Endometriosis Surgery: What Most Doctors Won’t Tell You

24 Mar 2026 · 1 h 10 min · 26 chapters

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In short

Endometriosis surgery quality, surgeon skill, and pre-op planning; why common procedures (ablation, nerve “burning,” uterine-only surgery) may fail; how to choose a surgeon and prepare (imaging, PT, nutrition, fertility planning).

Guests

Victoria Vargas (endometriosis surgeon, Washington, DC; complex surgery practice). Dr. Ana Sierra (excision surgeon with neuropelbiology training; Mexico City). Dr. Cindy Mossbrecher (endometriosis surgeon for 20 years; trained with David Redwine; Gig Harbor, WA). Shanti Molling (Portland, OR; Northwest Endometriosis and Pelvic Surgery).

Key claims

General OB-GYNs often lack training; studies may ignore surgeon skill, leading to misleading outcomes. Ablation is portrayed as a “crutch” that may miss lesion depth; incomplete excision and leaving disease behind worsens future surgery. Uterosacral ablation (LUNA) doesn’t cure pain; “cut/burn nerves” can worsen pelvic floor dysfunction. Hysterectomy doesn’t cure endometriosis outside the uterus; lesions can persist post-menopause. Removing ovaries doesn’t eliminate self-propagating endometriosis.

Notable examples

Negative colonoscopy can miss bowel endometriosis because lesions grow from outside-in; deep infiltrating disease may require bowel resection (discoid vs segmental). Fertility discussion includes using AMH/antral follicle count, considering egg freezing/IVF, and avoiding thermal damage during cystectomy. Red flags: no pre-op assessment, insisting on surgery without mapping disease, and post-op GnRH suppression implying incomplete excision.

Written by AI. May contain mistakes. Listen to the episode to check what was said.

Chapters

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Discussion on Surgical Techniques and Misconceptions

2:45 to 10:00

Explore the misconceptions around endometriosis surgery, including the ineffectiveness of certain procedures.

“Vicki, would you like to introduce yourself?”

Navigating Fertility Issues with Endometriomas

13:20 to 14:00

Understand the implications of endometriomas on fertility and the importance of specialized care.

“However, if you're smoking, if you're drinking alcohol, the endometrioma conversation isn't going to matter as much as you've got to stop smoking and you've got to drop the alcohol.”

Understanding Endometriomas and Surgical Techniques

14:00 to 16:40

Learn about the implications of ovarian surgery and the importance of technique in treating endometriomas.

“And so I just want to say that in the context of trying to nail down an answer from you about things.”

Evaluating Surgical Outcomes in Endometriosis

16:48 to 18:48

Explore the variations in surgical techniques and their impact on fertility outcomes.

“But what the surgeons are doing varies a lot.”

The Importance of Comprehensive Surgery

18:48 to 20:58

Understand why addressing all lesions in endometriosis is crucial for fertility and overall health.

“they had two failed transfers, and they had stage three and stage four endometriosis.”

The Role of Age and Awareness in Fertility

20:58 to 23:15

Discuss the impact of age on fertility options and the importance of early intervention for endometriosis.

“And so they are looking to see at spontaneous conception.”

Misconceptions About Ovarian Removal

23:15 to 24:17

Learn why removing ovaries does not cure endometriosis and the implications for patients.

“And step two is get on the internet and maybe schedule an appointment with these ladies or someone else who actually knows endometriosis and get that looked at.”

Identifying Endometriosis Symptoms and Bowel Involvement

24:17 to 28:00

Recognize the symptoms of endometriomas and their complications, including bowel involvement.

“But this is the same reason why we don't see women in menopause necessarily have complete symptom relief from their endometriosis.”

Understanding Endometriosis and Nerve Involvement

28:00 to 30:15

Explore the impact of endometriosis on nerves and the importance of pre-surgery discussions.

“And so we don't see it always on colonoscopy, even if it's a large lesion growing from the outside.”

Pre-Surgery Testing and Nutritional Preparations

30:15 to 31:29

Learn about necessary tests and nutritional assessments before endometriosis surgery.

“We usually do MRIs and we usually do physical exploration.”
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Pre-Surgery Testing and Nutritional Preparations

31:30 to 32:46

Learn about necessary tests and nutritional assessments before endometriosis surgery.

“But usually we refer them to our nutritionist who's going to check about their amount of muscle, the muscle mass.”

Post-Surgery Recovery and Nutrition

32:54 to 36:30

Discuss the importance of post-operative care, including nutrition and exercise for recovery.

“I agree with starting physical therapy ahead of time when possible, and also very soon after surgery.”

Challenges in Endometriosis Surgery

36:30 to 39:51

Address the complexities of performing surgery on patients with obesity and overlapping conditions.

“And I will say that has been one of the most effective therapies in managing my endo, but it is the hardest to absolutely, I will just be the first to say, I do not want to get out of bed.”

Hysterectomy and Endometriosis: When is it Necessary?

39:51 to 42:00

Understand the circumstances under which a hysterectomy may be the best treatment for endometriosis.

“Why are doctors removing an organ, the uterus in this instance, for a disease that by definition exists outside of that organ?”

Understanding Postmenopausal Endometriosis

42:00 to 43:31

Postmenopausal endometriosis can still persist and grow despite a hysterectomy.

“also won't fix uterine pain if you don't do anything about the uterus.”

Qualifying Questions for Surgeons

43:31 to 45:20

Learn what questions to ask a surgeon to determine their qualifications for endometriosis surgery.

“I also think that if they are a provider who also delivers babies, that they are less devoted to advancing their surgical skills.”

Red Flags in Surgical Consultations

45:20 to 48:51

Identify red flags that may indicate a surgeon is not adequately assessing your condition before surgery.

“I think the other thing too to ask, especially if somebody says they do excisions, is to say, how large are your specimens?”

Red Flags in Surgical Consultations

48:58 to 49:10

Identify red flags that may indicate a surgeon is not adequately assessing your condition before surgery.

“Well, let me ask you, not everyone needs surgery, but what are some signs that someone should consider it?”

When to Consider Surgery for Endometriosis

49:10 to 51:09

Recognize the signs indicating when surgery might be necessary for endometriosis.

“Ana, what should women realistically expect after excision?”

Post-Operative Expectations and Symptoms

51:09 to 53:01

Understand what to expect after excision surgery and identify concerning symptoms.

“We don't see the same timeline in every patient.”

Recurrence Rates and Surgery Expertise

53:01 to 55:46

Explore how the skill of the surgeon impacts recurrence rates of endometriosis after surgery.

“Yeah, what you wind up with is a 19 % chance of persistence or recurrence over a seven-year follow-up.”

Challenges with General OB-GYNs Treating Endometriosis

55:46 to 56:00

Discuss the reasons why general OB-GYNs may struggle with treating endometriosis effectively.

“And so they take them to the OR and they do what they were taught to do, which is do ablation.”

Understanding Excision Surgery for Endometriosis

56:00 to 58:03

Learn about the challenges and training required for effective endometriosis excision surgery.

“I would say over the last 10 years or so, there's a lot more gynecologists who say they do excision, but that doesn't necessarily mean that they do excision well.”

The Need for Better Standards of Care

58:03 to 1:00:07

Explore the importance of changing the standard of care for endometriosis treatments.

“The only way that we are going to change these things from happening is to change the standard of care.”

Challenges in Recognizing Endometriosis as a Specialty

1:00:07 to 1:02:38

Discuss efforts to establish endometriosis as a recognized specialty and the resistance faced.

“Because I saw the headlines, I saw the yay, and I'm like, but we know bad research has been done.”

Financial Disparities in Gynecological Surgery

1:02:38 to 1:08:28

Understand the financial challenges and disparities faced by gynecological surgeons.

“and demonstrating that these surgeries are tougher.”
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Transcript

Automatic transcript. May contain errors.

0:00Not all endometriosis surgeries are created equal and pretending they are is harming women. Why are general OB-GYNs still managing a disease that they are not trained to treat? The problem with the vast majority of studies looking at surgery for endometriosis is they don't control for the skill of the surgeon. Endometriosis grows from the outside of the bowel in and not from the inside out and so we don't see it always on colonoscopy even if it's a large lesion. The lie is any gynecologist can manage endometriomas. There's a lot of misinformation out there in the literature with regards to recurrence of endometriosis.

0:37Recurrent pain from hypertonic pelvic floor dysfunction is not recurrent endometriosis pain. Uterosacral ablation does not cure endometriosis pain. The worst cases of pain and pelvic floor dysfunction is because doctors told them that they can cut their nerves or burn their nerves in order for them to feel better. And then they don't feel better. If your doctor is suggesting this, go away. so good so good so good new summer arrivals are at nordstrom rack stores now get ready to save big with up to 60 off brands like rag and bone levi's adidas and free people join the nordy club to unlock exclusive discounts shop new arrivals first and more plus buy online and pick up at your favorite rack store for free great brands great prices that's why you rack Good sleep is everything.

1:29That's why Oli's Science Back Support is made with a blend of melatonin and L-theanine for both kiddos and grownups. So when your mind won't switch off, you've got something that can help. Erasing thoughts and restless nights won't stand a chance. Find Oli's sleep solutions for the whole family at Oli.com. That's O-L-L-Y dot com. So I want to ask Cindy, True or false, a hysterectomy will not cure your endometriosis. It absolutely will not cure any endometriosis that is outside the uterus. So it will help tremendously for adenomyosis, but for peritoneal endometriosis, uterus sacral disease, endometriomas, bowel disease, all that stuff, it ain't doing squat.

2:18In today's episode, we are talking all about surgery, how to know if it's right for you, how to find the right surgeon, how to avoid worst-case scenario surgeries, and what you can do beyond surgery. I'm Dr. Jolene Brighton. I'm the host of The Dr. Brighton Show. I'm board certified in naturopathic endocrinology. I am an endometriosis and adenomyosis patient, and today I am joined by four leading experts in the field of endometriosis. Vicki, would you like to introduce yourself? Sure. My name is Victoria Vargas. I'm an endometriosis surgeon based in Washington, D.C. My practice is called Washington Endometriosis and Complex Surgery.

2:55Hi, I'm Dr. Ana Sierra. I'm an excision surgeon with Neuropelbiology Training. I'm based in Mexico City. Hi, I'm Dr. Cindy Mossbrecher. I'm based in Gig Harbor, Washington, and I have been doing endometriosis surgery for 20 years since training with Dr. David Redwine. And I'm Shanti Molling, and I practice in Portland, Oregon with my partner, Nick Fogelson at Northwest Endometriosis and Pelvic Surgery. Fantastic. Now, if everyone is just tuning in, this is our third episode in this series. You're definitely going to want to catch one and two to get the foundations of endometriosis, understand how to get out of pain.

3:35And this episode is all about surgery. I want to go into playing two truths and a lie with Victoria here. So I'm going to make three statements and then you're going to identify the lie for the listeners. And if you guys want to comment and get it before she does, then please, by all means. So number one, ablation is ineffective in the treatment of endometriosis. Two, any gynecologist can manage endometriomas. And three, removing ovaries doesn't cure endometriosis, which is the lie. The lie is any gynecologist can manage endometriomas. and I just want to go through each of the statements. Ablation is ineffective in the treatment of endometriosis.

4:14So studies have shown that ablation can treat lesions that are two millimeters in depth. It's used as a crutch for lack of skill because excision is much more difficult. And since endometriosis tends to lie where the ureters course or like over the bowel, over structures that everyone is afraid to burn or injure, a lot of times ablation isn't reaching the depth of the lesion. Oftentimes we can't tell the full depth of the lesion without opening the retroperitoneum a little bit to examine the depth. It's not the technique that's the problem. It's that you can't, you know, you don't have the skill to treat the disease fully and you're using ablation.

4:50It shouldn't be the standard of care. I think the worst thing that can happen is that you have an incomplete excision where someone goes in, opens up all your retroperitoneal spaces and like leaves all the disease behind, like a partial utero-sacral excision. And a ureterolysis where they don't excise the endometriosis off of the top of the ureters. A lot of GYN oncologists, they go in and they open up all the spaces and they take the endometriomas out, but they don't take the endo out. And that makes it so much harder to operate the next time because then there's all this fibrosis in spaces that shouldn't be fibrotic where there really isn't any endo, but it's fibrotic because of what's scarred down before.

5:32I want to empower the peak and shriek. I know it's like everyone's worst nightmare. Surgery where you go in, you're like, oh, shoot, I had no idea what it was going to be like. I got to get out of here. So like you open up, you see it's stage four. You had no idea. You wait, zap, zap, zap. You close. I feel like that is like a thousand times better. A thousand times better. Yes. Than an incomplete excision. Yeah. Okay. But in an ideal world, they could have done enough imaging ahead of time to not be completely caught off guard. Because when we're talking about stage four, we're talking about organ involvement.

6:07We're talking about tissues, lesions, adhesion, things that can be seen. And so for any clinician listening, I would say if you found yourself ever in that situation once, then that was your lesson that imaging needs to be done before you ever find yourself in that situation again. Yeah. We need to change the standard of care. Like the Usher guidelines, that Shanti mentioned, I think, in the last episode. It's like, we need to make imaging the standard of care, and we need to make the protocols that empower us to see severe disease as standard of care. But until that's the case, we're going to, what Cindy's saying is true, people are going to have ablation surgery, and they're going to have incomplete excision.

6:43But if I could leave anyone with a message, any surgeon, any OBGYN here, it's like, Peek and shriek. Peek and shriek. Get the heck out. Refer the patient. And don't touch things. You know, leave it alone. And take lots of pictures. Yes. And take lots of pictures. And don't just take down adhesions and then think that you're doing some good because that makes things worse. About ablation. Uterosacral ablation does not cure endometriosis pain. I think the worst cases of pain and pelvic floor dysfunction that I see in my consult every day is because doctors told them that they can cut their nerves or burn their nerves in order for them to feel better.

7:30And then they don't feel better. The uteroccal ligament is like a centimeter and a half or a little bit more. And that is the basics of sympathetic and parasympathetic innervation of the bladder, the pelvic floor, the vagina, and the rectum. So if you burn this, not only you're not offering any help to the patient, you're killing the way that we can help them. So please do not ablate the uterophecal ligaments. The LUNA procedure is called. And please, please, if your doctor is suggesting this, go away. Is there any men's health condition where it is acceptable to cut and burn nerves? No that I know of, but I don't know.

8:12I mean, we're not a panel of male health experts, but it is something that I'm always like, it's important to reflect on what is acceptable for our male counterparts and what's deemed completely unacceptable for them, but is still archaically adopted and practiced for women. I think you want to get back to the lie here. Yeah, let's get to the lie. Yeah. I think we almost covered a lot of it. Like any gynecologist can manage endometriomas. And I feel like endometriomas deserve their whole episode, really. And you're saying that's a lie. Oh, wait, it needs a whole episode? I did not know. Yes. Endometriomas deserve their own episode.

8:46I mean, honestly, because first of all, their presence lowers ovarian reserve and then the removal lowers ovarian reserve. And then the more you operate on an ovary, the more that impacts ovarian reserve, right? What is the algorithm in your mind? Because if the endometrioma is impacting ovarian reserve, but you excise it and that impacts ovarian reserve. Are you looking at an AMH to determine, should we remove this? Are you looking at the size of the endometrioma? So for somebody right now who is wanting to get pregnant, they know they have an endometrioma, what are the considerations in your mind?

9:19With the caveat that this is not prescriptive, this is not medical advice, this is just the way you think about it. So if someone is young, if they're 23, age is the most predictive factor for fertility. But because I know that they're going to have some impairment in their ovarian reserve, especially if they have bilateral endometriomas. I will get a baseline AMH. Not everyone would agree with that. Okay. And what is the AMH telling us? It's the anti-malarian hormone. It's a surrogate marker for ovarian reserve, and it's been studied for use in IVF to predict IVF outcomes. It's not technically designed to be used in the way that I use it, but what I do is I look at the median for the patient's age, and I say, look, you are at the median, you're above the median, you're below the median for your ovarian reserve, and we're going to further impact your ovarian reserve by removing this endometrioma.

10:08And that is basically how many eggs are going to be left in your savings account and you're ovulating every month the checking account, right? And this is a vague estimate. It's more or less something like that. There's also the antral follicle count that really is something you can use that in combination, like age, antral follicle count, and AMH all together. It's a complicated picture. And for people listening, antral follicle count is going to be a transvaginal ultrasound looking at your ovaries, how many follicles are present, about day two, three, four of your cycle. And so you're saying partnering these things together with age as well.

10:44So let's say we've got, let's do this scenario. We have got a 30-year-old, the AMH is less than one. What are we talking about with an excision? So honestly, first of all, even beyond that, endometriomas are a marker for deep endometriosis. If fertility is a priority for them, I do talk to them about egg freezing or creating embryos with their partner. Sometimes have them see a fertility doctor. Again, that's controversial because some people are like, well, they're 23, even if their AMH is 0.1, like, you know, they're going to rebound when you remove the endometrioma. I just don't agree with that.

11:22I just don't want to be the reason a patient can't conceive, right? Because of my surgery. I just can't handle that emotionally for myself to be that source of pain for a patient. I explained this to them, but I also like talked to them about the option of seeing a fertility specialist considering egg freezing. So here's the tricky thing though. The endometrioma can actually affect the egg quality. So not just the number of eggs, but so you could go through an egg retrieval and make zero embryos because the quality of your egg was compromised due to that endometrioma. So we work with a specialty, like a fertility specialist who we are close with, right?

12:00So we can talk to them and they can see how many follicles are being recruited. They can kind of like see if they can access them. And yes, of course, IVF outcomes are altered. And again, this is also controversial. Some people will be like, IVF outcomes don't change if you leave the endometrioma. Then some doctors are like, IVF outcomes are worse if you leave the endometrioma. I mean, it just depends on who you talk to and how they're interpreting the data. But if the fertility doctor I'm working with feels like they can retrieve some follicles, then I don't think it's wrong to go ahead and do an egg retrieval before surgery.

12:34And with that in mind, if somebody says, I want to have the endometrioma removed, What are we looking at with the size of the endometrioma where it's like, this is severely going to compromise the function of the ovary? I think if it's like seven centimeters or bigger, but I mean, this is just sort of arbitrary because we don't really have a lot of data on this, you know? So here's the thing. We don't have a lot of scientific data, but what we have sitting at the table are women with lots of clinical data of what you guys have seen. And I think that when we have the absence of the great scientific data that we would all love to see published, we have to start talking to our colleagues.

13:12We have to start getting that clinical data of what do you think? What have you seen? And for everybody listening, I want you to understand we're talking about endometrioma. We're talking about endometriosis right now. However, if you're smoking, if you're drinking alcohol, the endometrioma conversation isn't going to matter as much as you've got to stop smoking and you've got to drop the alcohol. And so it's not just, when it comes to fertility, I think it's really easy to like hear this and be like, it was my endometrioma. It was my surgeon. This is the whole reason and not recognize that like, like the fact we all exist is a miracle when you consider how inefficient humans are at actually making babies and how everything about our environment impacts us.

13:52Even just getting stressed might shift our ovulation. And like, you could take a red eye flight and your body's like, yeah, no, we're not, we're not going to ovulate this month. And so it is very, very nuanced. And so I just want to say that in the context of trying to nail down an answer from you about things. I also want to know, has a patient had a prior ovarian surgery? Because that's going to influence things. Is this a multi-loculated endometrioma? And what does that mean? Meaning there's multiple small pockets. Meaning I think there's going to be more ovary removed. If it's a single cyst, like cystic structure, I think there's just less surface area of the ovary removed.

14:28The technique is very important. And I can't even emphasize that enough, which is really the main reason why general OBGYNs can't do endometriomas. First of all, they're not having these in-depth conversations with patients about the implications. And that's the number one reason. But the second very important reason of equal importance, actually, is the technique is everything. Cystectomy causes the most depression of the AMH, but it results in the most pregnancies. And because AMH was not ever designed to predict spontaneous conception. It was only designed for IVF and how many eggs can you harvest.

15:10And so the fenestration and ablation with the plasma jet had much lower reductions in the AMH, but not as good pregnancy rates, either with IVF or spontaneously. And so I tell that to patients. I'm like, this is what I've done for 20 years. I have a lot of patients who have conceived after an ovarian cystectomy. I think the biggest impact on fertility is the size of the endometrioma. I think if we can get them before they get hit five centimeters, I think we have pretty good outcomes as far as preserving their fertility. I think when they get nine, 10 centimeters and bigger, it's a losing battle.

15:53If your periods knock you out, if sex is painful, if you're told your scans are normal but your pain isn't, listen up. That's not something you have to just live with. Endometriosis is often missed, misdiagnosed, or managed without a full evaluation of what's actually happening. Endoglobal specializes in advanced endometriosis review, including imaging assessment, multidisciplinary evaluation, and excision-focused surgical planning. They offer affordable options and a complimentary consultation to review your case and determine whether surgery is even right for you. If you're tired of guessing or gaslighting, start with answers.

16:40Go to drbrighton.com slash endoglobal to schedule your complimentary consultation. That's d-r-b-r-i-g-h-t-e-n dot com slash e-n-d-o-g-l-o-b-a-l. I want to add to that comment because I think the problem with these systematic reviews and that I've read that paper because you sent it to me is that they include data from all the available studies, which you would think would be a good thing. But what the surgeons are doing varies a lot. So this is why I like Horace Roman so much. Like fangirls for a home. Yeah. I like Sean too. I like Sean too. Because he is so transparent about what he's doing in the operating room.

17:34and he's using exclusively this plasma jet ablation and the best fertility outcomes reported in the literature are his. So I think, of course, we have the most data on cystectomy, right? And so I think that's why there are higher pregnancy outcomes. There's just not as many people doing ablation. It's a more new approach, CO2 laser ablation or laser ablation. That's what I mean by ablation. But I think his data is good. So I think more than the exact technique, it's the thoughtfulness behind the surgery, looking at the patient's entire picture, their age, the whole picture. Like the individualized approach is so important for endometrioma.

18:15That's why it takes so much counseling to make an informed decision with the patient. I think this is a good time to bring up Roman's other paper, which looks at women who failed two IVF cycles, then had surgery for endo, and their pregnancy rate went up, the conception rate went up by 1.8 times. Their live birth rate went up 2.2 times. And so what that means is the miscarriage rate went down. And these are women who had years of infertility. they had two failed transfers, and they had stage three and stage four endometriosis. They define the cycles as the retrieval and transfer of all of the embryos from that one retrieval in the literature.

19:03Talking about endometriomas, profound endometriosis or deep endo. When you operate on endometrioma, it's never just an endometrioma. Yeah, which is what Vicky was saying, is that if you find an endometrioma, that's suggestive of deep infiltrating endometriosis, which means that going in and doing a surgery on just the endometrioma won't necessarily help someone's fertility if they've got lesions throughout the pelvis that are causing all kinds of inflammation. Right, because all of those lesions need to be removed. Yeah. And Shanti, you were going to say something and we sort of ran away on that train.

19:38No worries, no worries. I want to add to this conversation. One is that in doing a cystectomy, if you don't have the option of being able to use plasma jet or CO2 laser, that one of the most important things that everyone here at the table knows is not to use thermal heat. And so if I'm doing an ovarian cystectomy, it's where I slow down. I am very carefully teasing the cyst fully away. Even if it's a large endometrioma, I'm trying to protect as much as I can the ovarian reserve. Why are we caring so much about saving women's ovaries? Because they want fertility. But even if it's not fertility, let's say she's 42.

20:13Why? Hormones. Say it. Because there are people out there that act like your organs are expendable when your reproductive years are done. There was a study that showed that women who had their ovaries removed prior to menopause had at least double all-cause mortality. Two years earlier. They died two years earlier. Yeah. They lost years of their life. And increased morbidity. Yes. In those lives they're living. Yeah. A couple years ago, one of my former fellows, Peter Sticko, he's at a Catholic institution in New York, and they did a pretty big, very solid retrospective analysis. So it's a Catholic institution.

20:56I said that because they're not doing IVF. And so they are looking to see at spontaneous conception. And this is an incredible number. But the live birth rate for people who had excision versus ablation was four times. Is that all stages? That number is all stages. And the other most important factor in terms of fertility is age under 35. I want to underscore that this is something that really tells you that if you're looking to get a quick surgery for your fertility, probably ablation is not your answer. And so, yes, okay, if you are living in the middle of North Dakota and you don't have an excision surgeon, a peek and shriek might be the great idea.

21:45You might want to ask your surgeon, well, just take a quick look, take two little tiny cuts and get me lots of pictures. I want to understand if I have this disease. And that's a European model. They get diagnosed in smaller communities and they get referred to centers of excellence for endometriosis. That's how it ought to happen. Indeed. Yeah. And for women listening, stage four endometriosis is what I was diagnosed with, bilateral endometriomas. And I did conceive naturally at 40 years old prior to even knowing I had these conditions. I also have adenomyosis. Then I hit 41 and it was miscarriage after miscarriage after miscarriage.

22:22And I want to say that yes, your nutrition, your lifestyle, everything will have such a positive impact. If you're in your 20s right now, don't think all is lost. But also, as you were saying, age 35, if you are right now 32 and you know you have endometriosis and you might want to have a baby, you need to have that conversation now. So just bring all that up because I know my audience knows my story and a lot of people will say, well, you were able to conceive naturally at 40 and you had a healthy baby. And I'm like, but that's not the story for everyone. And at the same time, we very much have to recognize that endometriosis can affect your fertility at 23.

23:06If wanting to have a baby is on the agenda, doing everything you can to take care of your body right now is if you are pregnant is step one. And step two is get on the internet and maybe schedule an appointment with these ladies or someone else who actually knows endometriosis and get that looked at. I want to go to the truth, which was removing ovaries doesn't cure endometriosis. Tell us about that. So endometriosis lesions, they're self-propagating. Endometriosis produces aromatase, which converts peripherally circulating testosterone to estrogen. I don't want to insult oncologists. They do such important work, but it's such an on-c move to remove the ovaries in these patients when they're very young.

23:50On-c move. I want a shirt that says that. That's an onct move. It's an onct move. It's like you remove the perfectly normal organs and leave all the disease. And I'm like, why? Why? These lesions are self-propagating and you're robbing these patients of their, you know, their hormones that they need for their health. You need to actually remove the disease. And so for everyone listening, the thought is if we take away the hormone factory, which is your ovaries, then we can make your disease go away. But this is the same reason why we don't see women in menopause necessarily have complete symptom relief from their endometriosis.

24:25Even once those ovaries have self-elected to stop their job, the endometriosis can still cause problems. A patient listening right now, somebody's like, how do I know if I have endometriomas? Are there any symptoms that might tell them they have an endometrioma? And then what's the imaging step next? Sometimes patients with endometriomas that rupture are in the emergency room and sometimes even hospitalized for pain. And that happens once or twice, and then they get diagnosed with an endometrioma. But the thing is, you can see them on imaging. That's the lucky thing about endometriomas. You can see them on any ultrasound or MRI.

25:02Somewhere around 30 % of women with endometriosis will have intestinal endometriosis. When you look at women with endometriomas, it's north of 50%. So what does that mean, intestinal endometriosis? In the bowels, covering the intestines? So typically, endometriosis can live in any section of the bowel, small and large. But the most common area is the rectosigmoid area, which is from basically right behind the cervix up to just about your hip bone. The rest of the colon is very unlikely to have endo. The appendix in the small intestine, the end of the small intestine, we call it the terminal ilium, is the most likely place for it to be on the small bowel.

25:51But probably 50 % is in the rectosigmoid and the pelvis. And so these nodules can be any size. They can be superficial or they can be deep. The deep ones can be, sometimes we find them in there a centimeter or less, and those are easy. We can shave them off. As they get bigger, the bigger they get, and especially with respect to circumference of the bowel wall, then we have to be careful because there's so much fibrosis and so much scarring in the bowel wall next to, adjacent to these lesions that I would say the hole we wind up with is twice as big as the hole we make. So we can't make too big of a hole, otherwise we can't close it.

26:37So somewhere between two, two and a half centimeters is our cutoff for what we will do with the discoid. If they're bigger than that, then we have to do what's called a segmental resection where we put the staples on, we cut it above and below, and then we hook it back together like you're slicing a garden hose. How often is it that patients are being screened for bowel endometriosis and then the colorectal specialist is actually there in the operating room with them? I don't think it happens unless you're at a specialty clinic. And so this is where peak and streak should happen, but sometimes it isn't until they've actually done removal that they get in there and realize they're over their head.

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27:20It's sometimes hard to tell. I mean, usually when you have endometriomas, you have what we call frozen pelvis or obliterated posterior cul-de-sac, so you can't even see the bowel that's involved. It's hidden under all the adhesions and the endometrioma. So, I mean, I do think if you see something like that, a pico-shriek and shriek is the best thing to do. Often patients with bowel symptoms have gone over and over to their primary care providers and to GI surgeons and had colonoscopies that have been negative. And the reason for that negative colonoscopy in most cases of endometriosis of the bowel is that endometriosis grows from the outside of the bowel in and not from the inside out.

28:01And so we don't see it always on colonoscopy, even if it's a large lesion growing from the outside. And colon cancer is different from that. So colon cancer, you can pick up on colonoscopy. So patients are often told that they don't have any problem in their bowel. There's no endometriosis in your bowel because they had a colonoscopy that was negative. What should a patient know about surgery when nerves are involved? There are two kinds of lesions. You have intrinsic lesions or extrinsic lesions. I think I've seen one intrinsic lesion in my life. Most of the cases that endometriosis affect nerves, it's because they have extrinsic lesions.

28:41As Shanti was saying, endometriosis grows from the outside to the inside. So the thing about when you don't think about the nerves, it's about the outcome. Because one, maybe the pain or the dysfunction, it's not going to get better. It depends on how many years the nerve has been affected in order for us to tell the patient, you can get your bladder function back, or you can have your pelvic floor function back, or maybe the function on your leg in case of sciatic nerve involvement. You're going to be able to have strength again or the movement again. So it depends on how many years it has been affected, but also it depends on the skill of their surgeon and the physical therapy afterwards.

29:27So having this in mind and having this conversation beforehand helps the patient prepare themselves. Because if I told you that after your surgery, you may have to self-catheterize your bladder in order for you to pee, it's going to be a whole different mindset up that this is like a surprise. Oh, I'm not able to pee what is happening. If I told you, well, it's part of the process and maybe you're going to gain back your ability to pee. So it's a whole new conversation and mindset of the patient. Because sometimes they think that a surgery will cure them and it'll make everything better. But if you don't do the tests beforehand, you will not be able to diagnose everything.

30:14So that's why it's important. What test beforehand? We usually do MRIs and we usually do physical exploration. And in some of the patients that need them, we do urodynamic testing. And do you always recommend physical therapy post-op if there's nerve involvement? Even pre-op. It's even better. They get better results if they begin their physical therapy before the surgery. And how far ahead is preferred versus like, you know, this is the best we can do? Sometimes the best they can do. I mean, sometimes they fly from another country and we have one week of them. So they do two sessions before. And sometimes we have even one month to prepare them for surgery.

30:55And that's even better because the nutrition can get taken care of and also the physical therapy can be taken care of. And also depends on the dysfunction of the patient. Yeah. Sometimes we have patients that are not such hard cases, and sometimes we do. I was telling them about a patient that we had that in their last two months prior to our surgery had only eaten mango. So she was really malnourished. So the amount of complication that can come with a malnourished patient, it's higher. So you have to take care of this before doing the surgery. So PT and nutrition before surgery, do you run any panels, like do any blood work to see if there's any nutrient deficiencies?

31:35Yes, of course. But usually we refer them to our nutritionist who's going to check about their amount of muscle, the muscle mass. And also if they have any anemia or any problems with the proteins in their blood. We do this workout or workup before. So if someone's anemic or they have low muscle mass, does that mean you need to delay the surgery? Yes, but it depends on the patient also. Because sometimes we cannot delay, for example, a ureter that has been taken and they have a risk with kidney. Most of the surgeries can be delayed a little bit, but there are some cases, specific cases that cannot be delayed.

32:18Endometriosis doesn't always show up the way people expect it to. And too many women are left managing symptoms without a full evaluation of what is actually happening. Endoglobal specializes in complex endometriosis care, including advanced imaging review, multidisciplinary evaluation, and excision-focused surgical planning. You deserve a team trained to recognize the full scope of this disease. To learn more or schedule a consultation, visit drbrighton.com slash endoglobal. That's d-r-b-r-i-g-h-t-e-n dot com slash e-n-d-o-g-l-o-b-a-l. I agree with starting physical therapy ahead of time when possible, and also very soon after surgery.

33:10Like within a couple of weeks, they could begin physical therapy. That's the main thing. But then afterwards, I really begin to counsel patients more about their nutrition. Six to 10 servings of fruits and vegetables. I have a list of supplements that I think are valuable. Food sensitivity panel, hormonal treatments, often bioidentical. Are there any things, Vicki, that you think are ideal that people get in place before they go into surgery? I spent a lot of time on the counseling part. I definitely think having support at home, setting up your home so you're not reaching or squatting, making sure all the medications you have that you're going to need for after surgery are at home.

33:55I definitely agree with nutrition. I think anemia and correcting that is huge in the recovery period. I do check that often, like iron panels. And if they're malnourished, definitely send them to a dietician and nutrition. Right now, I have a patient coming up for surgery next week, and she herself is an exercise physiologist, and she works with athletes. And she has just become so debilitated from her own disease, but she's managed to keep herself functional through really expert nutritional techniques. And so she was asking, can she do this carbohydrate drink before surgery and this special protein drinks.

34:35And I'm all about this. I drink a lot of nasty stuff before my surgery. Exactly. And so let's go. That's kind of on the forefront of what I think is really important adjacent to doing surgery. Surgery is traumatic. Surgery in and of itself is an inflammatory state. I understand the toll that it takes on your body and the incredible importance in particular in the setting of endometriosis of having adequate protein. And then particularly my vegan patients, making sure they understand what their sources of protein are going to be. And sometimes patients have, as you said, your patient was only on mango because everything else made her feel bloated.

35:15And so our patients are limiting their diet so much because they feel so terrible. Imagine like you eat something and you instantly feel bloated and it ruins your day. And so this is their life, right? And so really trying to figure out ways to bolster nutrition, protein, and these are extremely important aspects of our care. Well, I think exercise is also important. The ARAS protocols to enhance recovery after surgery show that 30 minutes of walking every day for at least two weeks prior to surgery really helps. Yeah. I want to put a plug for exercise because my audience knows this. Anna knows this.

35:57My friends know this. My husband has caught me crying, bawling, working out. And he's like, what are you doing? And I'm like, I know if I can just get to five minutes, I'll start to feel better. And by the time I hit 20 minutes, this endo pain is going to be cut in half, if not completely diminished. And so for people listening, it can feel impossible because of the pain. You know, I shared in another episode, three weeks of like barely being able to move because the pain was so bad. I still got up and I still walked and I still made it happen because I was like, give me those endorphins. And I will say that has been one of the most effective therapies in managing my endo, but it is the hardest to absolutely, I will just be the first to say, I do not want to get out of bed.

36:42I do not want to, I don't want to do anything about it, but I'm like, I know if I can just get there, then the pain isn't going to be there. I just wanted to add something, which is we have a lot of patients with overlapping conditions, and one of them is Ehlers-Danlos. And those patients have a really difficult recovery or can. If they haven't been diagnosed before or like, I feel like it's really important for patients with Ehlers-Danlos to like prehab, like what Anna was saying with the PT. I feel like it's even more important because those are the patients that use a walker for six months after surgery.

37:14If they are not diagnosed before and they're not getting the treatments, which are mostly supportive and related to PT, they really suffer after surgery. And they're not mentally prepared for that. I want to say one final thing, and it's a really sensitive topic, which is that when patients are severely overweight, and I'm talking about a body mass index over 45, approaching 50, it makes it harder for us to do the surgery and to really adequately remove the disease. and really to be able to see down deep into those corners and in the posterior cul-de-sac and look up underneath the ovaries and everything and also diaphragm disease.

38:02Obesity is a really delicate subject because it's so often patients who are obese are told that's why they have pain. And yet so many of them happen to also have endometriosis. And so finding that balance where a little bit of weight loss, and maybe this is one area where GLP-1 analog drugs can be so useful and getting down just a little bit at least and getting down into that range under 50 body mass index, that's going to help the outcome of the surgery. Well, in the risk of going under general anesthesia. Multiple complications, right. Even tolerating the positioning during the surgery. Tolerating the positioning, yeah.

38:42Being able to be respirated during a surgery. I've had surgeries aborted because the person was a smoker and with a high BMI, and they couldn't adequately respirate her under anesthesia. Yeah. It's important considerations. And, you know, as you were bringing up EDS and the connective tissue disorders that can come up, this is where mobility work is so important. And whenever I talk about this, people are like, no, but stretching is bad for us. mobility work of the joints is not stretching in the sense of like you think of a yoga pose and just holding it. It's about strengthening the joint capsule so that you do have more stability.

39:20So for anyone listening, that's something that a good physical therapist will work with you on. And I, this was, I'm so glad you brought this up because it was a question I was going to ask, because now that we know endometriosis overlaps, autism, ADHD, EDS, MCAS, so histamine issues, mental health disorders, autoimmune disease, cardiovascular disease, right? There's this huge list. All of those things are made better with nutrition and exercise. They are not cured. And so for people listening, if you have these co-occurring conditions with endometriosis and you're like, I can't get surgery yet, know that every step that you make in your nutrition and lifestyle is going to result in better outcomes in your surgery, but it's also going to help these co-occurring conditions that can also flare with a surgery.

40:10Why are doctors removing an organ, the uterus in this instance, for a disease that by definition exists outside of that organ? Well, partially it's what they're taught. Partially it's financial. You know, there are times when a hysterectomy is a good idea. So what are those times? When is this something that should be considered? So hysterectomy is the best treatment for uterine pain, pain from a uterine source, but only when somebody does not desire future childbearing. So you can be 21 and say, I've known from the first day that I had a thought that I never want to have a kid. You can be 35 and have four kids.

40:56It doesn't matter. As long as you know absolutely for sure, without a doubt in your mind. And second of all, uterine pain tends to be central pelvic crampy pain. It can be pressure, heaviness, like there's a bowling ball sitting on top of your vagina wanting to come out. Sometimes that pressure is pelvic congestion, but a lot of times it's associated with a uterus, especially a large uterus, whether from adenomyosis or fibroids. If you have cramping at the end of an orgasm, that is a sign of adenomyosis. My favorite description by a patient is, I've got a hot fireplace log sitting in my pelvis.

41:39That is absolutely a perfect description of uterine pain, whether it's adenomyosis, whether it's fibroids. But if someone also has endometriosis, then you also have to remove the endometriosis because removing the uterus won't cure endometriosis, but removing the endometriosis also won't fix uterine pain if you don't do anything about the uterus. I had a listener question that she said, I'm postmenopause and I have had a hysterectomy, but can my endometriosis still come back? Yes. Dr. Redwine wrote a paper on postmenopausal endometriosis, and it is somewhat similar to endo in younger women who were on the pill.

42:27It is less biologically active, but it's still there and it can still grow. I have a patient who has a rectal nodule, but she's deathly afraid of surgery. And I think she was 50 or 51 when I first saw her, and the nodule was like two and a half centimeters. And she was perimenopausal then and she just wanted to wait. And so every year I see her and I ultrasound her rectal nodule. And she was on progesterone for a while and it actually got down to about one and a half centimeters. Then she was worried about something in her eye. And even though I told her progesterone doesn't influence anything bad in your retina, it's okay to keep taking it.

43:13She stopped it for a year and the nodule grew. Yeah. And it grew back to about two centimeters. So now she's back on her progesterone. She's happy. She's fine. What questions can a patient ask a surgeon that immediately reveals that they're qualified? That's a great question. So starting with their training, really important that they've had advanced skills in minimally invasive surgery. I also think that if they are a provider who also delivers babies, that they are less devoted to advancing their surgical skills. So knowing their surgical volume is important. I would say at least 8 to 10 surgeries a month at minimum for good volume.

44:00And then asking questions about, do they do any ablation? What do they think needs to happen to help them with their pain? These are some of the hot things that come to my mind. I feel like if they work in a multidisciplinary team, that is a good sign that they have. Yes, absolutely. You know, like we have a colorectal surgeon as part of our practice. Like I have a urologist that I do surgeries with. We have a thoracic surgeon that we operate with. If you have collaborators that can take on advanced disease with you and help minimize, because that helps minimize the risks of a major surgery for the patient, that's a sign that that's a surgeon that knows what they're doing and is familiar with complex disease.

44:42Also going through the process of certifications, we have the I Care Better, we have the SRC, and you have to show them your videos and you have to show them your data. Especially in the SRC, you have to show them everything. You have to send them videos of your excisions. You have to send them the casistic of all of your patients and the amount of complications that you have. And you need a minimum of 300 patients in a period of time. So I think going through that and to have these type of surgeons that somebody else have checked them that whatever they're saying, it's real. I think it's important.

45:21I think the other thing too to ask, especially if somebody says they do excisions, is to say, how large are your specimens? If they get mad at you for asking the question, that's not good. So now we're moving into red flags. Throw that red flag. Yeah, but if they say, you know, it depends. Sometimes they're centimeters, sometimes they're three centimeters. It depends on what they're on, you know, what specimen it is, you know, then I think that's good. What is a red flag in an endometriosis consult patient should be aware of? So no pre-op assessment. Let's go to the OR. Insisting in surgery. Just insisting on surgery, but not even evaluating for the extent of disease.

46:08So like not really even making sure they'll be prepared to take it on. You know, I think that's a red flag. No physical examination, no medical history, no nothing. It's like, oh, yeah, you come here. Now we know that you have this diagnosis that somebody else made. Let's get you into the OR room. I think that'll be the reddest flag. Or we can't know until we get in there. How bad it is. Red flag. Because we can now, as we've established. And you should. And you should talk to the patient about what it looks like. So the patient is prepared for their recovery and can prehab and can do all the things they need to do to prepare for their recovery and their future, fertility or not, or whatever it is.

46:46The patient should know how bad it is. Yeah. And insistence that someone be on a GNRH analog after surgery. Okay. And why is that a red flag? It indicates that they don't think they can get all the disease and that they need to suppress you afterwards. We try to get most of our patients who do not have stage 3 and 4 disease to stop their hormones at least a month prior to surgery. Especially important in teenagers in early 20s. Because what we want is we want all the disease to be in full bloom so that we can see every little thing. So when you say stop your hormones, are you talking birth control pill?

47:27Are you talking like Lupron? Combination birth control in progestins a month and then GnRH agonist or Depo-Provera probably three months because we want them to have at least a month of normal estrogen levels so that it can feed these small little tiny lesions of endo so that they're more obvious. Studies have shown that the appearance of the disease is altered by age, which is indicative of over time hormonal exposure and also by the use of oral contraceptives and GnRH antagonists makes the lesions less apparent. They look like scars. Yeah. Which doesn't mean that they're gone because they've been on hormone therapy.

48:15They're still there. If your endometriosis pain is still ruining your life, something was missed. This disease is complex and without specialized evaluation, it's easy to manage symptoms without addressing the full scope of endometriosis. Endoglobal focuses specifically on advanced imaging review and excision planning. and they offer affordable options, including a complimentary consultation to evaluate your case and determine whether surgery is appropriate for you. You do not have to guess on your next step. Visit drbrighton.com slash endoglobal to book your complimentary consult today. That's D-R-B-R-I-G-H-T-E-N dot com slash E-N-D-O-G-L-O-B-A-L.

49:09Well, let me ask you, not everyone needs surgery, but what are some signs that someone should consider it? That's a great question. I really think that if a person is having a degree of debilitation that takes them out of work, out of school, out of play, out of sports for any duration every month, that that's a sign that things aren't working, things aren't right, and that we need to figure out what's going on with their pain. Okay. Ana, what should women realistically expect after excision? No excision patient or no patient are the same. So I think we've had so many variables in this afterwards.

49:55I've seen patients that they woke up after the surgery and they're like, that pain that I was talking about, it's gone. And they won't feel it again. So it's amazing. We have other type of patients that the surgery is just the beginning, and now we have to work together because it's uphill from here, especially when you have nerve disease or nerve involvement. I think the best way is to expect whatever your surgeon told you to, because whatever they find in your surgery, it's going to determine what the evolution afterwards is going to see. But for example, in patients that have a bowel disease, usually they stay with us like in the hospital for 72 hours.

50:39It depends on how well they are pooping or canalizing gases or how well their labs work afterwards go. And to be again into the normal life, it's one month. And to start working out, it's two to three months. It depends on every patient. We've had patients that are iron women that are amazing and start with the muscle mass that permits them to move them early. And we also try to do the fast protocol. But it depends on every patient. And this is in my case. We don't see the same timeline in every patient. So let me ask, Victoria, what should people expect in terms of symptoms post-op versus what are red flags?

51:22Yeah, we give warning signs and then there's some things to expect. I think some things that people don't necessarily realize they may feel is like right shoulder pain from the CO2 insufflation that we use. Literally the worst. Yeah, it can be a little scary. You can sometimes feel it in your neck. I think all of us in here try to get all that CO2 out, but every now and then there's a pocket of trapped CO2 and it irritates the diaphragm and causes a referred pain to the shoulder, usually on the right side. I think bloating after surgery is really a common complaint. People often feel extremely bloated.

51:56And it's just the inflammation from the healing process. It can take like four weeks, sometimes six weeks for that to fully get better. Other things is like, you know, you don't have a normal appetite. It's normal not to have a full appetite. It takes time to rebuild your appetite. Fatigue is a huge part of the recovery. You want to give yourself time to rest. You may walk around your apartment or your home, and then you might take a two-hour nap. And then you might walk again for like 10 minutes, and then you might take another two-hour nap. Fatigue is your body is diverting its energy to your healing.

52:27Red flags, fevers. That's not normal. We want to know about fevers, especially if there's any bowel surgery. Pain that's not getting better with your pain medications. Like if you were feeling a lot better and then suddenly you're feeling really, really bad, that's not good. I mean, sometimes people feel worse after a day where they were a little more active, but the general trajectory should be improvement. Although people with central sensitization sometimes don't have that trajectory. So you have to, as a physician, evaluate the patient individually as well. Cindy, do we know what the rate of recurrence when the surgery is done by an expert versus a general OB-GYN?

53:07Yeah, what you wind up with is a 19 % chance of persistence or recurrence over a seven-year follow-up. Nuer's and all four of those studies had remarkably similar numbers as far as the surgically documented cure rate and then the recurrence or persistence. Studies show a 10 % rate of reoperation for pain for reasons suspected to be endometriosis or even adenomyosis. And so our numbers are somewhere in that probably 10 % or less number. I think there's like a larger conversation with this question. I think there's a lot of residual disease that's documented as recurrent disease in the literature.

53:58So like, I think there's a lot of misinformation out there in the literature with regards to recurrence of endometriosis, because if you ask the paper that the ACOG practice bulletin on endometriosis, like basis its recommendations on had like a super high recurrence rate of reoperation in that, in their cohort, it was a study out of the Cleveland clinic. And I think it was something like a 60 % like reoperation. It makes surgery look terrible. Like it looks so bad. But I feel like that's, again, it's like when you look at the collated data versus like the specific centers, and I know that introduces a certain amount of bias, but at least when you look at the specific centers, you know exactly what they're doing in their surgery and that their goal is removal of all visible disease and that they're treating overlapping conditions.

54:44because that's very important because recurrent pain from vestibulodynia or hypertonic pelvic four dysfunction is not recurrent endometriosis pain. Saying as well is that sometimes the first surgery didn't actually get everything. This isn't recurrence. This is first surgery. It's bad surgery, persistent disease, and an incomplete diagnosis of overlapping conditions, including adenomyosis. So I think adenomyosis is often undiagnosed and unrecognized as the source of the persistent pain after surgery. The problem with the vast majority of studies looking at surgery for endometriosis is they don't control for the skill of the surgeon.

55:25And here's the thing. Not all endometriosis surgeries are created equal and pretending they are is harming women. So Cindy, I want to ask you, why are general OB-GYNs still managing a disease that they are not trained to treat. I think it partly comes down to money and partly comes down to ego. There's an awful lot of doctors who really try to do the right thing. They want to help their patients. They feel bad for them. And so they take them to the OR and they do what they were taught to do, which is do ablation. I would say over the last 10 years or so, there's a lot more gynecologists who say they do excision, but that doesn't necessarily mean that they do excision well.

56:12Because as Anna was saying, when a patient has deeply infiltrating nodules on the uterus sacral ligaments, on the rectum, in the rectovaginal septum, there's a lot of really important structures that they have to dissect out, that we have to dissect out. And this training, to get really good, it takes a long time. Endosurgery is not something you can learn in a year or two. But the problem is, is docs that either they do a MIGS fellowship and they don't have that endo training, or they're generalists and they think that they, because they watched a few videos, they can do excision. And they don't get deep enough.

56:54And I think that incomplete excision is a horrible thing for patients, a lot of patients to go through because they wake up in way more pain than they were before they started. And that doesn't even address endometriomas. I have seen so many patients with endometriomas have surgery by generalists or MIGS docs that don't have endo training. They open up the endometrioma and just let it drain, or they incompletely excise the endometrioma. Well, it just reforms and predisposes women to ectopic pregnancies. So I've seen very unfortunate outcomes when women have lost both of their fallopian tubes because of bad surgery by somebody who should not have been doing endometrioma surgery.

57:50If general OB-GYNs are not qualified to do these surgeries, why is there no protection for endometriosis patients from them doing harm? Well, it goes back to standard of care. And like I think we talked about in the first episode, standard of care is it's okay for a generalist to do a surgery where they do either nothing for a diagnostic laparoscopy or an ablation or an ablation with partial excision, that is not a violation of the standard of care. The only way that we are going to change these things from happening is to change the standard of care. And how do we change the standard of care?

58:33Because harm is being done. And the Hippocratic Oath is first due to harm. And yet, OB-GYNs sometimes knowingly are subjecting their patients to harm. I want to believe the majority of OB-GYNs are just trying to help, just trying to get patients out of pain. But how do we actually change the standard of care so that there is improvement for endometriosis patients? Well, I think we need better data. We have to prove conclusively with data that our outcomes are significantly better than those of general OB-GYNs who do ablation. A patient who's listening to this right now, if they opt to have surgery with someone who is collecting this data, they will effectively be contributing to the body of evidence that can change the standard of care.

59:20Yes, that's the goal. I mean, we don't have this database yet. And it's really hard to do this sort of research without the backing of a university because they have the statisticians, they have the ability to create the IRB. I'm just going to throw a plug out. Anyone who is interested to being a private donor to do research like this can also be helpful. And you can easily have a relationship or establish a relationship as like adjunct faculty within your university and partner with them. So I feel like private funding at this time, at this point in time in the United States, is actually probably the way to go to get this going.

1:00:06Melinda Gates just donated a lot of money to endometriosis research. Where is that actually going? Because I saw the headlines, I saw the yay, and I'm like, but we know bad research has been done. We know research has been done that prioritizes how men feel about women with endometriosis over how we actually treat women with endometriosis. So do we actually know at this point where that money is going towards? We have no idea. We have no idea. There's no way to track that. Yeah. Melinda, if you want to let us know, I would love to know that. But I'm curious, what has been done to make endometriosis its own specialty?

1:00:42Have there been any efforts made? Yeah. So we all have been part of this group within, it's a subgroup within AGL. And AGL used to be called the American Academy of Gynecologic Laparoscopy. Basically, it's the national organization or international organization that promotes minimally invasive GYN surgery. So you would think that that group would be the one that would want to promote even a designation, but to have a designation of you are a center of excellence, you have shown the ability to do excellent surgery. Therefore, we will give you the designation of a center of excellence for endometriosis excision surgery.

1:01:29And I tried to do that, and I'm sure other people have tried to do that, and it has been shot down time and time and time again. And for what reason? Probably multiple reasons, though. Yeah. We also have made some progress, at least now. Within our board certification, there is a subset for people who have trained in minimally invasive surgery, so at least that's a step beyond your generalist OB-GYN. I think that it's very threatening for oncologists, urogynecologists, general minimally invasive surgeons to think that there are surgeons who are going beyond and pushing the envelope of what's possible with minimally invasive surgery.

1:02:22because what we do is often harder than oncology surgery. And oncology surgery is reimbursed more appropriately than what we do. And so I think we just have to keep plugging along and demonstrating that these surgeries are tougher. When I do my operative reports, I document the time this whole surgery took, how long it took me to excise a rectal nodule, how long it took me to excise from the diaphragm, how long it took me to excise off the ureter, and so forth, to begin this cataloging, this information cycle of this is harder than going in, taking a look, and burning a few spots and doing a biopsy.

1:03:08And so insurance companies are seeing that. And the more that we do, those of us who are involved in this, really make bomb-proof proof dictations, demonstrate the degree that is necessary surgically to affect this disease, then we will begin to see change. They don't realize that they aren't trained. They think they're doing what's right. They think they're helping the patient and they're so psyched. They went in and it took 20 minutes. They biopsied a spot, burned a few spots and send the patient home on Orlissa and they are psyched. They've done their job. It's a turf war, more or less. It's a turf war.

1:03:48Yeah. You need to be able to know that you don't know. And sometimes that's hard. And you need to be able also to hear your patients. That was one of the things that got me into endometriosis surgery. I think that we all share about our stories, but I think it's like frustrating when you treat a patient the way they show you to in residency or in fellowship, and you do the things that they told you that are going to help them, and you don't get the results that are supposed to. It's like, I did what I'm supposed to do, and I did what the guidelines tell me to do, and still you're not better. What is happening here?

1:04:28I think we're failing them. So that's why we're struggling into having a fellowship here also in Mexico by the Autonomous University in Mexico, UNAM, so that we can train new doctors. And also, one of my friends made an excellent point by trying to go to the medical schools. Like, if you go to any person, like, even in not such high socioeconomical grade, if you tell them about where is diabetes, they'll tell you, oh, that's high glucose in your blood or high sugar in your blood. But you tell them about where is endometriosis, it's like they don't even know. It's not so highly diffused. And it affects one every 10 women.

1:05:10So if you go to medical school and tell them, what do you need to use to treat diabetes? Oh, insulin or better diet or something. And what do you need to treat endometriosis? They're not going to know. If we start them young, maybe can be another way to change this. Vicky's point, it's a turf war. The collateral is the patients in this war. And that's what I think is so troublesome is that there can be so much ego around who has the right to cut this patient in the way that they think is best. And in some aspects, you know, I just want people to understand because I think the first thing people listening are going to be like, because they're a bad doctor, because they had bad training, because they went through a training that indoctrinated that in them, that they had to be the best, that they had to fight for this.

1:06:00And then as we talked about in previous episodes, we've got hospital administrators that are making people fight it out. Then we've got insurance companies. And I'm curious because you talked about reimbursement. Are women's gynecological procedures reimbursed at a lower rate compared to those that are comparable in men? Yes, totally. And not just surgical rates, but obstetric rates. Like you can care for someone for nine months and deliver their baby and you make less than a 20-minute orthopedic procedure on the knee. And why do you think that is? Misogyny. You can say misogyny. She's whispering it.

1:06:39You can say it. But GYN pays less than OB. And so there's no incentive for generalists to learn how to do better surgery because they get paid to deliver babies. They'll make 400 grand delivering babies. And if they cut out the OB and all they do is GYN, they'll cut their salary in half. And it's because the reimbursement for GYN surgery is terrible. for what we do. So I was in network within my own practice for about five years before I went out of network because I wanted to believe that I could figure out how to make it work so that it wasn't just that rich women could get decent surgery. I did a five-hour case once on a woman with bilateral endometriomas and a rectal nodule that I could excise with a discoid excision.

1:07:36I I got paid$750. And that's when I said, I can't do this anymore. I have to go out of network. And just to explain, I just want to explain that further. $750 is not what Cindy took home as her paycheck. It's what covered the overhead to run her practice in her office. She's losing money by doing the surgery. And I want to say, so what I'm hearing is that General Lube Gynes still going at it, thinking they're experts in endometriosis. One, we've got a training issue. Two, we've got a, they don't know better. They actually think that they're doing a good job. Three, we've got coding issues that sound like we've got insurance incentivizing them to do bad care, basically, right?

1:08:18This is bad care. They're incentivized. Monetarily, they're incentivized to half-ass a procedure, maybe even do a hysterectomy over actually preserving her ovaries and taking out that endometrioma correctly. They'll actually get paid somewhere around$2 ,000. Most private insurance will pay two grand for a hysterectomy. When you say it's so impossible to find a good surgeon, to find someone who actually knows endometriosis, you are validated in this because there's an entire system that goes from the insurance company to medical school education. And as you talked about in the first episode, pharmaceutical influence, that is making it so that profit happens at the top and it hinders the physicians from actually being able to provide the care patients need.

1:09:03Or even wanting to. It devalues. It devalues their care. It makes it not sexy to do this job. No, it's not financially viable to do this. Right. Yeah. Well, this has been a fantastic conversation. We are moving into our final episode, which is going to be all about hormones. We're going to come back more to progesterone talk, but thank you all for sharing your expertise and for helping women everywhere. It's our pleasure. And thank you. Yeah, thanks for having us.

1:10:00forwarded to voicemail.

From the publisher

In this powerful surgical roundtable, Dr. Jolene Brighten sits down with four leading endometriosis surgeons to unpack what truly determines success in endometriosis surgery and why so many women are left worse off after procedures that were supposed to help. This is the 3rd episode in our endometriosis panel expert series—be sure to check out the previous episodes for more endometriosis specific information. 

This is not a generic “what is endometriosis” conversation. It is a deep dive into surgical skill, systemic failures, fertility trade-offs, nerve involvement, recurrence myths, and the hard truths about hysterectomy. If you’re considering surgery — or recovering from one — this episode may change how you think about your options.

In this discussion, you’ll learn how to identify red flags in a surgical consult, what “peek and shriek” means (and why it can sometimes be safer than incomplete surgery), why reimbursement structures influence care, and what realistic recovery looks like.

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EndoGlobal Group

At EndoGlobal Group, a network of world-class endometriosis specialists comes together to provide comprehensive, multidisciplinary care for patients with complex endometriosis—offering advanced diagnostic mapping, complete excision surgery, and holistic support.

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Meet Our Experts

Dr. Victoria Vargas, Endometriosis Surgeon
https://www.washingtonendometriosis.com/dr-maria-victoria-vargas-md/

Dr. Ana Sierra, Endometriosis Surgeon with Neuropeviology Training
https://jolene.endoglobalgroup.com/

Dr. Cindy Mosbrucker, Endometriosis Excision Surgeon https://pacificendometriosis.com/

Shanti Mohling, MD, Endometriosis Surgeon
https://www.nwendometriosis.com/

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