows of 64. And so I learned how to count by 64. So like one to 64, 65 to 128, 129 to 192, 193 to 257 and so on and so forth um i still remember that from all these years imagine but yeah that so that was how i could keep track of where the where the cds went because each one was numbered um and so that's how i could do that and then what i would do is because there was no accessibility in those days it just didn't exist so i would have family members read over the list of songs that i was supposed to play that night the track number the disc number the title and the artist.

10:45So this way I knew what track I had to play. And then I knew where it was so I could go put it away in the, you know, back in the rack. And then all the little station announcements, I just copied those over. And every time there was a new one, I just copied that. And I did it all by myself and it worked out really well. It was, it was great fun. I had a wonderful time and it's the best music I've ever played on the radio. Um, and it was, and it was a big secret. No one knew I was a blind person. That was kind of the fun of it, too. I hit in plain sight. This is what everyone's talking about.

11:22Tommy Edison:Everything's on the table. This is what champions come to take. This is what everyone came to see. And the slam! No do-overs. No second chances. No more Mr. Nice Guy. This is winner take all. The NBA Finals continue on ABC and the ESPN app.

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12:18Tommy Edison:Yeah, and at some point you finally let people know, right? Like at some point you said that someone came to interview you or something and you kind of like came out as a blind guy. That's exactly right. Very good. You do know this stuff. Yeah, we were doing, I was working with a friend of mine, John Harper, and we used to go out and talk to kids at schools. And of course, you know, I'm just me and I don't think about my blindness terribly often. At least I wasn't in those days. And the kids were asking me lots of questions and I was like, huh, okay. And we would bring back tape and play the kids.

12:53Oh, good morning, John and Tommy, stuff like that. And a reporter came from one of the local papers and wanted to do a piece on our school visits. And then she found out that there was a blind traffic reporter on the radio. And so Harper wanted to read the story. And I was like, I don't know. oh, dude, this is the biggest secret. I've never told anybody this. He's like, I'll take good care of you, I promise. And I said, okay. And so he read the article and talked about me being a blind person. And it was funny because from that day forward, I mean, you can't tell a radio audience, the entire audience the same thing at the same time because they're not all tuned in.

13:28So there were people on my last day, they let me say goodbye at that job. And there were people on my last day that went, you're a blind person? I had no idea. Yeah. So it was very strange, but I hid in plain sight for a very long time. And it was, yeah, it was crazy. It was a lot of fun, though. It was great fun. The hours were strange. But I just, the thrill of being on the radio was so good.

13:52Tommy Edison:Yeah, I bet. You said a second ago, accessibility was kind of a thing that didn't exist back then, or something like that. What kind of time period are we talking about? And do you mean specifically in this industry or do you just mean like across the board? No, I think I mean across the board. So I started, my radio career began in 1987. And there were no braille printers for the computer. There wasn't really a computer yet. There was a basic Mac, and the IBM 386 and 486 didn't come out to the early 90s. um yeah and so yeah there was there was really no way to do to get to produce braille i had to do it myself and so i did um and like i could just learn the weather forecast and stuff like that and then i had a braille watch until time so i knew where i was in the hour and but that was about all that accessibility was in those days it was a word that didn't exist yeah and and things have changed a bit now i mean i know they've changed a lot now but i'm kind of particularly interested in technology in that like presumably as time went on technology after the invention of the personal computer and the iphone and all of this kind of stuff at some point you start to notice that this stuff becomes more accessible but i'm thinking in the in the past sort of five or ten years with the development of artificial intelligence and these like this crazy upswing in like chatbot technology and chess computers and stuff is there also a considerable technological upswing in like accessibility well yeah that came earlier that so i got my first computer in 1997 it was a um a mac performer 6400 and there was a software that you could buy for it called outspoken and that would it was a screen reader it was a basic screen reader but it was pretty good.

15:54And it allowed me to read radio trade publications and things like that, music charts, just articles and stuff that I would never have had access to before. And then it all changed again in 2004. That's when Apple started to include voiceover on every single product they made, everything from 2004 forward. And that was a game changer for me. And I remember when the iPhone came out in 07, I was like, I am stuck. This is never going to where it's a screen. I can't, I don't know how they're going to do this. And two years later, the iPhone three GS came out and I couldn't believe it. I said, I remember I brought one home from the store and I went, what have I done?

16:35And then I plugged it into the computer and it all just started to come together. And I learned the iPhone one thing at a time. I learned how to make a call first. I learned how to text, learn, you know, learn where the keyboard was, not a type just slowly slowly one thing at a time and i love it it's it's opened up a world to me that i've never had access to before i i moved to california at one time back in 2016 and i actually used the iphone to help me learn mobility to get around you know with walking directions yeah yeah and so you know it was a little wonky i know i bumped into a few things along the way but I learned fairly quickly and became a really good cane traveler out there.

17:18So, um, but the technology has been amazing. It really, it's, it's just, I guess that there's a lot of AI technology too, right now that they're trying to use, um, you know, for descriptive things and things, but I don't know. It's just, you know, a lot of times AI can be wrong or it can be a little misleading. So I try and stay away from it as much as I can. I mean, look, it's a tool and I use it for help and things like that. But as far as for accessibility, I think I'd rather use what I have.

17:49Tommy Edison:Yeah. Because it all works. You know what I mean? Sure. That's interesting because I just sort of, I think people might assume that because of how technology is just exploding with artificial intelligence, that in this context of accessibility, the same thing must be happening. But I suppose one of the most important things is familiarity. What can you trust? What do you know definitely works and isn't going to lead you astray? And AI can do that sometimes. So maybe it's like a trust thing. Absolutely, yeah. And I trust the iPhone. I trust what I can read on it and stuff. And when I'm doing research for things, I'll generally start on the web.

18:27And then I'll go to AI, use chat GBT to give me some other directions to look. and then I go back to looking on the web. You know, I just use it as sort of a pointer.

18:38Tommy Edison:How does that work with a, like you've got your sort of iPhone 3GS and like you say, it's like a big screen and three buttons and you want to learn how to make a phone call. Is it like a voice command thing? Do you sort of figure out where to press on the screen and there's some kind of response that lets you know you've tapped on the right thing? Like how practically does that work? So the way the iPhone works is if I touch something once, it tells me what it is. If I touch it twice, it'll perform the action or open it. So, for example, if I want to go to messages in the upper left-hand corner of the iPhone, right?

19:10So I go to that, and then I can look at and see who's unread up in the top left corner. And if I want to respond to them, I can just tap on it, go to the bottom, read their most current message, and then I can respond to it. Now, I'm a lousy typist on the iPhone. I'm not very good. So I dictate, and then I correct it afterwards. And so that's kind of how I do it. But that's, you know, I can look at everything. I can look at the weather. I can look at stocks. I can look at the news. I can look at my email. Just everything. Just touch it once and it tells me what it is and touch it twice and it performs the action.

19:41Tommy Edison:We'll get back to the show in just a moment. But first, I am definitely the kind of person who gets halfway through the day and then realizes that I've kind of just forgotten to eat anything. And that's just one of the reasons why for some time now I've been drinking one of these almost every single day. It's today's sponsor, Huel. H-U-E-L. Believe it or not, this is a complete meal. It's 400 calories, 35 grams of vegan protein. It's got 26 essential vitamins and minerals. It's low sugar. It's got omega-3s. It's got seven grams of fiber. It's plant-based and it costs less than$5. Like most people, I've got goals in my life.

20:19Tommy Edison:I've got health goals. I've got career goals. I've got personal goals. And Huel really helps me with all of those things. It helps me stick to a routine. It helps me stay on top of my health, giving me essential vitamins and minerals. Oh, and this is just one kind of Huel. It's the ready to drink black edition, which is like a higher protein version. This one's strawberry flavored. And that's another thing. It comes in all kinds of flavors. This is chocolate, which is my favorite. But you can get chocolate peanut butter. You can get vanilla. And Huel also comes in powdered form. You just mix it up with some water in a shaker.

20:51Tommy Edison:You get a bit more protein this way. and you can also then choose how thick or thin you want your Huel to be. Whichever way and in whatever flavor you drink it, Huel will give you complete nutrition while saving your time and your money. Go to Huel.com forward slash Alex O 'Connor. And if you use the code Alex O 'Connor at checkout, then as a new customer, you'll also get 15 % off. And with that said, back to Tommy. Yeah, I noticed that, like, I was thinking when I knew I was going to be speaking to you, I started to notice the extent to which our language is just embedded with terms about sight.

21:30Tommy Edison:Like you say things like you were just saying how you could read your text or you could see this. I said a second ago, I was like, oh, I could see that as like a way of saying I understand. People say, I see it from my perspective. People say, look, man, and then they'll say something else. Like, is that kind of annoying? Is that like noticeable or is that just such a common turn of phrase that it sort of just means like something totally different now? No, it's so common. That's the thing. And people are funny because they say, you know, did you see? Oh, pardon me. Did you listen to? And I always say, look, I don't expect you to change the way you talk for me.

22:10So I don't want you to change the way you talk. In other words, I don't use all those words. I just use see, look, watch, just like everybody else. Because it's all part of the vernacular. It's all part of everything that we say. And you know what? Stevie Wonder said something very cool one time. Somebody said, it's too bad you can't see me. And Stevie Wonder, and I've stolen this law and I love it. He goes, I can see with my heart. Isn't that great? It's lovely. But you don't need your eyes to see somebody, right? You can experience them. You can listen to them. You have four more senses.

22:42Tommy Edison:yeah that's right that's right i so if you were i mean you're the you're also the blind film critic um which is a really cool idea uh presumably you would you would say you watch a film absolutely certainly yeah because you would too you know i'm not going to listen to the movies you know that's yeah and nobody no one talks like that so but yeah that's i mean and when we started that project those you know people you can't see a movie you can't watch movies but it's just it's just um it's just language that's all yeah so tell me a little bit about how someone who's blind watches a movie how does that work so what i pay attention to is the story the way the way it's acted the sound that all the sound effects that they use uh the music helps to tell the story too you know like an action movie doesn't really work particularly well for me you know die hard is a sort of separate animal but generally like you know predator might not be terribly good for me or you know maybe the superman movies are you know i don't even know what's current you know what's i'm not a big fan of the movies too much anymore but yeah yeah but the action stuff really doesn't because there's long five six seven minute pieces but nobody says the thing and and i get lost and i just get you know i want to go to sleep yeah so and i definitely stay away from that but like i like the rom-coms and stuff and i like you know movies that have a good stuff good drama and things like that um yeah and you know it's wonderful because that's what the script is for to tell the story and to help all that character development so i really do feel like i don't miss terribly much for a movie like i always talk about goodfellas it's one of my very favorite films of all time and i insist that if i just played the oil like if you fell from the sky and i'd never heard of this before and i put headphones on you'd sit here listen to this for a little while go go take this ride i don't think you'd miss much if you couldn't see it i really don't sure i maybe i should give that you know i've never actually seen goodfellas i i really would like to uh it's i'm not a massive movie person uh and it's one that that's definitely on the list and maybe i should give that a go i could maybe just listen to it and let you know how i get on i'd love oh i would love that if you did that because i've talked i've said this for years i don't think anybody's ever tried it so i'd love to hear the result that would be really fun i don't think you'd miss much i i can i can then i can watch it back and let you know i i think people might assume that you you're watching with uh like some films have i don't know what you call it but like an accessibility thing where there's like a voice that describes what's happening on screen do you do you watch films in that way too generally not no i i prefer them without the description now it can be helpful there's um um you know there was an old daredevil show that there was a the old movie right and then they did a netflix show and they had i tried to watch it without audio description i was completely lost but the audio description really helped because you know they're flashing back and forth you know to when daredevil was a kid or something like that and so that audio description really does help but yeah a lot of times i think it's a little much you know there's sometimes there can be too much description um and they get into color and things like that which i don't particularly you know i know what color is i hear all about it but i just don't know what it is yeah yeah so yeah you know it's a double-edged sword i think it kind of I was interested in it because if so much of what you're getting from a movie is based on how somebody is describing what's on screen then like your enjoyment is going to be as much to do with the decisions of that person who's doing the describing than it is of like the movie maker you know it's like yeah if you read a good book about a historical event the thing that becomes interesting is the way that the person is writing about it more than just the event itself and you you kind of turn films into that, like movies into that by making them dependent on a, on a good description.

26:50Tommy Edison:But yeah, I suppose that's kind of, maybe that's a little bit ironic for a person blind from birth, at least to switch on the audio description of a film. And they're talking about how the, you know, the sky is blue and it's like, well, very helpful. Thank you very much. You know? Well, I mean, I know that a blue sky means it's sunny out and there's no clouds and all like I, I do. I know all that, but you know, the color of someone's clothing are saying, if it's not terribly important to the plot, I don't think I need to know about that. Yeah, sure. That's fair enough. I think you said before we started that I can sort of ask you anything about being blind.

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27:27Tommy Edison:And I think, you know, people always are careful and they don't want to ask you things that are either annoying or offensive. I mean, one of my biggest fears as an interviewer all the time is asking guests things which are just boring because they talk about them all the time. But I must ask you to tell me basically everything that you know about color. I have to do it. Okay, well, I'll tell you what I know about color. I know that, you know, red is fire. Red is also, you know, it's hot. Like, and it's very eye-catching. I know that, for example, Coca-Cola, I think, is red, right? The bottle or the can of Coca-Cola is red.

28:06So I know that. I know being in the red is a good thing. No, being in the red is a bad thing. Being in the black is a good thing. backwards um but you know i know blue i we did a video about this a long time ago and i talked about how i couldn't understand how the ocean and the sky could be the same color yeah but they can but the but you see one of the there's so much texture with color that's one of the things that i think i've learned in the past few years there's a lot of a lot of different texture with color so things kind of the same color but look different just by the different textures and things that sort of go into it.

28:40But what else do I know about color? White is the absence of all color and black is all colors mushed together. I think that's right. It's the opposite.

28:48Tommy Edison:Other way around, yeah. Other way around. Okay, excuse me. Forgive me. But yeah, what else? I know that yellow is a nice bright color. The sunshine sometimes can have sort of a yellow feel to it. Yeah. What else do I know about color? Orange. I joke that nothing rhymes with orange. And I found that a real orange was an actual, like the orange fruit is the color orange. Eczema is unpredictable, but you can flare less with Epglyss, a once-monthly treatment for moderate to severe eczema. After an initial four-month or longer dosing phase, about four in ten people taking Epglyss achieved itch relief and clear or almost clear skin at 16 weeks.

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30:43Tommy Edison:express that's right yeah that's that's true they sort of share an etymological root i think weirdly i think neither is named after the other i think i might be mistaken about this but i think there was a tree which was called the orange tree and both the color and the fruit are named after of that tree or something like that i'm not entirely sure but i think what what's what's clear is that when asked about color you are sort of giving cultural associations you know you might talk about blues music or how or things that you just know from from what other people have said you know that the sky is blue but but what on earth does does that mean and like the reason i'm particularly interested in this is you know i i have a philosophy show and we talk all the time about consciousness and what it means to be alive and to have experiences of the world.

31:35Tommy Edison:And typically, when people are asked to define consciousness, they find it really difficult. And they say things like, well, it's the redness of red. But they do also say it's the sound of a violin or it's the feeling of the wind on your skin or that kind of stuff. And there's a big debate in philosophy as to the extent to which consciousness and experience will ever just be scientifically reduced to just being explained as activity happening in your brain. One of the most important thought experiments that have been proposed on this line is to imagine somebody who spends their entire life not experiencing color.

32:17Tommy Edison:It's called Mary's room. It's this idea of Mary being in a room and it's all black and white. There's no color, basically. And learns everything there is to learn about color. Like learns, like reads everything there is to read, learns about the science of the eye, learns about like neuroscience and everything like that. And learns everything that even in principle, it would be possible to ever learn about color. And at the end of her life, she steps outside and she looks up and she sees blue for the first time, Has she learned something new? And most people say, yeah, it feels like she would learn something new, which is what it's like to see the blueness.

32:52And this is used as an argument that whatever color is, it's not whatever experiences and consciousnesses by extension. It's not something that will ever be just reducible to scientific explanation. and i just wanted to know what what you think about like people presumably have tried over and

33:13Tommy Edison:over again to tell you what color is they'll be like oh it's kind of like flavor for a food um how like you know toothpaste and a mint leaf can kind of taste the same even though they're totally different uh or they say well maybe it's a bit like sort of sound and presumably it gives you some grip on what they're talking about, but do you feel as though there would ever be, even in the future, some kind of description or some kind of series of words that might make you go, aha, now I know what you're talking about? Or do you think it is just forever out of your grasp? I think it's forever out of my grasp.

33:51I mean, as I say, the Mary's room thing is fascinating to me because, yeah, she can go see that color, but she doesn't know what it is. So, for example, I think if I got sight right now, I wouldn't know what it was. And I've heard about all these things. I could see a blue, you know, you could show me, well, that's a blue, what color is that sky right there? And I'd be like, I don't know. Yeah. You know, it would be very strange. So I don't think, one of the parallels I'd like to make is that it would be like trying to explain to somebody who's never heard before what the ocean sounds like or what the birds sound like.

34:26you would never be able to describe that to a deaf person you couldn't or what it sounds like when a giant you know when a big jumbo jet flies overhead or you know a helicopter or anything fireworks um you know i i think if you that's how i look at color trying to explain to someone who's deaf what all those things sound like what my world sounds like yeah um and i yeah like i love it like i love being outside and listening to the birds because it's just this natural stereo and it sounds great and they're all flying around and making all their noise and stuff and i just i'm fascinated by it i love it yeah but that's all it is to me is just but you you could never a deaf person could have like how would you ever explain again you could hear about what all these things are and what they you know you could sort of describe what you think they might sound like but to bring that person out of mary's room and have them listen they wouldn't know what was going

35:21Tommy Edison:an eye yeah i i mean i i think i agree with you um but it's it's difficult to to know for sure i i'm interested if as i say like people have probably tried again and again to to sort of explain different concepts you it must kind of get a bit annoying at times i just wonder are there are there any like are there any kinds of attempts that you found particularly interesting or like how that has kind of taught me something new and are there any that are like your least favorite that people sort of say all the time that are kind of or that do nothing for you you know i'm just intrigued as to how people approach that kind of topic yeah people people do try to explain color and i just i guess i sort of tune out when they explain lots of visual things for example like a rock video um you know or a video game i don't understand that i just don't get it yeah you know people try and explain it and i just don't have a clue and so i just sort of tune out yeah you know it's like they're speaking portuguese yeah i'd not understand spanish but not portuguese right right i i'd not thought about it the concept of a video game before because presumably you could kind of play a video game and that someone could tell you what's happening on the screen or there could be some kind of input like uh response from the buttons you're depressing but it would be difficult to understand how that's different from just like an interactive story or something right like is is that the kind of thing you're getting at with with the sort of how strange it is i'd never thought about video games before as a as a as a concept for for a blind person i mean like a game like grand theft auto i think i understand because you're just driving around and committing crimes and you know screwing around and you know doing that like i i get that but something like um like world of warcraft or something i no idea because you're in these different worlds there's different creatures um yeah you know and there's all sorts of games like i just don't have a clue i i get completely lost yeah it's i i guess i guess there's and video games are so so visual something like tetris or or something would would be essentially unplayable i imagine um um how have you ever are there other games that you do play or do enjoy playing i don't mean like sports i mean like i don't know like something like chess or something you ever given that a go presumably you'd have to have a pretty good memory to even play a play a game very efficiently yeah i never really got into chess i yeah people have talked about it but i just you know i sort of missed that train um but as a kid we had you know there was a an organization called the Lighthouse for the Blind, and they're all over the U.S.

38:12And they had made regular, you know, board games into Braille. So, like, I had a Braille Monopoly, which I loved. That was great fun, you know, and community chess and chants and all that stuff. And it was just big squares on the board. There was Braille to tell you each street, you know, when you were in jail and the just visiting side. So, you know, I enjoyed that. That was fun. And I like trivia a lot. I love, you know, music trivia. I'm very good with music trivia and just general knowledge trivia I like to think I'm okay like a trivia night I'm always pretty good at those

38:48Tommy Edison:Yeah, I'm a big fan of that too I've asked you so far about video games and about colour and some of the more obvious questions that people have are there questions that you sense people are afraid to ask you about that, I don't know, maybe they shouldn't be so afraid, or maybe they should be typically afraid, but you're happy to answer. But what do you think is the question that most people want to know, but most people feel it's either offensive or inappropriate or something to ask you? On the internet, when we started the Tommy Edison experience, one of the questions that came in, now it's a question that had never been asked to me in real life.

39:28No one has ever asked me this question in person ever, ever, ever. But when you're in front of a keyboard, you can ask anything you like. And the nuttiest question I thought was, how do you know when to stop wiping in the bathroom? Right? No one's ever asked me that question ever, but now on video, boom. And there's loads of them, just a bunch of people wanted to know. I found that very strange, but it was, yeah, I guess. And did you, did you answer it?

39:58Tommy Edison:Did you do a video about it? I did. Yeah. We did a video about it. Yeah. And I just, you know, I probably use a little too much, you know, but that's how it works. Safety first. You know, the funny thing I thought about that was though, that no one ever asked me, how do I know when to stop wiping my face after I've eaten like a, like a donut, like a powdered sugar donut. Yeah. It's so funny as well, because like, you know, you're this wonderful educational resource and it's an opportunity for people to learn about ways to make life easier for blind people. They how can I help you if I see someone struggling?

40:34Tommy Edison:But no, they decided that they wanted to know that's the burning question. That's what's important to them, is how you know when to stop wiping. That's brilliant, isn't it? I think it says something about the nature of the internet. Yeah, well, it's that classic thing, isn't it? It's like you could show, take some historical figure, take Thomas Jefferson and show him the internet. And he'd be like, wow, so you have this this device in your pocket where you can learn about every single discipline and you can teach yourself latin and greek and you can do it for free from your bit and you're like yeah and we just use it to like you know send memes to each other and uh and and like waste our time you know but that that's that's how it is but i think people find your videos entertaining and uh engaging for that reason because you're willing to answer the stuff that's besides just being like useful or whatever it's also interesting like the life that you live is is interesting to many people because there are ways in which they won't have thought uh wouldn't have thought about that that you have to live in in totally different ways are there any other like sort of unexpected things which come up in your daily life which when you tell people about they go oh of course yeah i hadn't thought about that one of the questions that gets asked a lot is so if i go out for example in the evening right i go out for dinner or something like that by myself yeah someone will invariably ask how'd you get here what did you drive i go no yeah right oh of course you did of course i feel so stupid excuse me yeah yeah yeah but it makes you laugh every time yeah i i guess there are some some more more obvious questions than others right but like i do do you think do people um do people just i i you make a youtube channel where people are commenting all the time but people just like in your real life just like in the street in a bar or something do they just feel they have the right to ask you questions about blindness just because you're blind and is that kind of annoying not at all no i love it i because again i mean i'm sort of an educator um in a sense because there's not a lot of people that are blind since birth.

42:44There's a lot of people that are losing their sight due to things like retinitis pigmentosa and other degenerative diseases. But somebody who's blind since birth is a real, people are fascinated by it. How do you get around? How do you navigate life? How do you get dressed in the morning? You're always so well put together. I'm like, I don't know. I just sort of pick up my clothes and fix my hair, and off I go.

43:11Tommy Edison:Yeah. Some people might even ask, like, you know, like, why get dressed in the morning? Like, when you get dressed to go outside, is it because, I mean, I was thinking about this, again, like, when I've been, anytime I'm about to speak to someone interesting, everything I'm doing in my life just, it raises questions about whatever I'm about to talk to someone about. And I remember thinking to myself, like when it came to sort of getting dressed, I thought if I were blind and blind from birth, you know, like there's this classic thing where if you live in a house and you're getting changed and you can't be bothered to close the curtains.

43:46Tommy Edison:So, you know, my neighbors have probably seen me naked and it's like, oh, that would be really embarrassing if they saw me. And it suddenly struck me like, is that something that you would care about? Like, would you be like embarrassed by nakedness to even understand like why that would make a difference or be a problem? Like, you know, if somebody said, hey, man, like, you know, I can I can see you in the shower or something. Would you just be like, oh, I reckon I'm told that something which societally is not supposed to go down? Or would you feel a kind of embarrassment? You know what I mean?

44:17Oh, yeah, I'd definitely be embarrassed. I would I'd be mortified because nobody else is walking around naked. So, you know, I'm going to wear clothes just like everybody else. And, you know, I'm no, you know, I'm, I'm no Adonis. You know what I mean? I'm not, you know, I mean, I look good. You know, I look nice, but I, you know, I don't think I want to be naked for the world. So yeah, I keep the curtains closed and stuff. I'm always very concerned about that because I don't want to, you know, I always keep the curtains of my house closed because I don't want people looking in. I don't want you to see what I do.

44:52That's not for you. That's for me.

44:53Tommy Edison:Yeah. This is my house. So what's your concept of terms like beautiful and ugly as pertains to objects, as pertains to houses? Would you walk into a room and say this is a beautiful room based on the way that you experience the room? And then, of course, people as well. When people say that person's beautiful or that person's ugly, does that mean anything to you? well yeah so well let's start with the the walking into a place so i bought a house in 2002 um and i walked into this place and i went just in my mind i didn't tell the realtor i didn't tell anybody but i was just like oh this feels great i like the way this place feels i didn't know anything about it i didn't really know much about it but there was a connection um this house too i walked into this house and there was a connection um yeah and it's just so that's great but as far as people being beautiful and ugly and stuff i think it's more about um their personality and sort of i always talk about it's what's in your heart and what comes out of your mouth that make you beautiful or ugly right it's the words you say it's a it's the feeling that you have it's um you know sort of your thought process all that kind of stuff you know the rest of it's all bonus but you know if you have a beautiful soul that'll come out every time you talk it just does yeah and so yeah that's how i like to judge people on what they say and how they say it yeah i i think that that makes sense to people i i when somebody says um you know somebody looks beautiful or looks ugly or something like that like in a story or in a in a book or something is that as like confusing a concept of something like color is that also like a sort of i just have no idea what they're talking about or is it more like graspable by analogy like Do you understand what it would be like for someone to be attracted to a beautiful person or something like that?

46:51Tommy Edison:Or is that one of those things that you're like, I don't really know what that means? This episode is brought to you by Palmolive. Family time isn't just the big moments. It's weeknight dinners, sitting around the table, everyone talking all at once. So when the plates are empty and the sink is full, use Palmolive Ultra. Palmolive's most powerful formula removes up to 99.9 % of grease, leaving your dishes sparkling clean. And the new convenient pump makes cleaning even easier, so you can spend less time tackling dishes and more time together. Shop now at palmolive.com. Send Help is now streaming on Hulu and Hulu on Disney+.

47:29We're somewhere in the Gulf of Highland. Getting us out of here should be your focus. I'm your boss. You work for me. We're not in the office anymore. It's bold, relentless, and endlessly rewatchable. Discover why critics give it 93 % on Rotten Tomatoes. You're so fired. Oh, am I? No help is coming. Send help. Rated R. Now streaming on Hulu and Hulu on Disney+. Oh, no. I get why sad people are attracted to somebody beautiful because they like looking at them, and they think that this person's got to be interesting to talk to because they're so beautiful. But those two don't normally run hand in hand.

48:09I don't know if they... I shouldn't say normally because I don't know that for, you know, but, you know, you can be a beautiful person and be ugly at the same time because you're just, you know, a horrible person. Yeah. You know, you can have all the looks in the world and just be awful. And conversely, you could be hideous and be the most lovely person in the world. So, you know, that whole beauty thing is it is in the eye of the beholder and it's also in the ear of the beholder.

48:34Tommy Edison:Yeah. Yeah, that's fair enough. Beauty is in the ear of the beholder, I suppose. Yeah. I was hoping I could ask you a little bit about accessibility in that we've spoken a bit about how you might go about using a phone and how things used to be back in the 80s. But are there any areas at the moment that you think are particularly lacking? In particular, areas that you think could maybe be relatively easily fixed if enough people put some attention into it? Or maybe some things that people haven't really thought about that might need fixing? one of the things that I struggle with a lot is buying an airplane ticket online.

49:15Um, yeah, yeah, yeah. Yep. It's cause sometimes it might be unmarked buttons or I remember I bought, I was trying to buy a ticket a couple of years ago now. Um, but I had the whole thing done except for one little button that I, that I forgot to click. And so I needed some help and I, you know, asked him like, Oh yeah, you forgot to click this one over here. And I was like, you know, I saw that and just never touched it. Um, you know, So that's a little bit tricky. That's one of the hardest parts for me. And sometimes people's websites aren't very accessible because, again, they have unmarked buttons and things like that.

49:49You know, some apps, too. Yeah. So, you know, and I just think if people were more aware that there are people that are using this thing that can't see, it would be more helpful. Yeah. But for the most part, it's working really well. But there are a couple of little sort of bumps in the road, if you will.

50:11Tommy Edison:Yeah. How has it changed in your lifetime? I mean, technology is one thing, right? Like, I think it's easy enough to understand how, you know, a phone or a computer might be better or worse, depending on whether buttons are labeled and stuff. But like out there in the real world, so to speak, in terms of like crossing the road, like the bumps on the street before you cross the road or like going into a train station and there being like a like a guide for blind people on the floor, that kind of stuff. Like how has that changed throughout your lifetime? Yeah, well, I remember the days when there were no bumps on the platform.

50:48Tommy Edison:Right. There was no that stuff. and you know i generally don't really need that you know because i know where the edge of the platform is and i have a cane with me and i'm not gonna walk over um but um you know i like the bumps on the street those are good to get you right to the crosswalk and stuff um but it's up to me to sort of do it as straight as i can and i always just sort of run my way across the streets as quickly as possible because i'm always nervous but um yeah but accessibility you know like hotels are really good because everything's labeled in a hotel you know office buildings too there's a lot of labels on the doors and stuff so i can find my way around um yeah you know so all that stuff kind of works and it's but yeah it's it's just nice to have those extras i guess is what i'm trying to say i like having the extra things like the bumps um yeah you know because then i know if i hit the bumps on the other side i did a pretty good crossing i made all the way through you know yeah is it almost exact is it difficult in an open space to walk in a straight line uh like if you're using a cane can you can you use that to help you walk in a straight line or is it a bit of a guessing game if the space is open and flat it's a it's more of a guessing game if it's open in front i do my best um we did a competition a few years ago with another blind person.

52:12Really? Yeah. I lost.

52:18But it was interesting. But I don't, you know, I think I'm walking straight, but I don't know. So it's, on the street, it's nice because I can hear the parallel traffic. So I know I don't want to go that way. I want to keep to the other, to the side I'm trying to cross and stay away from the noise. Yeah.

52:37Tommy Edison:You know, one thing I heard you talk about at some point which i'd never considered is as vehicles become electric like electric cars they don't make noise which for many people is like a really good thing because you know the streets are quieter and all but presumably for you that's kind of dangerous yeah it's i don't like them it's it's too quiet i i was standing next to a car one time and all of a sudden it just moved i was a woohoo that freaked me out because you know normally you'd hear an engine on or something, right? But there's no noise. All of a sudden this thing just starts moving. Yeah.

53:11So they make a little bit of noise on the street, but I prefer the combustion engine. Thank you very much. It's good and noisy and you can smell it too. And I just like the sound of a car. I like that of a big V8 engine, right? For example, a big rumbly V8.

53:32Tommy Edison:It sounds great. people will think that you know self-driving cars are becoming a thing now um and as far as i presumably i understand at the moment that to have a self-driving car you still have to be yourself like in the car so you can take over if need be or whatever but i can kind of envision a day probably not that far in the future where you you could just own your own car and it could just be feeding back to you your own music and and you're sort of getting from a to b by by yourself are you optimistic about that happening in the future no no no i don't trust it oh so you wouldn't even if it were possible you wouldn't you wouldn't want to no sir no sir no i see right no yeah that's fair enough one of me yeah i don't yeah it scares me people get in those waymo cars in vegas all the time and they love it i'm like not me baby i don't i don't want any part of this thank you very much yeah it's kind of it's interesting because i mean i i've never been a Waymo car I've seen them all over the place I kind of want to because I think it would be interesting but it's weird it's like it's kind of like how people are scared of flying even though flying is way safer than driving a car people are far more afraid of flying and they think it's got to do with the fact that you're not in control it's like exactly even but even though that's the feeling that you have like it is it is on paper it is safer to be driven around by by a Waymo car by a self-driving car than another human being, but you just feel more comfortable if there's another person in the car, presumably.

55:05I do. And I just do. Maybe I'm a little nuts, but I just want that human, I get human error and all the things that could happen, but I still feel more comfortable with a human that's able to react to things. And those Waymo cars, you'll see them driving around in circles sometimes and they just get stuck.

55:28Tommy Edison:hmm so yeah i i must try one out at some point maybe i can maybe i can get him on and listen to goodfellas on some long journey or something see how i get on i am oh you're fantastic well that was so are you so are you i i wanted to ask about i i i saw a video once of you uh like going to the airport and showing people what it's like to navigate the terminal and stuff as a blind person and occasionally say well you know people always like to help like if i'm getting off of a train or if i need direction somewhere people are people are always willing to give me a hand and yet i think at the same time people are always worried about um essentially like patronizing somebody by by trying to be helpful where it's not wanted like where do you think is the line between help and you know like condescension and and being patronizing and how can people in those situations where they see a blind person who might look like they kind of need help how can they approach that without just kind of annoying somebody especially if like they get it a lot and and i can kind of annoy i can kind of imagine somebody coming over and you being like look i'm fine like leave me alone you know how can people avoid that well one of the things that happens at the airport that i find patronizing is that they want to put me in a wheelchair because they think it's easier for yo yeah they always want to put me in a wheelchair all the time and i don't i'm like i have one disability i don't need people to think i've got two um you know and i'm like how do you think i got here i walked all the way you know i've been standing the whole time and now you want to put me in a wheelchair um really is that because they think it would be easier for them because they don't really have to guide you they'll just like push you around yep exactly that's what i think i've no one's ever told me that definitively But I think that's what it is.

57:21And I would much rather walk around inside a guy and just hold on to your elbow and, you know, be like I step behind you so I could feel you turn and go up and down stairs and everything.

57:31Tommy Edison:Yeah. So that's one. But if you're just going to offer help, you know, I can either say thank you or no thank you. You know, if I'm good, I'm like, no, no thanks. I got this. But I appreciate you. Thank you very much. Yeah. You know, I used to be a little short tempered with people when I, you know. they'd offer help and I had to watch myself because I was I don't want to be mean to people I don't want to be rude because right if it's somebody's first time ever dealing with a blind person I'm a jerk to them they're never going to help another blind person as long as they live and I can't do that to my people I can't yeah so you know that's but I'm always yeah so I'm always very polite and just thank you or no thank you I appreciate your help or oh you know I couldn't use a little help.

58:14Would you mind? But the cool thing about, I had to learn how to ask for help. This was tricky for me because I didn't like to, but I realized one day that somebody asked me for directions around my neighborhood and I was able to give them. And it made me feel so good to be able to help them out. And I was like, you know, I'll bet you other people feel this good when they get to help me out. And so that was sort of the thing that got me over the little hump, if you will to yeah you know to be able to ask for help yeah and some people want to do it and others

58:46Tommy Edison:don't and that's fine are there things that people like assume you can't do that you actually can do with relative ease let's see um that's a great question i'm trying to i'm trying there's really not much that i can't do anymore um yeah it's just made me think of like when you're when you're walking around like somebody might sort of i don't know like like somebody might say do you need me to show you to your room and you can be like no no it's all right you know there's braille on the on the on the hotel room doors and oh yeah of course you know that kind that kind of stuff where people kind of assume you'll need help and you're able to be like you know thanks but i actually don't need this at all absolutely yeah and a hotel that's a good one but sometimes you know the hotel you know how hotel floors are you know they can be huge like in a casino for example a resort casino that's a giant so i'll take the help because yeah i could wind up walking around for 10 minutes on the floor feeling every side and my room will be it's always the last one you see so you know i'll take the help and it gives me um you know it gives me a basic idea where my room is from the elevator but then i come up in a different elevator and i'm going oh no what happened yeah so i yeah i do that as well and i can see so i can't imagine what that must be like yeah but i feel like i can do pretty much everything i mean i you know i can't drive i can't catch a ball um you know without you telling me to watch out here comes a ball get my hands up ready to catch um but i can do so much stuff and with technology i've been able to do just so many things people one of the things that people assume is that i want um those new metaglasses but i really don't right i don't really care for those that's for somebody who's i think that's for somebody who's gone blind later in life they would be really helpful for somebody like that but for me i don't i really it doesn't do much for me yeah i use my other senses to get around the world yeah yeah yeah oh you mean like as an accessibility tool like right exactly right right right yeah yeah okay that that makes that makes sense i think um i don't know i think people i i you said before we started like about how that like you felt the need to tell me that it's okay to ask about this this kind of stuff there's a kind of general hesitation and reticence around asking people about things which are which is so personal um do you think that people should be less like careful and nervous in that way or is it just like because maybe it's just you like you're you've chosen to do this you are an educator you've decided to put yourself out there um so you don't mind that but should people retain that kind of carefulness and nervousness do you think around around other people i don't think so no i think that we should i feel like we've almost been afraid or may i feel like we've almost been made to be afraid to use particular words.

1:01:55People don't like to call me a blind person. They just don't like it. But it's what I've always been. Ever since I was a little kid, I've always been a blind person. Now, the thing that was hard for me was acceptance because I hid from it forever. I did not like being a blind person. I didn't like to say the word. I couldn't stand saying it because I hated to be different. But, you know, it's into, you know, it took years and years, but I finally accepted it. I'm finally very comfortable in my own skin. I love being a blind person. I don't want to be anything else. Um, and like, I, I just love it.

1:02:32I, I love being a blind person cause that's what I am. And I love myself. You know, I'm not embarrassed by it. I'm not it. I used to be, I was horrified by it, but no more. No more.

1:02:45Tommy Edison:That's great. And I think people, when I watch your content online, one of the comments, you must notice this too, that comes up most frequently, it doesn't matter what the video is about, but people always comment on how happy you are and how happy you seem. And not just on the level of like you report that you're content and you say like, yeah, I'm happy with my life. Just something about like your energy and like the way that you talk, the humor, the laughter. It just seems like you, at least in those moments of filming, when you feel up for getting on camera and talking about something, you just seem sort of filled with joy.

1:03:26Tommy Edison:And from the sounds of it, that hasn't always been the case. but like i think it's i think it's really nice and i think it rubs off on people and like like do you agree with the assessment do you think that you are a sort of um exceptionally happy person and if so what's your what's your secret man chronic migraine is 15 or more headache days a month each lasting four hours or more botox on a botulinum toxin a prevents headaches in adults with chronic migraine before they start it's not for those with 14 or fewer headache days a month. It prevents on average eight to nine headache days a month versus six to seven for placebo.

1:04:01Prescription Botox is injected by your doctor. Effects of Botox may spread hours to weeks after injection causing serious symptoms. Alert your doctor right away as difficulty swallowing, speaking, breathing, eye problems, or muscle weakness can be signs of a life-threatening condition. Patients with these conditions before injection are at highest risk. Side effects may include allergic reactions, neck and injection site pain, fatigue, and headache. Allergic reactions can include rash, welts, asthma symptoms, and dizziness. Don't receive Botox if there's a skin infection. Tell your doctor your medical history, muscle or nerve conditions, including ALS Lou Gehrig's disease, myasthenia gravis or Lambert-Eaton syndrome, and medications, including botulinum toxins, as these may increase the risk of serious side effects.

1:04:37Why wait? Ask your doctor, visit BotoxChronicMigraine.com, or call 1-800-44-BOTOX to learn more. This episode is brought to you by Redfin. You're listening to a podcast, which means you're probably multitasking. Maybe even scrolling home listings on Redfin. Saving homes without expecting to get them. But Redfin isn't just built for endless browsing. It's built to help you find and own a home. With agents who close twice as many deals, when you find the one, you've got a real shot at getting it. Get started at Redfin.com. Own the dream. Well, I guess I'm an exceptionally happy person. I don't know.

1:05:17I enjoy having fun. I enjoy life. I enjoy being alive. I enjoy people. A friend of mine said it one time, and this is about the best way to describe it, choose joy. There's joy all around you, and all you have to do is choose it. Because there literally is joy everywhere you turn, everywhere. It could be just in the sunshine outside. It could be a song. It could be a photo. It could be anything that just gives you joy, and you just choose that joy and be with it. and i yeah i don't know that's that's how i like to live because who wants to be around somebody who's grouchy you know and all sort of uh surly and nobody wants to be around that

1:05:59Tommy Edison:yeah i think i think it's inspirational to people just because i think even just outside of the work you do like no matter what your job was or what kind of person you were just anybody in any line of work who is so consistently happy and uplifting and humorous as you are, I think just inspires people like just for their own selves to remember that, yeah, like you can just be happy. I mean, life is hard for a lot of people and you don't have a choice in many things, but where that choice is available, even just to find a bit of joy in the things that are presenting themselves to you, you know, that option's on the table and I think it's inspirational.

1:06:39Tommy Edison:So I think people are very grateful for the example that you set and and also for yeah like being like the go-to guy online for for learning about what it's like to be blind i mean do you often hear from blind people uh i presumably they don't watch your content in the sense that they don't really need to know what it's like to be blind but they might watch out of interest in in how you're explaining it to other people and do you hear from a lot of blind people like do they do they send you emails and thank you for your work or tell you, hey, you should cut that out or you should stop saying this or you should say this or try this?

1:07:14Not too much of that, honestly. I hear from some blind creators, but the thing that I hear that really that melts my heart is to hear from a mom or a dad who says, listen, we have a blind child who's two, three years old and we had no idea what their life was going to be like until we saw your stuff. And now we feel good. And that just, that touches me. I love that. because, you know, when, when I was a kid, my mom used to listen to like Jose Feliciano. He would be on the tonight show all the time with Johnny Carson and he was a successful blind person. And that made my mother feel good. And I actually got to meet him once and told him that I was like, you know what?

1:07:52I just want to let you know that my mom, you know, looked up to you and you were an inspiration to her with her blind son and everything. And he appreciated that. But there was, but that's the thing that I, I just, I just love that. It's very, it's lovely. It's very

1:08:06Tommy Edison:sweet yeah that's awesome man well look i i really appreciate you taking the time tommy i'm gonna make sure that your channel is linked down in the description you like as i say it's all kinds of questions that you've answered for for like over a decade now um all the little particularities you wouldn't even think to ask you you take them on with with grace and curiosity and humor and it's and it's always good fun so i'll put that in the description for people to to check out but thank you so much for your time i thought this would be interesting and i was right you're very kind thank you so much for having me it's wonderful to be here um you know and like i said you know you have all these great thinkers on your show and then me so but well you know like next to hitchens and people like that you know yeah well i think you're um i think you you bring a perspective man and and the my favorite episodes that i do i think are because there are people who are smart and there are people who are who are well read and people who are experts in their field and stuff and that's great but it often doesn't do much for people unless they've got a particular angle a particular perspective a particular sort of way of approaching the subject matter and when it comes to this kind of stuff like you've got one of the most unique perspectives in the world and i think it's it's just interesting alone for that reason even if you were a sort of grumpy, humorless, you know, guy, it would still be interesting to talk to you.

1:09:32Tommy Edison:So given that you're neither of those things, and you're actually really fun to talk to, no matter what the subject is, I think it's hopefully going to be enjoyable for people. So thank you for your time. And yeah, I hope people enjoy this. It's something a little bit different. Well, it's lovely to be here. Thank you again so much for having me. I appreciate you.

From the publisher

For early, ad-free access to videos, and to support the channel, subscribe to my Substack: https://www.alexoconnor.com.To donate to my PayPal (thank you): http://www.paypal.me/cosmicskeptic.@TommyEdisonXP is a blind YouTuber and radio presenter. He got his start online as the “Blind Film Critic”, reviewing movies despite being unable to see them, and thereby offering a unique angle on their storytelling.TIMESTAMPS:

0:00 - Being a Blind YouTuber2:03 - How Do You Understand Blindness If You Are Blind From Birth?4:26 - Being Blind in School7:20 - Tommy’s Early Life12:11 - Has Life Become More Accessible For the Blind?19:35 - How Vision is Embedded in Our Language21:35 - How Does A Blind Person Watch A Movie?25:40 - What Does Tommy Know About Colour?27:51 - Mary’s Room32:16 - Can A Blind Person Play Video Games?35:39 - The Questions People Are Too Afraid to Ask41:42 - How Does A Blind Person Understand Attractiveness?44:27 - What Can We Make More Accessible?48:24 - Why Electric Cars Aren’t Best For Everyone51:33 - Is Offering Help Patronising?54:35 - What Can Tommy Do That People Think He Can’t?58:32 - Why Tommy Chooses Joy - CONNECTMy Website: https://www.alexoconnor.comSOCIAL LINKS:Twitter: http://www.twitter.com/cosmicskepticFacebook: http://www.facebook.com/cosmicskepticInstagram: http://www.instagram.com/cosmicskepticTikTok: @CosmicSkeptic - CONTACTBusiness email: contact@alexoconnor.comBrand enquiries: David@modernstoa.co

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#157 How a Blind Man Sees the World - Tommy EdisonWithin Reason · 1 h 4 min
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